hi Hirwin, wedid the Spml just a month ago the resultis amazing. there is no track of spasticity in his legs now, though they are weaker. the reason for this weakness is thwt my son used to walk on his tone in almost all his legs mucles now after the disadpearing of the tone he needs to learn to walk on his own strengh of muscles.he is improving much faster than before even faster than the time he was under botox.the proceddure itself is nothingof a hurtful kind.the casts are annoying of course but worth going trough in my openion for sure.please be aware that I did this despite all thedoctors herebeing agaist the Spml. I talked to 1 parent who did this and sow her son,and had some info from others here in Canada who went through procedure succesfuly.My son is 3 and hasn't started walking yet but with the improvement that I see,now I am more optimistic.
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Originally Posted by hirwin
Hello! My son was born at 25 wks. and developed PVL which led to him having mild spastic diplegia cp. He is 9 yrs. old now and about a month ago we had surgery w/ Dr. Roy Nuzzo of Summit, NJ. He is world renown for his amazing procedures on children w/ CP. We were wondering if there was anyone else on this board who has gone to him or might give us some opinions on what to expect from the surgery. He had muscle lengthenings in his heel chords and calf muscles and alcohol blocks on his hamstrings. Dr. Nuzzo doesn't do it the traditional way though. He makes small pinpoint incisions behind the knee and calf muscle and tears the muscles istead of cutting it. The main reason we did the surgery was to help my son's severe toeing in. Right out of the surgery he was walking w/ his toes straight as an arrow, but the more he walks and especially now that he got his casts off last Fri. he has started turning his feet in again. Now more the left, which wasn't bad before surgery. The right was the worst. We always thought his toeing in was a result of hip problems, but Dr. Nuzzo said he didn't have to do anything w/ his hips that it was all due to spasticity in his calf muscles and ankles. Has anyone else had this surgery or seen dr. Nuzzo? Will the toeing in get better? I'm hoping we didn't go across the US for nothing! Another parent I've been talking w/ said her son gradually got better, but I guess I'm like everyone, I want results NOW!! :-) Thanks in advance! Heather
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