Children's Health For health and neurological concerns in children.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-17-2013, 12:41 PM #1
cali4nia cali4nia is offline
Junior Member
 
Join Date: Mar 2013
Location: Kelowna, BC, Canada
Posts: 41
10 yr Member
cali4nia cali4nia is offline
Junior Member
 
Join Date: Mar 2013
Location: Kelowna, BC, Canada
Posts: 41
10 yr Member
Default Diagnosed with Epilepsy @ 5 weeks old

Our son was diagnosed at 5 weeks of age. He was having many different types of seizures but some would stop him from breathing, they are/were very scary! I HATE them. All test are normal so far, (metabolic, structural etc) we have no explanation. He is now 9 months old and his seizures are now controlled by Keppra 2.5 ml x2 a day, he was started on phenobarbital and clobazam (which are horrible!!!!!). We only see seizures now if he becomes sick from flu or something like that.

We did a video EEG a month ago and his neurologist said she didn't see any seizure activity but that frequently throughout the day his brain waves slow down so much it's as if he's in a deep sleep. We got no explanation of why this is happening or what it means for him. Does anyone know of this? I would really like some info on what this could mean. Any thoughts would be great!

***Also, if there are any parents out there with questions, please feel free to ask me ANYTHING! This was a very scary journey for us and months in hospital. I am happy to help anyone going through this as I know how scary and difficult it is and how it affects your entire family. Please, don't hesitate!

if you want to keep it private..pm me or email me @ calidawnia@gmail.com

Sincerely, Callie
cali4nia is offline   Reply With QuoteReply With Quote

advertisement
Old 04-17-2013, 06:05 PM #2
cali4nia cali4nia is offline
Junior Member
 
Join Date: Mar 2013
Location: Kelowna, BC, Canada
Posts: 41
10 yr Member
cali4nia cali4nia is offline
Junior Member
 
Join Date: Mar 2013
Location: Kelowna, BC, Canada
Posts: 41
10 yr Member
Default I should also say...

that his seizures are coming from the left temporal lobe. But no other info has been given to us as far as the cause of them.
cali4nia is offline   Reply With QuoteReply With Quote
Reply

Tags
baby, eeg, infant, neonatal epilepsy, seizures


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
6 weeks with PCS, what can I do? todayistomorrow Traumatic Brain Injury and Post Concussion Syndrome 12 12-14-2011 05:43 PM
11 yr old diagnosed at 7 weeks - What Doctor to go to? crunchberry Reflex Sympathetic Dystrophy (RSD and CRPS) 13 11-13-2009 01:20 PM
four weeks out mvd shelly Trigeminal Neuralgia 0 03-29-2007 05:21 PM
OMG...these last two weeks have been... LIZARD Weight Loss & Healthy Living 5 01-11-2007 11:11 PM


All times are GMT -5. The time now is 06:04 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.