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Old 09-06-2006, 11:43 AM #1
Busymommie Busymommie is offline
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Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
Busymommie Busymommie is offline
Member
 
Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
Unhappy Bye Bye Monotherapy... on two AED's now.

Dr.Parrotts nurse Leigh called me back yesterday about the increased seizures and the side effects that will not go away from the Topamax, he wants to add Keppra to her Topamax.

I have known for a long time that this was going to happen. It was no surprise, but it was something that I had wanted to avoid, very much wanted to avoid. I am torn between optimism and anguish. This could be the magical solution to the seizures that just won't back off. At the same time it rips my heart out that things have progressed this far, what does the future hold for her?

I am concerned about Keppra being his choice, I know she wasn not on it long when we tried it before but the short time she was on it was aweful, she was so agressive it was unreal. Leigh said he didn't really think that would be an issue this time around but to let them know if it started to be a problem.

Tonight will be her first reduction with the Topamax and the addition of Keppra.

I am a nervous wreck.
__________________
Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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