I spoke with Leigh, Dr. P's regular nurse.

I have no idea what the fruit loop that called me yesterday was talking about... Leigh said she must have been reading something wrong.

Dr. Parrott said that if she has any more that last more than 5 minutes to call the office. If she has then one right after the other to call. Right now he doesn't want to make any more med changes until she has levels checked. Leigh said I could bring here there if I was really uncomfortable with the way things were. By this point I am in tears- I just can't understand why it is happening. We are sticking with the 275mg a day of Topamax and not reducing it at all until they get her levels back. Leigh suggested that the VNS battery may be the issue too, but it is the least likely since it was just checked.

Sunday was the soonest the home health agency could make it out on such short notice- 4:30 pm today But they will be at the house first thing Sunday morning.

I will feel better when we know what is going on, and what is causing it.