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Old 02-02-2015, 04:51 PM #11
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I wanted to add one more thing to what I posted. Some years ago, in my former neighborhood there were 3 brothers. The youngest spoke like he had marbles in his mouth. He was around 8. Apraxia for sure (now that I can put a name to it). The only people who understood him was his family. No one knew what the heck he was saying.

Well....fast forward 20 or so years and I met up with him one day. He spoke just fine. I didn't bring anything up but what the h? How can you go from speaking like you have marbles in your mouth to speaking perfectly fine. I have no idea if this child had speech therapy because this happened over 30 years ago but wow, such an amazing difference.

Right now as I view yet another video, I'm watching him (whenever he tries to speak) and it's like he has marbles in his mouth. What kind of therapy do these speech language pathologist do to get them to finally speak coherently? Thanks much
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Old 02-03-2015, 04:27 PM #12
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Melody,

I would suggest you have them find a SLP that can test for or use some
of the kinds of therapy that is used for Apraxia. Its very possible
this is part of his problem.

Help them look for someone that does "Prompt". This is one of the programs,
I will have to look for the other forms.

Donna
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Old 02-03-2015, 04:29 PM #13
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You need to look up online the word Apraxia. There is a site that has lots
of information on its page. Its called Apraxia Kids. And right now they
are doing their once a year IPAD give aways.

Donna
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Old 02-03-2015, 04:53 PM #14
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Yes, it could be apraxia.

Can the child form his lips into a circle to, say, blow out a birthday candle?

With the help of SLP, people with apraxia can learn to speak. In the interim, is your friend being encouraged to teach him to sign? If he turns out to be just a "late talker," there's no harm in learning this skill.

Last edited by Hockey; 02-03-2015 at 06:39 PM.
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Old 02-03-2015, 11:52 PM #15
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Quote:
Originally Posted by Hockey View Post
Yes, it could be apraxia.

Can the child form his lips into a circle to, say, blow out a birthday candle?

With the help of SLP, people with apraxia can learn to speak. In the interim, is your friend being encouraged to teach him to sign? If he turns out to be just a "late talker," there's no harm in learning this skill.
Hi. If I come out with any of this info, they will know that I am sticking my nose in. This has to be done very carefully.

Some family members say "What is all the fuss about, he'll speak when he wants to speak". Since the baby is already getting early intervention and speech therapy as well as other kinds of therapy for low muscle tone, right now it's not appropriate that I stick my nose in and talk about PROMPT. I am definitely going to look into this but keep my opinions to myself unless I am asked. As he gets older, however, people will start to talk. Especially if the little guy is NOT talking like his peers. That much will become fairly obvious.

The mother of this little guy is very hands on and does all googling and stuff. She KNOWS. The other family members don't get it. It must be very hard for family members to even acknowledge that there might be something wrong.

So all I do is get excited every time he says anything (which by the way, is practically nil). Kids his age SPEAK. I have had conversations with children his age. So that's not happening here. And then there is a new baby coming.

Must be extremely frustrating.

I'm definitely going to educate myself on this PROMPT therapy.

And I thank you heartily for taking the time to respond. I'll update if anything happens.

Mel
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Old 02-04-2015, 12:48 AM #16
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Quote:
Originally Posted by Hockey View Post
Yes, it could be apraxia.

Can the child form his lips into a circle to, say, blow out a birthday candle?

With the help of SLP, people with apraxia can learn to speak. In the interim, is your friend being encouraged to teach him to sign? If he turns out to be just a "late talker," there's no harm in learning this skill.
Hi. I just spent about an hour watching youtube videos on kids with Apraxia. He sounds just like them. There was a 2 1/2 year old girl with a picture book and she was pointing and I swear she was acting EXACTLY like my friend's grandson. I also watched a youtube video about a 5 year old boy who has been videoed for the past 3 years. At 3 he couldn't pronounce anything. I watched as the therapist used a tool to measure where his tongue was and how he bites down and where he positions his tongue when he says things. And he blew bubbles. It was fascinating. I never new about Apraxia and it being a motor speech disorder.

These children need therapy ongoing don't they?

This is a tricky situation here. Only if the topic comes up and there's an open conversation and someone asks my opinion, I will then take out my tablet and show them these videos. I know that the mom of the baby has already done this. She is extremely hands on in matters regarding this child. But the other members of the family are older and not computer literate. I believe they are afraid he's autistic. I don't see this going on.

This is going to be a delicate situation.

I will continue to learn and gently head them in the right direction (they might be doing this already). I did ask once "what goes on during the speech therapy?) All the grandma knew was 'the mother doesn't know, she's not there when he gets therapy". which is another way of telling me to butt out. That's why I'm not butting in.

Eventually everyone will see that he's not speaking like other kids.

At least he is getting some therapy. We shall see what transpires.

Thanks to all of you.

Mel
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Old 02-04-2015, 05:44 PM #17
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Melody

Just keep being there for especially the mom and the child. Its one of
the hardest things to watch. That your little one isn't or can't talk.

Help them rejoice every word he says. Thats what we do for my
Grandson. And at christmas this year is the first time anyone really
said. He is talking so much better.

Its a long term thing, and it can get better. Just takes time.

Donna
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Old 02-04-2015, 06:52 PM #18
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Quote:
Originally Posted by Dmom3005 View Post
Melody

Just keep being there for especially the mom and the child. Its one of
the hardest things to watch. That your little one isn't or can't talk.

Help them rejoice every word he says. Thats what we do for my
Grandson. And at christmas this year is the first time anyone really
said. He is talking so much better.

Its a long term thing, and it can get better. Just takes time.

Donna
You should have seen the first time he said the word ball. You think we won the lottery. We clap and cheer and he goes nuts smiling. This is all done via Skype because we don't live near the mom or the kid but thank god for Skype. It lets you see little ones growing up and doing stuff. We didn't have any of these gadgets way back in the day. So I shall continue to encourage and listen and hopefully one day I shall have good news to share with all of you.

Thanks much

Melody
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Old 02-08-2015, 05:32 AM #19
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I talked about this with my partner. She is a child psychologist with a special interest in working with children who present with developmental delays.

Her comment was that getting the child assessed by a similar health professional would be a good idea.
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Old 06-25-2015, 08:58 PM #20
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Hi Melody, one of my nephews had difficulty learning how to talk on his own. He was about the same age as your friend’s son, about 2 and 1/2, when his parents sent him to a speech therapy clinic at a local university. I drove him there myself a couple of times and he was treated by therapy students under the supervision of a qualified therapist.

What I saw the students do was to play games with him with a ball, and when he got involved and expected the ball to be rolled back to him, the student would hold onto the ball while encouraging him to verbalize before he received it back. They worked very diligently on showing him how to make different sounds with his mouth.

This was many years ago and I don’t know if such simple techniques are still used, but in my nephew’s case they worked. He began using simple words after about three weeks of treatment, and he became quite a chatty little guy after about ten weeks. He just needed to be taught how to talk.
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