thought i'd bring some spring to the room.

Well if no one check's in then it doesn't start. So I'll start and hope
someone will add. THis room needs some life.

Derrick is having a very rough spring so the beautiful flowers are
much appreciated curious. Derrick's seizures seem to be back in
a vengance. We are headed into the VEEG at Riley on May 17th
& 18th to get out hopefully on the morning of the 19th. Derrick
needs a very much change in his showing in this VEEG but he
has never been luck enough to show a seizure or even a small
sign of one in one. But the activity is always there. We have
to signs but not the shows.

He is on three medicines, and they are all maxed at very high
dosages, he has the want and gumption to do anything in the
world. And he tries very hard to go to the ends to get there.

HE is very successful this year again in school. Thanks to NCLB he
wont get a high school diploma, but a certificate of achievement and
unless I become the first to fight this in the courts which I really don't
have the money or know how to do. It wont change, he should get
one just like the rest of the kids should, but someone decided that kids
don't count. So he wont, but he will go far, he is a wonderful young
man.

He has a wonderful Bullying video about positive reactions to bullies.

Donna

Kevin's cognitive level is dropping fast... we are loosing him. I was really hoping it was the Lamictal.... outpatient notes from epi states it just may be the syndrome.

His short term memory is shot, can't remember if he took his meds less than 5 minutes ago..... sometimes completely forgets to take them when I told him to... goes into kitchen gets a cup puts water in it... takes a drink and leaves kitchen.... pills still on the counter waiting for him.

School nurse is trying to help us, Epi nurse is trying to help us... just switched from zarontin to celontin back to zarontin... jerks are back, impulsiveness is at an all time peak... walks into traffic without looking, walks backwards on front porch and falls down stair???

Where did my wonderful child Kevin go?

Epilepsy sucks!

I have finally been allowed to log in for the first time in over a year. I have sent email upon email to NT Communities, and never heard anything. Glad I am back!!

My dd is back on meds after 18 months off and a crummy, very busy EEG. We were treating her for migraines as we had been told she had outgrown her epilepsy, and it was sz all along.

Glad to be able to catch up with everyone!!

hi 12alex

You said you have had trouble logging in for over a year? I see you joined here in October 2006 and NeuroTalk has only been here since August 2006 so perhaps you have us confused with another forum?

If not, could you tell me who the emails you sent were addressed to so I can try to check on this for you

thanks

Chemar, I sent you a PM.