[Beck]

Spencer had his sleep deprived EEG this morning so even more tired from being sleep deprived keeping him up.

I could tell from the EEG that it looked "messy". There were wrong squiggles all over the place.

The Tech asked why we were there. I told her it was follow-up for Katz not seeing Spencer in 4 years and wanting to know what his brain was doing now. I told her the school was concerned about the amount of eye rolling episodes and they wanted him medicated. I told her my concerns about side effects and the last time Spencer was on seizure meds it didn't go well. I told her I felt Doc needed to tell me something pretty compelling for me to decide to medicate him.

You know how they aren't supposed to tell you anything? Well, she did but she didn't.

She said, "It is always tricky deciding when to medicate and risk the sides and when not to medicate because of the sides. You may want to consider trying Spencer on one of the meds for a month or so to see if it helps. If the side effects get him worse than the episodes, you could quit or try something different."

What did this tell me? She saw something on the EEG that she didn't like. I couldn't tell for certain what she was looking at but I could tell there was a lot of disorganized squiggles. There were lots of episodes during sleep that didn't look like the smooth patterned lines. I personally thought it looked pretty messy.

So, I am not really looking forward to the call from the Neuro. She asked if we had a followup appointment with him. I told her he was supposed to call me with med recommendations and another follow-up in 4 months.

I guess it is good we have this EEG prior to the Life Care Planning Meeting. They can add in Neuro visits, EEGs, and meds.

Until I hear from the Neuro, I am just not going to far out there. I just felt I heard more today about the EEG than I was expecting. I am too tired to get to wound up about it.