I have a very rare and unknown case. I have an extremely odd case of insensitivity of pain. I’m extremely pain tolerant, but doctors as well as I wonder why I’m still having such nasty pain. If a “typical” person was in my body without the abnormal high pain tolerance, they would be in so much pain that it’s difficult to imagine. I guess that it’s just another additive of me being one weird case.

I went in for a nasty muscle biopsy which has had its long-term effects which are still occurring after 3 months of the surgery. The test is apparently abnormal. What is known is that my muscles are shrinking (I don't know why) and I have condromalacia patella syndrome (thinning of the knee cartilage). My biopsy has been rather interesting and keeps going to different groups of pathologists.

Currently, I was just shipped off to Pittsburg. The abnormalities are apparently rare and I have seen about 15-20 doctors in the past 4 years. I really want to know what's wrong because it's both aggravating and disturbing to know that something's there, but cannot find a cure to.
~dance59326

No advice. Sorry you have such rare things going on. I was dx'd rickett's as a baby, and syringomyelia, C spine injury in '04 and I feel like the odd one. There is still something up with me, they thought MS, but still don't know what. You must feel pretty alone and I'm sure it's scary.

Good luck at the doc's appt.

I just want to scream at the tv if I watch Mystery diagnosis - why can't you figure me out? And where's the REAL Dr House? Lol....