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Old 02-03-2010, 09:41 AM #1
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Default taking neurotin

Ijust began taking gabapenti for burning feet.I'm glad to see I'm not crazy about the sideeffects.Sometimes I think I'm a big baby but this burning is something has anyone ever had it stop....Can I look forward to any improvment
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Old 02-14-2010, 01:03 PM #2
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Default

I couldn't take any of them! Pregabalin, gaba, whatever. Cymbalta made me deathly ill! My pharmacist says these are drugs that either your body likes them or doesn't, no real in-between....... so I agree, if it doesn't make you better, quit it!

Now, part of my issue with medications is I'm allergic to the synthetic fillers. If I try a new med, it has to be a brand name that doesn't have some cheap filler in it.
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Old 02-15-2010, 01:22 AM #3
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Default neurontin

I did stop the medication but these days what I deal with is hard to explain, according to the neurologist my nerves are waking up and not only am I hypersensitive to everything where the neuropathy pain is concerned but I've become highly sensitive to medications as well and even requested to see an allergist to make sure. I think everyone's body's and problems with nerve pain are different as well as their response to treatment but I think if doctors listened more to their patients and researched the medications and their effectiveness rather than drug companies that a lot of people wouldn't be having these issues, to be honest according to what I've seen there weren't that many people in the trials that actually experienced complete relief and if long term use of these medications hasn't been studied properly then the FDA should have never approved them, as many recalls as there have been on a lot of these kinds of medications because of all new dangers it makes me understand why so many people these days don't even want to see a doctor let alone go to an er for a true emergency. For now I have bigger concerns, the hospital my mom was taken too Tuesday released her with out telling us her head cat scan showed she has had a stroke, with everything going on with her and the reason she was taken by ambulance being that her doctor thought she may have had a stroke first off why didn't the hospital tell us and secondly why didn't they keep her over night? We only just found out through a letter from her doctors office, no one called and the er didn't inform us what so ever and it's quite possible it could have been caused by long term use of an anticonvulsant that I recently found out has caused the same problems in other patients, even patients on it just for migraine prevention. I guess it's time to make a trip to the medical board my mother wasn't treated properly in that hospital in my opinion, they told us her cat scan was perfectly normal and maybe I should go see a lawyer.
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Old 02-17-2010, 11:03 AM #4
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Default

I am one for whom Lyrica seems to be working quite well. Some of the side effects are really annoying- weight gain, yes. appetite, yes. Aphasia and word replacement, yes. But considering that only a few weeks after starting it I was doing things like rearranging bookshelves and making fudge, we're all willing to deal with it. I also get roaming patches of numbness.

I might ask about trying Neurontin instead at my next appointment, but I'm afraid to mess with something that is really working.
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Old 02-04-2010, 03:41 AM #5
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Frown lyrica unknown dangers

Quote:
Originally Posted by gambles View Post
Anyone out there use Lyrica or know of anyone who does?? So far I have met two people who have had fantastic success with it to the point of getting off narcotics!

It is off label prescribing, but my fear is that is is closely related to the anti-convulsant drugs which I didn't do very well on. I tried both Topomax and Neurontiin with devastating results. I know other people with spinal injuries have had luck with both of those meds also.

Anyone have any stories or thoughts about Lyrica??

