A neurologist won't know anything about it. Take the films to a neurosurgeon, specifically a ped nsg.


LIZARD

Hi, thought I might update you on myself. It will be 9 weeks in about 6 hours. I dont go to school, homebound, and Im not allowed to do much of anything at all. My head still hurts and my ears hurt too. I went to an Ears, Nose, Throat doctor and they said the ear pain was cause I grind my teeth in my sleep, go figure. But they told me to sleep in a mouth guard which makes me sleep worse than I didnt before, hence the writing this at 2 20 in the morning. Im glad to hear some of you are doing better. Thanks for the advice about the sleeping meds, I need them badly. My neurologist gave me something for nausea, but I was wondering if any of you/your children were on something that you would say worked. I have a really weak stomach and what they gave me makes me sick. Thanks for the advice, hope youre doing alot better.

I am sorry about your sleep issues. I know someone else with grinding problem and the mouth guard does help them alot. It may just take getting used to. I bet that may be why your healing is taking a little longer. Everyone is a little different and has some variation in symptoms. 9 weeks is still not that long from what I have been hearing. As hard as this sounds, being patient and doing whatever it takes to rest seem to be the consistent advice. I would try something else for sleep. Go back to neurologist or get second opinion, if they do not deal with PCS stuff frequently. You need sleep and low anxiety. Easier said than done, I know. You are not alone and hang in there. Do not let anyone make you feel you are not doing your best. The fact that you are 17 and being as resourceful as you are, is very admirable and I respect your motivation to get better. It will happen soon I bet. Stay strong

Nancy

I'm doing very well really. Its been a real uphill battle for many months
for me. But now I'm on the mend and having a good recovery under the
belt. It just goes to show that it takes time. It is one of those things
that takes lots of time. I am one that took 6 months to do recovery
and to say that it will not be a full recovery is for sure, it will always be
some issues with my neck, but I have a tens machine that finally my insurance has bought all but 50 dollars of so that will be my cost. So I can say that life is good.

And I have known for a while now that it was going to be a thing that headaches, neck pain and just life was going to still sometimes get in my
way.

So at least I"m having a good period though. I got through the month I wanted to, so that I could say that I definately would make it, I just realized
that this week is it.

Donna

Donna,
I bet you are going to recover more than you think, your upbeat and positive attitude is going to slowly, as brain healing seems to go at a slow pace, get you better. Your experience and coaching of others is appreciated. Good luck!

Oh I don't plan to ever be done. I just know that life brings more
bumps on my road. SO even as my life gets back to normal, more
things get added.

Thanks though. I am one that staying upbeat, helps.

Donna

Nancy F.
Speech pathologist isn't what is sounds like in this case. She's helping my daughter with new ways to learn/remember things. Basic memory tricks and more mundane stuff like relevant note-taking in class. My daughter too was only allowed limited classes after weeks of no school. Neurologist actually at one time said the best thing would be lights off laying down in her room with regular meals and the Flintstones on TV.

BTW-Trazadone is a wonderful "sleepy-time" medicine that you should ask your doctor about. Sleep is of upmost importance right now.

The getting better, then worse, is a sign that he's trying to do too much too fast. Common in athletes. Slow him down & back him up in the recovery process when that happens. That's another place where the Trazadone comes in. It's an anti-depressant, but prescribed in very small doses. Sort of fills in the cracks in the mind that says he should be "doing" something.

For the sinus stuff, get a good ENT spcialist. They may do a CTscan in addition to the MRI. The sinus thing was a part of our puzzle too. And keep this in mind: you are dealing with specialists. They tend to look within their specialty to find the answers. Sometimes the answers are outside their specialty. If your boy says sinus, nose, teeth, anything else other than head, listen to him and MAKE THE DOCTORS LISTEN. And finally...a VAST majority of the time, the symptoms go away. It takes time and rest.

Everyone who is in school or has one in school with PCS/TBI...
we have a "405" meeting with school on Monday. Doctors, therapists, school officials, teachers. Their feet are being held to the fire with regard to schooling. They MUST provide an atmosphere condusive to learning for the brain-injured. It's a federal law.

For the sleep challenged...last time I'll promote this drug (I have not been a fan of pharmaceuticals)...TRAZADONE...please just ask your doctor, and if he/she won't prescribe it, find a doctor who will. It has been nothing short of miraculous for my daughter. Also, for the sinus issue that sometimes comes along with a frontal injury (again, I'm normally anti-...but this ain't normal!) prednislone (sp?) has worked wonders for us.

Finally, almost thru the second full week of no headaches after daily, horrible ones since injury in the fall. Don't do too much to quick, rest (do what it takes to get it) and your injury will heal! NEVER give up!

You are talking about a 504 which you are correct is a federal law.

Good luck with this. Make sure you get everything you want in
writing, and if things aren't being done as they are written recovene
the conference. BEcause its against the law not to follow the
504.

Donna

I am slowing realizing that this third term in school is not going to be a reality. Any kind of schoolwork now for my 16 year old 7+ weeks from concussion would not really be to his benefit. He is not liking special attention on him and even took an in class essay exam the other day because he did not want to be treated different despite me telling him and the teacher that this would not be to his best interest. We just had our sports medicine/neurologist appt. yesterday. He feels son should be much better in 3 to 4 weeks and that we should keep doing what we are doing, not rest anymore and not do anymore. He does not want us to get dependent on sleep aids but Melatonin is O.K. Time will tell and I hope we are doing the right thing. I am trying to listen to all advise and do what makes sense for us.
Nancy