Fullerton Genetics Center/Dr. Ellen Boyd
For our family she has been awesome. We travel about 3 hours to see her. Well worth it. She is willing to think outside of the box.
Neuroscience and Spine Institute/ Dr. James Parrott
Dr. Boyd recommended Dr. Parrott. He is a good neurologist, he listens to us and takes our concerns seriously. He does not treat just the EEG, which for a kid like Riley is good- it took a long time for her to have an abnormal EEG.
Carolina Neurosurgery and Spine Associates/ Dr. Michael Heafner
Dr. Heafner didn't leave me with a good first impression but since that first meeting he was great. He did Riley VNS and was also very compassionate ans listened to my fears and concerns about the surgery.
Orthopedic Specialist of the Carolinas/ Dr. O'keefe
Dr. O'Keefe is great too. They are NOT seeing any new peds patients though.
Peidmont ENT/ Dr. Maxwell
He was ok, we haven't seen him in years though.
Olsen Huff Developmental Center/ Dr. Adrian Sandler
Dr. Sandler was awesome.
Hospital perference- Carolinas Medical Center/ Levine Childrens Hospital
~ Caring Hands~
Aquatic Therapy - Sticht Center/ Part of Wake Forest University Medical Center - All of the Rec. Therapist have been great with Riley.
Almost forgot- AFO's
Winston-Salem, NC~ Level Four / Jim Butts
We have been at one point or another to all of the AFO "makers" in town and for kids they are by far the best. The color and pattern choices are much better than anyone else- here they also order and bill your insurance for 6 pair of AFO sox and a paid of shoes.
If you want Cascade AFO's you have to go to -Advanced Orthotics- All the guys there are nice too. But you don't want the AFO's they make on site.
Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
Last edited by Busymommie; 09-21-2006 at 09:18 AM.