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Old 02-12-2012, 12:35 PM #1
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Hello rocker Mama

Hello and I am glad your found Neuro Talk. 6 year olds don't make things like that up. Even a very imaginative child could not fake all that, so don't let the doctos brush you off. I thought of seizure related things right away. My then three year old exhibited some very strange behavior, she had some Minimal brain disfunction was what the doctors came up with. It was seizure related. she stood up in her stroller and tried to scream and nothing came out. It was like she was frozen in time. She took phenobarbitol and grew out of these symptoms after a few years. Please do keep seeing a neruo. I took Shannon to Barns Childrens hospital in St. Louis. I saw Dr, Virginia Weldon who now teaches there. Keep asking questions and seeking resolution. My daughter turned out OK in that dept. She was in special education most of her life. She did get two years of college, married with a son now. all can be OK, just don't give up when you know something is wrong. Do that journal also, and keep track of all that happens. I do wish you all the best, and I hope this turns out good for your daughter. ginnie
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GladysD (05-28-2013)
Old 02-17-2012, 08:31 PM #2
RockerMama RockerMama is offline
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Quote:
Originally Posted by ginnie View Post
Hello and I am glad your found Neuro Talk. 6 year olds don't make things like that up. Even a very imaginative child could not fake all that, so don't let the doctos brush you off. I thought of seizure related things right away. My then three year old exhibited some very strange behavior, she had some Minimal brain disfunction was what the doctors came up with. It was seizure related. she stood up in her stroller and tried to scream and nothing came out. It was like she was frozen in time. She took phenobarbitol and grew out of these symptoms after a few years. Please do keep seeing a neruo. I took Shannon to Barns Childrens hospital in St. Louis. I saw Dr, Virginia Weldon who now teaches there. Keep asking questions and seeking resolution. My daughter turned out OK in that dept. She was in special education most of her life. She did get two years of college, married with a son now. all can be OK, just don't give up when you know something is wrong. Do that journal also, and keep track of all that happens. I do wish you all the best, and I hope this turns out good for your daughter. ginnie
Thank you so much for the replies. Sorry I am slow to update.

We talked to the neurologist, and she said that it was in my daughter lying, and she needed to see a therapist since it was obviously behavioral. WRONG! She sooooo isn't a liar.

We have an appt with a new neurologist next Friday.
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GladysD (05-28-2013)
Old 02-18-2012, 03:27 PM #3
ginnie ginnie is offline
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Default hi rocket mama

I am glad you are going to a differnerent doctor. I do think kids can lie, don't get me wrong, but not about all that stuff. I don't see how she could dream it up by herself, she is too young for that. I hope this new neuro can look at her more effectively. Seizures do strange things. At this time my daughter did this we were at disney, and a large puppet was in front of her. It paralized her into some kind of grimace were she didn't snap out of it, froze into place so to speak. they did say it may have been triggered with the puppet, but that it was some kind of seizure. She was born with MBD and trembled at birth, and did the same thing as a three month old, kinda froze in her chair while she was next to me on the counter top. I was doing dishes. It did wind up that I went to that hospital I mentioned in St. Louis. She was in and out of that hospital for the first three years of her life. They never did put a finger on what was wrong with her. She did grow out of them, and was taken off phenobarbitol gradully. Her youth was in special education, but she did quite well all in all. I do wish you all the best with your child. Hope the appt. goes OK. ginnie
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Old 02-23-2012, 08:54 AM #4
Dmom3005 Dmom3005 is offline
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Rocker Mama

I'm so glad your going for a second opinion. Just hang in there. It is a good thing to do. It might be necessary to keep looking till you find one that
will work with you

What she is telling you isn't something a 6 year old can make up totally.
Some of it she might could have, but I tend to say no.

So just hang in there and keep us posted.

Donna
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