Thank you Jen (jjbeck) for encouraging me to post a question here. (I actually found BT2 yesterday) I have lurked at BT a long time when I first asked questions about my DD many years ago (she has absence epilepsy). Since then it is my youngest whom has presented us with our "greatest adventure yet"..

Very quickly he was born at 27 wks, had a good preemie course but GI issues started to creep up. Today he is 6 yrs old and has a dx of intestinal dysmotility resulting in the need for 100% G tube feeds and a colostomy. In April of 05 he was dx with epilepsy after several TC seizures and a "positive" EEG. Some myclonic jerks have shown themselves and we still struggle for complete seizure control. His seizure meds are Tegretol and Frisium....Neurontin is used for neuropathic pain (visceral hyperalgesia) and seizure control...Cisipride and Domperidone are for his motility ...Losec for acid control and Senokot for stooling. He is a very small 31lbs but a decent ht of about 41 inches.

Whew..that said my question is...Ethan currently uses his G tube to take all his feeds and medicines....we are switching to a GJ tube that will feed directly into his small intestine (there will be no G port) and I was wondering if anyone knew if this could or might effect how his seizure meds will effect him or how they are absorbed. I have put a call into our neuro but she is currently not available...the tube is likely to be placed within a week...the GI has not changed any of their meds dosing or timing but I just wonder about his seizure meds ?? Any one have any info or ideas about his?

Thank you all so much...i have always found this board very useful and informative...thank you for letting me ask my question.

Karen

proud momma to Kiana 12, Nicholas & Alexander 10 and to Ethan (my ex-27wker now 6 yr old, dx of neuropathic chronic intestinal pseudo-obstruction of small intestine, large colon obstruction at the **** sphincter and visceral hyperalgesia.....loop colostomy,100% G tube fed, continuous feeds...generalized TC seizures....my hero, my boy)