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Old 08-06-2007, 07:24 AM #1
Carly'sMaMa Carly'sMaMa is offline
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Carly'sMaMa Carly'sMaMa is offline
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Shocked I messed up today

Today, we should be back to the schedule where our PCa takes Carly to camp. Well, I messed up. I alluded to it, but didn't really set that up with her. I realized this about 11 pm last night. There wasn't much I could do about it then.

I called the camp and they don't have any extra staff today. The PCA is not available this morning. So, Carly's going to be home. The PCA will come at 2:30 and Duane and I will have to tag team parent until then. I have to be at an appointment at 9:30. Jeremy's at a sleep over. He's got to be picked up.

I need a day hab program for Carly next year. She really needs full year services. Not just ESY, I mean full year. We don't need residential. Just full year services so that she's properly engaged in activity. Even if I were a full time mom when she's at home, she would need more. Plus, she wants to be around friends - other people. Not her parents. We are boring.
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Deborah, mom to Carly, 15, something genetic with a little autism and growth hormone thrown in; Jeremy, 13, a terriffic kid; and married to Duane for 22 years!
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Old 08-06-2007, 11:04 AM #2
Dmom3005 Dmom3005 is offline
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Dmom3005 Dmom3005 is offline
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Let me know how you work this one out. I'm working on such a thing
for Derrick too. He is waiting on a medicaid waiver and until it comes
through we don't get that kind of stuff.

So ESY doesn't cover more help than just the 4 weeks of school that
is just like summer school. So I'm working on how to get him so more
for next summer right now.

Donna
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Old 08-06-2007, 06:25 PM #3
Busymommie Busymommie is offline
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Doesn't Carly have CAP or something close to it?

For some reason I thought she had a full time worker (hab tech or other kind of life skills worker?)

Riley has been on the CAP waiting list for over a year now. We did just get some respite hours not long ago. Of course her worker is pretty much wortheless but until they find someone else I am afraid not to use the hours or Medicaid may take them away..

I hope you and Carly were able to have a decent day today...
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Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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Old 08-06-2007, 08:33 PM #4
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Tracy Sheppard Tracy Sheppard is offline
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Deb,
Hoping you can find the full time services for Miss Carly. Hoping she enjoys camp the rest of the week.......{{{Hugs}}}
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Wife to Scott for 19 yrs, mom to 3 Joshua 17, Megan 12 , with CP, non mobile, non verbal, CVI, seizure disorder (no meds, only few seizures here and there), etc....Most wonderful little angel ever put in our lives.....Jacob 4 yrs old


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