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10-04-2006, 04:00 PM | #1 | ||
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Zoe has been doing this for the past 30 minutes. I just took some footage of it. We have a call into the Neuro. She is breathing well but hard to arrise.
http://fluffypenguin.com/Videos/zoescary.MPG Does this look suspicious to you? Be honest with me. Either way. I want to hear I am being over worried. But tell me your gut feeling. |
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10-04-2006, 04:23 PM | #2 | ||
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it def looks abnormal to me gl getting ahold of hte nuero.
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10-04-2006, 04:35 PM | #3 | |||
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I only saw maybe two seconds of it?
To be quite honest, you wanted honesty, right???? Instead of posting this to your neuro buddies...you should be calling promptly to your NEURO if it's been going on for 30 minutes. dont take that the wrong way, it was just my opinion.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"... . |
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10-04-2006, 04:46 PM | #4 | ||
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I called the neuro before even filming it.
I administered diastat after shooting the footage. I could not arouse her. I could not stop the movement. I could not distract her. Within 15 minutes of the diastat, she is responding. We just spent 5 minutes saying "hi" to each other back and forth. |
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10-04-2006, 04:48 PM | #5 | ||
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I did hear back from the Neuro. He gave me the office email address for his assistant and I am to send him the footage. He will get back to us tommorow.
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10-04-2006, 04:50 PM | #6 | |||
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Diastat takes my kids sometimes hours to wear off completley, and one's 9 and one's almost 16..so it could be why she was a bit groggy and of course, if it were a seizure, post ictal. Hard to tell, was that how long the video was or did I miss something? She's sick too, isnt she? That makes them off the norm too with seizures.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"... . |
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10-04-2006, 04:54 PM | #7 | ||
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In the video was pre diastat. As soon as I stopped filming, I gave the diastat. She is sick too with pneumonia (why they are not hospitalized, i do not know). I know her seizure threshold is low because she is ill. It took her 15 minutes after giving her the diastat before she started responding to me.
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10-04-2006, 05:03 PM | #8 | |||
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we're able to give a second dose if needed...hope she feels better quickly.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"... . |
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10-04-2006, 05:36 PM | #9 | ||
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I can't get an idea of what she is/ isn't doing Kamie. The film is only about 2 seconds long at the most. What exactly was she doing?
Carrie. |
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10-04-2006, 06:24 PM | #10 | ||
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Junior Member
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Kamie,
It is hard to tell since I couldn't see her eyes. Aka, eyes rolled up is seizure activity. I don't know if this is a given for every seizure. But I was told when in doubt look to see what the eyes are doing. Did you try to get her attention. I was able to see the full 40 second video. Ali et al, I saw the same 2 second thing to start then saw another window that was downloading the 7 mg file that contained the 40 second video. Kamie, it was a little tough to tell also because she was curled up in a ball and bouncing on the bed. It was hard to hear if she was making any odd sounds over the background noises. Could you tell if she was making any noises? How is she doing now? |
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