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Children's Health For health and neurological concerns in children. |
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09-16-2006, 04:58 PM | #1 | ||
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Wow! Just found this site! I've missed you guys! I thought I would give an update on Paige. She is 19 months, started crawling about a month ago. YeaH!!!! not all over yet, but enough to get around! Her eating hasnt made any progress yet, but she has made more sounds, baba, dada, nana, and mama (thats the only one that we can tell that has meaning, the rest is just babbling). She signs eat, too, but only when you take a toy from her that she was chewing. So cute. She has been dx with a "rare" (imagine that) kidney disease, so we started treatments, but the outcome doesnt sound reassuring or the treatments. It's all just a day by day thing, as I'm sure you all know!
Well, I only got to read Langan's big news so far- Hooray!!!!! That just lifted me!!!! I'm on to reading what everyone else has been up to. I'm still on dial up, so it could take a while!!!!!
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Melissa, mom to 3 girls. Dalynn 9, Reese 3, and Paige born 2/7/2005. Paige dx w/ Periventricular Nodular Heterotopia and Primary Hyperoxularia type II of the kidneys. Global developmental delays. . |
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09-17-2006, 12:53 AM | #2 | ||
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Just a quick post, but I'm glad to "see" you again. I contacted the few people I could find when I found this site... and that was all I could do. Good to hear about the crawling and babbling. Sounds like things are pretty good overall. Prayers the kidney disease responds to the treatment.
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Mom to Samantha (10), Claire (9), and Tom (7). Tom is developmentally delayed with poor vision, lousy fine motor skills and epilepsy. His seizures are pretty well controlled through diet - dairy-free, gluten-free, rice-free, and coconut-free. |
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09-17-2006, 10:56 AM | #3 | ||
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Welcome back!!
Just had a chance to check out Paige's website and get all the updates. I am so glad she is doing well and really hope the kidney issues get under control. (((((hugs)))))
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Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!! |
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