Hello everyone! I hope I am doing this the correct way. Please forgive me for I don't even know where to start. I am here regarding my daughter which by my avatar is her.. anyway I guess I will just start small and see if anyone responds. My daughter "Mirinda" is now 18yrs old but has no life, she is in chronic severe pain now Every Single Day! There are some things that are diagnosed: Life long Kidney disease: which causes her to pass countless kidney stones and is causing her kidneys to calcify "Nephrocalcinosis". 1 surgery age 12.
Endometriosis: 1 surgery when she was 16 and her doctor says we are trying to make sure she has the "choice" to have children when she is ready. We are trying to make sure it doesn't turn into some kind of cancer and also trying to keep her from having early hysterectomy. I had Endometriosis that was called severe, acute and chronic at age 15, was told I would never get preg. and had hysterectomy age 32.
Scoliosis, lumbar hyperlordosis, lower spine rotating, severe leg pain since age 3 and now it's in both legs, arms, wrist, shoulders etc..... She is on a multitude of medications and some are pain meds.
I have Lupus causing a multitude of problems: vasculitis of central nervous system etc. but she has not tested positive for this. I know this is long and I tried very hard to keep it short and sweet but we need HELP! Mirinda goes through spells where she walks with a walker and or cane and she is there now! She should be in college but instead .... well you see where we are. Any help or thoughts would be forever appreciated.
clarity