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Old 08-24-2006, 10:04 PM #1
mumtosarahlou mumtosarahlou is offline
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Hi everyone-i had to register again too-i'm going to read everyone's updates and then submit ours--
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Old 08-24-2006, 10:48 PM #2
mumtosarahlou mumtosarahlou is offline
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ok-i am caught up and am jealous of all of you that can travel with your kiddos. Sarah is only good for day trips and even those are tiring for her. I have decided the only way I will ever be able to travel will be to rent an RV and drive around the country to see the sights. Anyway, that's fabulous to enjoy the summer that way.
Sarah is doing fine--her permanent teeth are large and coming in every which way. She got her first period a few weeks ago. Theraputic riding is going really well once a week. She just turned 10. She is having further RETT testing this month in Boston. Oh, she is getting contacts next month and a new brace to sleep in for her left leg to keep that hamstring straight at night.
Tracy-what is the harness that Megs is hanging from? Did you make it?
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Old 08-24-2006, 03:42 PM #3
jenna jenna is offline
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Hi, I missed everybody, I checked the old forum everyday, and I thought that is it, it is never coming back!

Jake had surgery with Dr. Nuzzo on 8/15, (jen, Ava's mom, if u want specifics about the surgery, please email me privately, I can give u all the details), he had bilateral alcohol block and PERC on the hamstrings. His hamstrings and abductors are so much looser than before. The best part is there was virtually no recovery time, he was crawling on the floor like he did before by 6pm, and he had surgery at 9AM the same day, and was home by 3:30pm.

Right now, we are doing 3 weeks of intensive suit therapy.

As for me, I applied for a part time job, a really easy job, but I guess I am not getting the job since it has been a week and half ago that i went for the interview, and no one has called me yet. I told them about Jake, and that I can only work a set number of hours a day when he is in school. I was honest about my situation, but I am not really surprised that I didn't hear back from them. Oh well, I am thinking the next time I shouldn't say anything. But then, how do I explain why I haven't worked in the past 3 years?

anyways, happy to "see" all of you again!

Jenna and Jake.
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Old 08-24-2006, 03:48 PM #4
Kellybethinca Kellybethinca is offline
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Just checking in! I have a big trial starting Sept. 6, so I've been busy - but I sure have missed everyone! Jenelle is doing really well - you can catch up with her at our blog.

http://www.jenellesjourney.blogspot.com

Hope all is well!

Kelly
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Old 08-24-2006, 05:54 PM #5
angelcarliesmom angelcarliesmom is offline
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Default hi everyone

tomorrow is my birthday and this special occasion is maikng me happy.
however during my physical exam the dr was asking how long has your uterus been like this? i replied i am not sure. Although I had noticed that it was hard like a rubber ball. the very next day i was sent for tests and the ultra sound revealed a 21 cm/ almost 10inches cyst on the right side of my uterus.

Surgery has been scheduled for sept 6th..hopefully i do not have cancer..
they are trying to assure that it is benign but won't know until they cut me open.

Robyn
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Old 08-24-2006, 06:26 PM #6
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Hi everyone,

Been a wild couple of weeks,on this end..Boss passed away on 07/16..Mom moved in with Nana the same week..They are tolerating each other,but..kid brother is on murder patrol..lol.

{{{HUGS}}}...to all you guys.. Love,Kristin
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Old 08-26-2006, 09:53 AM #7
langansmom langansmom is offline
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Default Glad to See you Guys!!

Thanks, Kori. I was so excited to get your message today about this new Child Neuro. Man, I have missed you guys!!

Langan is doing well. She has had a rough time with seizures recently but, knock on wood, has had a few great days in a row now. She was the best ever at school yesterday and her vision therapist actually kept calling me from his session to tell me how stunned he was by her progress. She was walking independently for him (13 steps!! A new record!!) and doing very well visually and interacting. We'll see how long it lasts, but are trying to enjoy the good times.

We spent a week in Cape Cod earlier this month. The traveling and change in routine were hard on Langan but she sure did love the beach and the pools! She loved to stand and jump in the tide as it came up. It was too cute.

School started again last week. Langan was there all summer but the regular school year began 8/14. She is in her same class with her same teachers and aide, as we requested. Two other classmates stayed behind because of late birthdays so she has some familiar faces. And the other kids seem really sweet. It is funny to see Langan as one of the bigger kids in class- I am so used to her being tiny compared to her friends.

Just finished a huge trial this week and am wiped out. Jon was a saint all week- taking great care of Langan and bringing her to school, therapy, etc. He definitely earned the Best Husband and Daddy award!

Langan turned 4 July 19th- same day the Champ turned 18. We had a wonderful pool party to celebrate with her classmates.

That's all I can think of now. I am so glad to be reconnected with you guys!!

Wendy
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Old 08-26-2006, 11:10 AM #8
Randiscan Randiscan is offline
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Just dropping by to say Hello to everyone. Missed reading all the posts and the updates on everyone. Kody is doing well and is going back to school on Monday at School for the Blind. Kody's Aunt Nicki (my other daughter) is due to have a baby boy in about 3 weeks. And my son's wife is due Nov. 22.(don't know the sex) Lots going on in my life! Here is Kody's website in case you want to take a peak.
www.caringbridge.org/pa/kodyc

So glad to see everyone!
Randi (Kody's grandma)
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