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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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12-17-2006, 01:53 AM | #1 | ||
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Junior Member
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I thought I would post a new thread to make sure that everyone who was so incredibly supportive and gave me great advice, words of encouragement, and strength would see it.
Greg turned bright yellow on 12/7 (a week ago Thurs) From that point he deteriorated dramatically every time he woke up. My back held out until Sun around 5 AM when I ended up on the hall floor. Miraculously I was able to head off every migraine before they got out of control. I spent that Monday in bed, nearly hysterical because I couldn't get in to Greg. His sister and Brother in law were with him, but it was really tough emotionally. He was completely nonreponsive that day. He spoke his last words the night before - "I love you to me", which was very difficult to get out, and "cool" when I told him his San Diego Chargers had won their game that day. We only got one hospice shift because the nurse I waited up for all Sunday night (the 3rd one they sent since I signed him up the previous Friday) said his vitals were strong and he didn't qualify for continuous care. In actuality he was in respiratory distress and in very bad shape, but that is another story. Hospice did send out a social worker for me Monday who didn't leave until she had ordered all the equipment we needed and gotten him approved for constant care. The first shift started at 8 PM Monday night. By 10:30 PM when I was trying yet again to hobble out to see him, she was on her way back to get me. His pulse was dropping rapidly. When I got to his bedside, his heart rate went right back up and stayed up for another 6 hours!! The nurse was in total shock. He never went into a coma. There was one time he opened one eye, and I could see the sparkle in his eye and knew beyond a shadow of a doubt that he could hear me. As hard as I tried to help him let go, he never gave up. I couldn't even tell him the nurses were from hospice as he knew that meant no more attempts at chemo! Other than the one idiot nurse, hospice was wonderful - especially the social worker and the nurse on that one shift. They were outright angels. I can never tell you all how much your responses to my other thread helped me. Once I posted that, the feeling of being totally alone and not having a clue what to expect eased up tremendously. I only hope that my replies on future threads are helpful to people also. Greg is finally at peace. Now I have to work on finding some for myself until the day I get to go join him again. Most of the time it seems easier to stick my head in the sand and pretend this didn't really happen. I am very blessed to have had such an incredible husband. Suzanne |
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12-17-2006, 11:25 AM | #2 | |||
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(((((((((((((((((((Suzanne))))))))))))))))))
You have my sincere condolences, and I hope you are able to find peace and strength during this difficult time. I hope you are able to carry the good memories in your mind, and know that Greg will always be with you in your heart. Take care of you, Liz
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~*~*~*~ The greatest difficulty lies not in choosing between self-interest and the common good, but in knowing the difference. ~*~*~*~
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12-17-2006, 11:54 AM | #3 | |||
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Grand Magnate
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Suzanne,
I am sorry to hear of your husband's passing. Greg is blessed to have had the love/support you gave to him, both during his life & in his passing. May he now rest in peace. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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12-17-2006, 12:18 PM | #4 | |||
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Dear Suzanne
my deepest condolences to you. I am so glad that you found support and comfort here during the difficult time of Greg's illness, and that you can find that same care here now in your sorrow. Cheri
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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12-17-2006, 01:17 PM | #5 | ||
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Member
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Dear Suzanne ~
I am so very sorry for your loss ~ please know you will be in my heart, thoughts and prayers ~ Love, Sue
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~ Seven back surgeries ~ fused from C5 through C7 and L3 through S1 ~ I also have Arachnoiditis which is extremely painful ~ Live in chronic pain 24/7 ~ |
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12-17-2006, 03:56 PM | #6 | |||
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Dear Suzanne~
I lost my first husband. You will forever carry Greg in your heart. Sending healing prayers. Love, Jan |
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12-17-2006, 08:33 PM | #7 | |||
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Suzanne,
You have my deepest sympathy. You are an incredibly strong person and it sounds like you were something very special to your husband. Take care, nancy-h |
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12-17-2006, 09:50 PM | #8 | ||
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Junior Member
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(((((((((((((((((((((suzanne))))))))))))))))))
hugs, sims |
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12-17-2006, 11:52 PM | #9 | ||
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Yappiest Elder Member
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dear suzanne,
my deepest sympathy. (((hugs))) Curious
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12-18-2006, 12:08 AM | #10 | |||
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In Remembrance
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(((((Suzanne)))))
My deepest and most heartfelt sympathy goes out to you. You sound like such a wonderful and courageous person. I wish you all the best that this world has to provide. Idealist |
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