Hi, I missed everybody, I checked the old forum everyday, and I thought that is it, it is never coming back!

Jake had surgery with Dr. Nuzzo on 8/15, (jen, Ava's mom, if u want specifics about the surgery, please email me privately, I can give u all the details), he had bilateral alcohol block and PERC on the hamstrings. His hamstrings and abductors are so much looser than before. The best part is there was virtually no recovery time, he was crawling on the floor like he did before by 6pm, and he had surgery at 9AM the same day, and was home by 3:30pm.

Right now, we are doing 3 weeks of intensive suit therapy.

As for me, I applied for a part time job, a really easy job, but I guess I am not getting the job since it has been a week and half ago that i went for the interview, and no one has called me yet. I told them about Jake, and that I can only work a set number of hours a day when he is in school. I was honest about my situation, but I am not really surprised that I didn't hear back from them. Oh well, I am thinking the next time I shouldn't say anything. But then, how do I explain why I haven't worked in the past 3 years?

anyways, happy to "see" all of you again!

Jenna and Jake.

Just checking in! I have a big trial starting Sept. 6, so I've been busy - but I sure have missed everyone! Jenelle is doing really well - you can catch up with her at our blog.

http://www.jenellesjourney.blogspot.com

Hope all is well!

Kelly

hi everyone
 

tomorrow is my birthday and this special occasion is maikng me happy.
however during my physical exam the dr was asking how long has your uterus been like this? i replied i am not sure. Although I had noticed that it was hard like a rubber ball. the very next day i was sent for tests and the ultra sound revealed a 21 cm/ almost 10inches cyst on the right side of my uterus.

Surgery has been scheduled for sept 6th..hopefully i do not have cancer..
they are trying to assure that it is benign but won't know until they cut me open.

Robyn

Hi everyone-i had to register again too-i'm going to read everyone's updates and then submit ours--

ok-i am caught up and am jealous of all of you that can travel with your kiddos. Sarah is only good for day trips and even those are tiring for her. I have decided the only way I will ever be able to travel will be to rent an RV and drive around the country to see the sights. Anyway, that's fabulous to enjoy the summer that way.
Sarah is doing fine--her permanent teeth are large and coming in every which way. She got her first period a few weeks ago. Theraputic riding is going really well once a week. She just turned 10. She is having further RETT testing this month in Boston. Oh, she is getting contacts next month and a new brace to sleep in for her left leg to keep that hamstring straight at night.
Tracy-what is the harness that Megs is hanging from? Did you make it?

Hey guys!

Wow, August already! Time flies.

You will have remembered that I went to a boccia competition in July, I didn't update you so here's the basic outline of the weekend:

I won my first game 9-4. I lost my second game 7-1, against the really hot cocky #9 guy in the world, it was an improvement. Won against my rival 5-0 YAYYYY, that was the best feeling ever. Lost my last game 2-4. So I won two, lost two, an improvement on the nationals. I didn't get through to the quarter finals, but I really enjoyed the weekend.

I'm going to the nationals in October with the national coach and his wife. No parents or siblings for four whole days!! That should be fun.

Other than that, I don't have much news. It is winter here and I have lots of assignments to do! School is boring as always, and I can't wait for my next break.

Glad to 'see' some of you again!

Hi (((((((ALL))))))))))))

Good to be back. I know I wasn't very active before it crashed but I had been reading a lot of your posts.
Not really much going on here not really sure where the time has gone wish I could have got out and done more I went for a driving assessment last month they said not right now try again in 6 months I am not sure what will change as CP doesn't change but I will give it another go.
Back to school on the 5th will be my last year :( :)
I will be 18 in 3 weeks planning a party so looking forward to that.
I think that's all really

ETA: Well done Erin! Was it boccia? We used to play at school but haven't for a while we quite like new age Kurling have you played that?

Jennifer, Strange that you would be told not to come here. That is concerning. Why not talk to your buds until the original is available.

Onward to Spencer update...

The Life Care Planners come for a meeting with the Therapists, Docs, Teachers, and Parents August 31st and September 1st to start putting together Spencer's Trust.

Spencer started Kindergarten and is doing really well. He likes his small class.

He can READ "horse", "car", "cat", and "dog". Call me shocked at that! I am so excited that MY child is learning to read at 5 yo.

Trevor loves 4th grade and is doing well.

Kevin has a hernia and will have surgery September 8th.

I was supposed to have surgery to repair my deal September 6th but Kevin's hernia trumps mine. So, mine is postponed until January 17th. (I hope)

What else? I bought a new bike for Trevor, bike for myself, and trailer for Spencer. I use the bike to run errands that are within 5 miles from home. I am hoping this will help me down size, save money on gas, and be nice to the environment. The grocery store is 2 miles from home and the terrain is fairly flat. I take the trailer to the store and use it to carry the groceries home. It is actaully not too hard. (I even haul 40 - 80 pounds of water.)

I think that is it.

Glad to see everyone and glad to see BT back on line even if it is the lite version.

Hi everybody I am back and I miss the CP forum I have been posting in there for years.
Great to see Brain Talk back so many must have missed it.
Val (UK)