my grandson is one years old. when he was born he could not cry or barely make a sound.i noticed that something wasnt right after many test he was diagnosed with avm. he has several on his brain stem, spinal cord and liver .before he was a month old he had surgery to glue off what the doctors could get to. he is a special little fellow he has to indure so much we just got the news that the doctos want to do another surgery,the first surgery was done at chkd in virginia this one is gonna be at a hospital in florida by a new doctor i want a second opinion they have scheduled the mri and surgery how can they schedule a surgery without looking at the mri.:

Your poor baby. I have a grandson who's just turned one so I understand how small and fragile your little man must be.

I'm sorry that I can't offer any suggestions to help you but I do want to welcome you to NeuroTalk and let you know that I'm thinking about you.

I hope some-one else will be along soon to give you the answers that you need.