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Child Epilepsy - Useful Sites

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Old 09-18-2006, 04:50 PM #1
Kamie
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Arrow Child Epilepsy - Useful Sites
I would like to compile a list of useful sites for child neurology.

So hit me with your useful sites.
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Old 09-18-2006, 05:53 PM #2
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http://www.nlm.nih.gov/ - National Library of Medicine

http://www.locateadoc.com/ - Locate a doctor . com

http://www.rollxvans.com/

http://www.miracleflights.org/

http://www.chirogeek.com/index.htm

http://www.dontlaugh.org/curricula/

http://wwww.ispokewithmychild.com/grief-loss.htm

http://translation.langenberg.com/

http://www.sandiegozoo.org/videos/index.html
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GinaMarie - Basal Cell Carcinoma Nevus Syndrome (BCCNS) also known as Gorlin Syndrome, Multiple other stuff, Mother to 4 miracle boys.
Nathan - Adhd,
Caleb - Adhd,
Adam - BCCNS, Adhd, Chiari Malformation,PDD-NOS
Noah- BCCNS, Adhd, Chiari Malformation, Bronchial Stenosis, Asthma
Thank you Jesus!! He walks with us thru all of this because he will never leave us nor forsake us!! He is my BESTEST friend!!!
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Last edited by Koala77; 10-28-2010 at 09:24 PM. Reason: Removed broken links
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Old 09-18-2006, 06:47 PM #3
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www.kidsepilepsy.com

Great site with info from parents about seizures and medicines/other therapies. You can search by treatment, child, type of epilepsy, etc. Parents give opinions on how different meds worked/side effects/etc.
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Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!!
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Old 09-18-2006, 07:58 PM #4
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Dystonia and Movement Disorders:
wemove.org
KidsMove at wemove.org
wemove.org Parent to Parent Discussion Forum

Dystonia Medical Research Foundation

Epilepsy support for parents:
Epilepsy Foundation's Parents Helping Parents ecommunity

IDEA/IEP
Wrightslaw

Augmentative Communication
Quality Indicators for Assistive Technology
Last edited by WonderBoy; 09-21-2006 at 04:28 AM.
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Old 09-18-2006, 09:20 PM #5
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I've been collecting bookmarks for ages:
http://public.murl.com/moose53/HEALTH_AND_MEDICAL

The 'Health and Medical' folder has many-many sub-folders.

Barb

PS1: If you create an http://www.murl.com bookmark file like I did, it's available to everyone.
PS2: If you want me to extract my links into an HTML file on the internet so that you can incorporate them into your own set of links, just send me an IM; otherwise, you're welcome to use them as they are.
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Old 09-24-2006, 09:14 AM #6
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www.iahp.org

Institutes for the Achievement of Human Potential
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Wife to Scott for 19 yrs, mom to 3 Joshua 17, Megan 12 , with CP, non mobile, non verbal, CVI, seizure disorder (no meds, only few seizures here and there), etc....Most wonderful little angel ever put in our lives.....Jacob 4 yrs old


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Old 09-28-2006, 03:40 PM #7
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Exclamation Useful sites
www.parent-2-parent.com
A great support group/board for tube feeding issues and reflux. There's also a forum for Special Needs Kiddos and Adaptive Equipment.
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Melissa
Mom to Gillian (1)
and Nathan (2) Severely Developmentally Delayed due to unknown prenatal brain injury/illness but still a Bugger!

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Old 09-30-2006, 01:39 PM #8
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A complementary therapy being used for many different neurological disorders and for many different ages from toddlers to adults is: G-Therapy.
G-Therapy has also recently been written about in The Times of India.
http://www.timeswellness.com/fullSto...TW10ART9102006
http://www.g-therapy.org I suggest you click Responses on this link for views from doctors.
Val (UK)
My daughter has cerebral palsy spastic quadriplegia and G-Therapy has been the only therapy after trying many that began to change her in her teens.
http://www.g-therapy.org/cslaura.htm
Last edited by Val/UK; 09-30-2006 at 01:41 PM. Reason: repeated url.
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Old 11-18-2006, 03:48 PM #9
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Default Directory of open access journals
http://www.doaj.org/
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