The neurologist that we are putting our faith and trust in gave me a great line today. He said the brain is like an jet airplane's black box. WOW! Imagine trying to decifer what happened in a jet crash with only the info provided by the black box.


First hello and thanks to all for recent replies. Lara & Lizard...we brought up the Arnold-Chiari Malformation. So far both neurologists say that's not what she's suffering from, but I'm going to continue my research as both of these doctors have been wrong before.


TinyTalker and Nancy F, wow, sorry about what sounds to be freak accidents. I'm learning there is no fairness in brain injury. Suggest to your parents and your doctor that you NEED HELP sleeping! 3 weeks into Trazadone has helped my daughter immensely. And get your doctors involved with school. EVERYONE at the school needs to know your recovery is the MOST important thing. No, school, one class, half days. Whatever it takes.The school has a LEGAL obligation to provide you with an environment specific to your injury. Good luck. And I promise you, it DOES get better. It just takes time and REST. Lots of rest. Oh yeah, find a speech pathologist and a neuropsychologist. They'll really help with balance and cognitive issues.


Update on our situation. My daughter is finally sleeping thru the night after 5 months. Headaches are small and short. Yesterday and today, NO HEADACHE! She's visiting the ear nose & throat doc on Monday. New thought is that, when she got her concussion, the blow to the face caused sinus damage (she broke her nose in the injury too) and that may have in tern caused damage that would cause cranial fluid to leak. They say that may have lead to the horrible flu-like symptoms.

Hi spudbro,
Well that is some good news about having no headache yesterday and today. I hope that continues.

Really pleased you're going to the ENT next week. What you wrote about her broken nose and sinus damage all makes such sense. I hope all goes well on Monday and that there are some answers to help your daughter's recovery.

Hi, I'm Donna and I'm a lot older than all your kids. But I'd like to give
you all some hope. I don't play any sports, but I'm the mom of three
special needs kids, and I Advocate for families of special needs kids.

Last August while I was at a conference for families learning more ways
to help parents and to train with my co-workers. I fell and suffered a
concussion and a post concussion syndrome.

Now I had or have neck pain, and headaches. But I've been on topamax
for the headaches because I suffer from migraines for 3 years. And I also
have tramadol, for pain, because I've dislocated both my elbows. One
of which has metal radial arm, and my primary and surgeon want me to
use this instead of tylenol regularly. So headaches are controlled usually
by these meds.

The neck pain, was bad. So my primary suggested after about 4 weeks
of bed and quiet rest, that I start physical therapy. And that is what
I did. And I was surprised how much that helped. But it helped both
the head and the neck, also the shoulder problems that the neck created.

But they returned after a few hours, so I was frequently there. I started
in September, and was released in Late October, to start again in November
in worse pain.

I was started again then in November, and was released just two or three
weeks ago the first week of March with my wishes this time. And am making it with lots less pain.

The biggest differences are:

1. I have a tens machine at home. Its a small version of the electrodes she
used there.
2. I had a traction used on my neck. Now this is important for one
reason. FOr those of you talking about excrusieating pain.

*** IT not only realeased the pain in my neck finally on both sides.

I couldn't move my left side till 2 weeks before I was done with therapy.

But it was known to relieve headaches too.
Which was a surprise. But when I said something about that to my therapist
she said, that its being used for migraines, tension headaches and things
like this.

So you might check into physical therapy.

It honestly was the miracle for me. But I'm almost 49 (10 days) it took
almost 6 months.

Donna

A neurologist won't know anything about it. Take the films to a neurosurgeon, specifically a ped nsg.


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