A quick overview of what's been going on first: Becca - since June - has had more and more complex partial seizures despite keppra increases. Luckily, no simple partials which often turn status for her - but still - lots of sezures - enough so to have an inpact on her quality of life that's for sure.

We maxed out on keppra during our move to the DC area. Saw new neuro at Children's National Medical Center- who we like - and started titrating up on lamictal with plans to wean off keppra once that's done. Many of you know that this is a LONG prcess though. We are only on 5mg in AM and 10mg PM of lamictal and still 750mg AM and 750mg PM keppra.

Fast forward to Wed. night: Becca had a sleep deprived eeg scheduled for Thurs. at 0830 in DC at CNMC. Only 3-4 hours of sleep and no food for 8 hours prior allowed. She had 2 seizures late wed. night and four thurs. morning (luckily one during the EEG!). From late Wed. night to Sat. afternoon - despite gettng PLENTY of sleep and food since EEG and two doses of ativan - she has 21 complex partials total. Some longer than others.

We were told to bring her to CNMC ER by neuro on-call only to have him not even come down to see us - talked to him on phone is all. All they did is give her more ativan even though on the phone he acted like we had already given quite a bit. . . asked if we knew CPR for respiratory side effects of dose, etc. . . I was furious. She stopped seizing after they gave her another 2mg ativan and we are home. I had ativan at home for goodness sake. Must we endure DC traffic and all the headaches of an ER experience for more of something we already had. She had wires on her for monitoring, but did not have her hooked to monitor and said they were not worried about it (she was not cooperative with them at all - ativan makes her MEAN mostly.

Anyway - has a sleep deprived EEG messed any of your kiddos up so bad like this? And if so - how long does it take to recover? I am so glad we did not go through this last time she had an EEG, and that she does not seem to need these often. Scary. Now she is a post-avtivan MEAN bear and very wobbly still this morning (her hemi side especially).

THanks for any input you have. We will hopefully see her normal neuro this week and also hear about the EEG.

Hugs,
Kathleen