Hi and good to hear your update...Here is a informative link worth digesting.

https://www.glutenfreesociety.org/pr...ion-pain-trap/

My grandgirl who is now 19 and has been eating GLUTEN foods since she could eat, so a lot of years of gluten foods. She's been dealing with acne from about 13 yrs to now..she's taken meds, peels, laser and the acne lives on. Her mom has spent mega $$$ on these protocols...and acne living on.

So she finally gets to the gluten issue and it all seemed to make sense to her...so she went off all gluten and went thru detox etc etc...but NOW her skin is beautiful. A stomach bloating is gone.

Gluten seems to be a major culprit for many whether celiac or not...many are intolerant to gluten and eating gluten is manifesting in so many health issues. Personally, I'm off gluten products about 70% or so..For me I have not brought breads of any kind into my house for 7 yrs or so and I started out buying gluten free bread and then just decided I don't NEED breads period...I buy gluten free crackers and so control sugars. So much is gluten free now as the people are becoming more aware. Many are not but more and more are looking into this and making changes....C

It is funny that you mentioned this. Celiac Disease is something that has recently popped on our radar. I never thought of it before because I was misinformed thinking it was GI issues only. This is one of the things that will show in the genetic testing we just had done. Thanks for the info.

Well we spent Saturday night and Easter in the hospital. I took dd12 to the ER Saturday evening because she was complaining and crying with severe chest pains. This was a symptom she has never complained of so it was a bit scary. She also kept saying she felt like she was going to pass out. So, EKG was normal, chest X-Ray was normal and apparently they did basic bloodwork and all was considered normal. They gave her Morphine and that helped her pain for about hour or so. Then all pain was back. Through the night they tried Toradol with no results, Naproxen with no results. Easter morning doctor came in and basically told us they did not know what was wrong with her and that he doubted any doctor would!! He also told us there was no medicine that could help her but "oh by the way, dont give up hope"!!! What crap! So they sent her home feeling just as bad as when she went in. I again asked for them to run a lyme test and was again told no. Guess we will have to pay to get that done as well. I am just about to lose my mind! I am exhausted, I cant touch my own child because every inch of her body hurts and noone will help!!!

I sent you a PM about specifics about my kiddo and the chronic pain rehab program she attended. Happy to answer any other questions too. It changed the course for us in a positive way.

Updating for my records.

Genetic testing is in and will get results this Friday morning. I am so hopeful this will finally give us some answers.

Dd is doing pretty good. She did stay in the bed most of Saturday and Sunday from being exhausted and pain. She also started her monthly Sunday so may be a connection.

She has developed yet another new symptom. Thursday she woke up complaining of her scalp and neck itching and burning with some sort of rash. As it progressed it appeared to be hives. It has not subsided as of today 6 days. It seems to move around on her body. Sometimes she can actually feel the hives before they pop up. She also has very intense burning sensation on her scalp which seems to move around a bit.

We have not been completely successful with clean diet still trying to get remaining gluten out of diet. We are going grocery shopping Friday and plan to be 100% gluten, processed food, free by Monday. Dd is committed to it for a full month so we can see how it affects her. Still not taking any meds which is a good thing but also has no relief from mirage of symptoms other than to try and distract herself.

Will update with genetic testing results Friday. Keep fingers crossed, say prayers, wish us luck that we will find some answers.