Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 02-07-2007, 10:19 PM #1
Quahog Quahog is offline
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Join Date: Nov 2006
Location: South Paris, Maine
Posts: 41
15 yr Member
Quahog Quahog is offline
Junior Member
 
Join Date: Nov 2006
Location: South Paris, Maine
Posts: 41
15 yr Member
Default The Anguish Continues

I really would like to know what I have done to deserve the type of treatment that I've been receiving. Doctors and other medical professionals for some reason either do not believe what I am saying or they think I am a moron who does not know what he is talking about.

I am upset to say the least. In the past I spoke of a Dx of Lyme well I have had a positive ELISA result. That of course was followed by a negative western blot so maybe I don't have it after all. Regardless, I am still in pain and after 5 months of Amoxicllin I am not feeling any better. The good news is I am not feeling any worse but that isn't saying much. I have been seeing a Lyme Literate doctor who is treating me for the Lyme but says there are other problems. One of which happens to be my neck.

My neck pain is SO MUCH worse and all I want to be believed when I say that it hurts. The thing is no one I speak with believes me and when I ask about a discogram or myelogram they all say you don't need it because the MRI doesn't show the disc impinging the cord. Well, I may not be an MD but I know there is something going on and no one wants to help. I have seen the films and the discs are so close to my spinal cord it isn't funny. It would not take much for the cord to become impaired. It isn't normal as some have suggested. I show symptoms of Cervical myelopathy and no one will listen !!

My new PCP doctor doesn't even want me as a patient at least it appears that way. She said she wants me to see a ID specialist. I am not crazy about the idea.

I am bothered by the fact that before the Lyme my pain was being treated and I was being taken seriously. Now, the pain clinic wants to stop my meds. The mental anguish in addition to everything else I am enduring is cruel and unusual punishment. I want to report them in the worst way but feel it won't get me anywhere. Why would just having Lyme make people act this way? Why won't anyone step up and think outside the box?
I fear that the more I complain, the more chance I stand of being labeled a drug addict, or seeker. then again I may already be labeled.

If I had cancer I wouldn't be treated like this yet Lyme pain is comparable to cancer and that is not including the discogenic pain.


This is just not fair and I see no end in sight.

I just can't keep doing this to myself. The medical community has failed me and I no longer want any part of it. I see others will problems similar to mine and they don't seem to have any problem getting help why can't I?

Glenn
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