Thanks, Kori. I was so excited to get your message today about this new Child Neuro. Man, I have missed you guys!!

Langan is doing well. She has had a rough time with seizures recently but, knock on wood, has had a few great days in a row now. She was the best ever at school yesterday and her vision therapist actually kept calling me from his session to tell me how stunned he was by her progress. She was walking independently for him (13 steps!! A new record!!) and doing very well visually and interacting. We'll see how long it lasts, but are trying to enjoy the good times.

We spent a week in Cape Cod earlier this month. The traveling and change in routine were hard on Langan but she sure did love the beach and the pools! She loved to stand and jump in the tide as it came up. It was too cute.

School started again last week. Langan was there all summer but the regular school year began 8/14. She is in her same class with her same teachers and aide, as we requested. Two other classmates stayed behind because of late birthdays so she has some familiar faces. And the other kids seem really sweet. It is funny to see Langan as one of the bigger kids in class- I am so used to her being tiny compared to her friends.

Just finished a huge trial this week and am wiped out. Jon was a saint all week- taking great care of Langan and bringing her to school, therapy, etc. He definitely earned the Best Husband and Daddy award!

Langan turned 4 July 19th- same day the Champ turned 18. We had a wonderful pool party to celebrate with her classmates.

That's all I can think of now. I am so glad to be reconnected with you guys!!

Wendy

Just dropping by to say Hello to everyone. Missed reading all the posts and the updates on everyone. Kody is doing well and is going back to school on Monday at School for the Blind. Kody's Aunt Nicki (my other daughter) is due to have a baby boy in about 3 weeks. And my son's wife is due Nov. 22.(don't know the sex) Lots going on in my life! Here is Kody's website in case you want to take a peak.
www.caringbridge.org/pa/kodyc

So glad to see everyone!
Randi (Kody's grandma)

[QUOTE=wheeliegirl1988;
ETA: Well done Erin! Was it boccia? We used to play at school but haven't for a while we quite like new age Kurling have you played that?[/QUOTE]

Yeah wheeeliegirl it was boccia!! I heard some exciting news yesterday, I have the right classification to play internationally.

It is like Curling, never played only watched.

Im still here also. Been one BUSY BUSY summer and hasn't stopped yet. My back/knee doctor started me back on P/T again for my back and knees again. Well I went to see him for my knees and told him about my back and he said they cant do surgery (because of all my other health issues) and prescribed more P/T. I do have a lot of tone problems also.

I know my lowerback is probably getting worse because now Im getting the burning shooting pain down my leg especially when Im sitting. The neuropathy has gotten worse also.

Now we also think Im having seizures and the eeg I had came back abnormal. So now Im on seizure meds. BOY did I NEED you all to ask questions about that and the meds.. I still probably do.. We still arent sure what kind Im having.

So on top of all the OTHER appts I already had, I have new appts and therapies on top of those. This month I have MAYBE 2 days (weekdays) where I dont have SOMETHING scheduled.


Adam had surgery to remove two jaw cysts. He just had the drain tube removed a few weeks ago. THEN we found out Noah has a HUGE jaw cyst in his lower jaw. Adam's were upper jaws and smaller than Noahs is. Noah had 7 biopsies done 2 weeks ago for skin cancer and 1 was positive for skin cancer and the one right below it might also be. They didnt get enough tissue to sample but it looked the same so Im saying it probably was. Im not breathing totally easy on the other 5 because I had one that said "NEGATIVE" but ended up being one of my WORST positive skin cancers.. So I will still watch his. They STILL havent treated Adam's skin cancers even tho he has had TWO POSITIVE biopsies ( one was 1 1/2 YEARS AGO).. Stanford wants to see the boys and is interested in treating them. I might just start taking them there if the doctors they see now WONT start doing something. You dont mess with cancer, I dont care how slow growing it is.. AND you DONT mess with THIS mother lion and her cubs!!!

Adam Noah and I leave tomorrow for Sacramento for Ronald McDonald house because Noah has his yearly MRI for his brain cyst and Chiari on Tues and sees the oral surgeon on Wed for his HUGE jaw cyst then we come home on Thurs. Then Friday I have more P/T.

I also changed our primary doctors and the boys have an awesome new pediatrican!! I really like her. She is on top of things and gets things done. I told her about Adams behavior problems, anger and other issues and she right away requested an evaulation from a psychiatrist. She asked why one hasnt been done. Well one was done when he was 6 to be tested for Aspergers (he is 11 now). I said, no one will listen to me.

Anyway.. Sorry this is so long.
HUGS and glad to see you all again.
Gina Marie

Well I finally have time to post on here. I didn't realize that John Lester didn't have anything to do with this but all the same, when the old one comes up everyone will go back there. I'm just grateful we have one at all. I missed everyone! I don't know how many times something would come up and I'd think, "Well, I'll ask everyone from CN" and then I'd remember it wasn't here.

Chloe's been pretty good. Good and bad days with her myoclonics. It always seems like she starts the week off great and then has bad days Thur-Sat and then is fine again. I can't figure out the pattern and I think I am going to pay more attention because it seems like it is every week the same thing. Also, we sold our house!! We were so happy to sell our house and snag the one we fell in love with in the next town over(about 20min away but to my mom, dad, and MIL you'd think it was Siberia)so we will be moving in October. I kept Chloe out of school here in town because she had a personal aide and stuff and I felt bad only being there for a month or less and then leaving them behind. She's happy to continue to sleep in for another month. Our main reason for actually moving to where we are is we would be in a different county with a better special ed program and Chloe would have a few options out of two schools to attend that are both supposed to be great. They are both about 20-30min from our house but in the long run it is perfect whether I decide to take her or the bus, we'll see.

Other than that we are doing great. This is my absolute favorite time of year and I cannot wait for the cold weather to get here. I hate heat! Although it was made bearable by my parents boat this year so that was nice. Chloe loves the boat and that's how we spent this summer.

Glad to see everyone again!!

I'm here too

Donna