Rockermama, this perfectly describes my childhood experience. I know EXACTLY what your daughter is suffering from. I have a rare autoimmune disorder which I didn't have diagnosed for over 40 years!!!! The symptoms you describe are what I suffer from and there is not quick fix for this situation. Most regular docs won't understand what is wrong with your child. She may be having these episodes as part of a wider autoimmune syndrome. But it has been suggested to me that I suffer from a complex migraine associated with a wider syndrome. If you google complex migraine you will see what I mean. I am treated by a specialist in vasculitis in Cambridge UK. I wonder about any other symptoms your daughter may have. M