Thanks for any info,
Suzanne
Suzanne,
I have done extensive research on Lyrica. My fiance was taking it for nerve pain due to a spinal cord injury. I also was prescribed it for fibromyalgia. I quit taking it rather quickly as I became depressed. With my fiance, he began having blurred vision; confusion; amnesia; ataxia just to list a few. He had to take massive amounts for it to touch his nerve pain, just as it had been with the neurontin. I have been in the pharmacy business for 13 years. Number one, I am very leary of trusting any new drugs to start with, but more specifically drugs made by Pfizer or any of their subsidiaries. They are known for withholding information from the public on the dangers of medications that they put on the market. Vioxx and bextra to name two. What I have found is alarming. First, this drug is extremely hard on the kidneys. If you have even mild kidney problems it could be deadly. Two, and more worrisome A shocking new study shows that they block the formation of new brain synapses, drastically reducing the potential for rejuvenating brain plasticity – meaning that these drugs will cause brain decline faster than any substance known to mankind.
Quote:
The problem of these drugs is compounded by their flagrant illegal marketing. Neurontin was approved by the FDA for epilepsy back in 1994. The drug underwent massive illegal off-label promotion that cost Warner-Lambert 430 million dollars (the very first big fine for off-label promotion). The drug is now owned by Pfizer. Pfizer also owns Lyrica, a super-potent version of Neurontin. It has been approved by the FDA for various types of pain and fibromyalgia. Lyrica is one of four drugs which a subsidiary of Pfizer illegally marketed, resulting in a $2.3 billion settlement against Pfizer.
Even though the marketing of these drugs has been heavily fined, they continue to rack up billions in sales from the off-label uses. Doctors use them for all manner of nerve issues because they are good at suppressing symptoms. However, such uses can no longer be justified because the actual mechanism of the drugs is finally understood and they are creating a significant long-term reduction in nerve health. The researchers in the above study try to downplay the serious nature of the drugs by saying “adult neurons don’t form many new synapses.” That is simply not true. The new science is showing that brain health during aging relies on the formation of new synapses. Even these researchers managed to question the common use of these medications in pregnant women. How is a fetus supposed to make new nerve cells when the mother is taking a drug that blocks them?
These are the kind of situations the FDA should be all over. As usual, the FDA is sitting around pondering a suicide warning for Lyrica while its off-label uses include bi-polar disorder and migraine headaches. The FDA is likely to twiddle its thumbs for the next decade on the brain damage issue.
The above quote is copied from http://www.wellnessresources.com/fre...rain_synapses/

Yes, I personally found that the drug helped with the pain, but the risks far out way the benefits for myself. I hope what information I have given you has helped. You are right to be hesitant to try this new drug. It will be years before it is truly known to what degree this drug is damaging the brain, and who knows what else.

Last edited by Chemar; 02-04-2010 at 08:52 AM. Reason: website quoted has copyright
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Old 02-04-2010, 09:38 AM #6
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Lightbulb

I for one, will be watching closely to see if the studies on Lyrica continue concerning its damaging potential.

And also, Vioxx was not a Pfizer drug. It was marketed in US by Merck. Bextra was a Pfizer me-too drug, and Pfizer also markets Celebrex (after merging with Searle). All 3 are Cox-2 specific inhibitors. Vioxx was the most potent of the 3 and Celebrex the weakest.
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Old 02-17-2010, 03:53 PM #7
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Default I"m a lyrica user

Quote:
Originally Posted by gambles View Post
Anyone out there use Lyrica or know of anyone who does?? So far I have met two people who have had fantastic success with it to the point of getting off narcotics!

It is off label prescribing, but my fear is that is is closely related to the anti-convulsant drugs which I didn't do very well on. I tried both Topomax and Neurontiin with devastating results. I know other people with spinal injuries have had luck with both of those meds also.

Anyone have any stories or thoughts about Lyrica??

Thanks for any info,
Suzanne
I've been on Lyrica for about 6 months now. It works on my nerve pain but I still have some breck threw pain. I was taking 50mg and had to get it reduces to 25mg because one of the side effects is depression. Well I got depressed and now I'm on an anit-depressant meds now. I dont have any other side effects. Thank god
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Old 02-21-2010, 07:33 PM #8
Mommyoftwo Mommyoftwo is offline
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Default I take Lyrica

I've been taking Lyrica for about a year now, 300 mg daily. I also took Neurontin, but I was up to 2400 mg before it even touched my nerve pain. The Lyrica works better for all over pain, including Fibro. I don't know what I would do if I didn't take Lyrica or Neurontin for the nerve pain??

So, what do you take for the nerve pain if not Lyrica or Neurontin? I wouldn't be albe to get out of bed, and I am on a fentenyl patch as well...
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