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Children's Health For health and neurological concerns in children. |
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09-06-2006, 11:43 AM | #1 | ||
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Dr.Parrotts nurse Leigh called me back yesterday about the increased seizures and the side effects that will not go away from the Topamax, he wants to add Keppra to her Topamax.
I have known for a long time that this was going to happen. It was no surprise, but it was something that I had wanted to avoid, very much wanted to avoid. I am torn between optimism and anguish. This could be the magical solution to the seizures that just won't back off. At the same time it rips my heart out that things have progressed this far, what does the future hold for her? I am concerned about Keppra being his choice, I know she wasn not on it long when we tried it before but the short time she was on it was aweful, she was so agressive it was unreal. Leigh said he didn't really think that would be an issue this time around but to let them know if it started to be a problem. Tonight will be her first reduction with the Topamax and the addition of Keppra. I am a nervous wreck.
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Denae- Mom to Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth Brittany (11) a Prissy Princess Sarah (14) Aspergers Syndrome Victoria (16) Above Average Teenage sister Jade (11) my niece, but now also my baby Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first Jackson (4) The sweetest little guy you will ever meet. |
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