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04-11-2014, 09:20 AM | #191 | ||
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I too was on Lyrica for 5 years, 300 + mgs a day with little or no side effects. It was very effective at first for fibromyalgia, but never completely got rid of the pain. For the last 6 months I have been working on getting off all meds, why....because at 53 I can't see being on these for the next 30 years, who knows what the long term side effects will be. Anyhow, no problem to cease Aciphex and Cymbalta, but the Lyrica...ugh! I tapered off very slowly as directed, but the last 2 + weeks after last dose was taken have been very challenging. Thanks to this site and many of the posts I have stayed with it and am starting to feel better. The walking, drinking lots of water, and MEDITATION have helped the most. If I had know how physically addicting this medication was I never would have taken it. The returning fibro pain is nothing compared to the withdrawl. I can handle the pain through meditation, the shakes, insomnia, gut contractions and diarrehea, headaches, nausea, fatigue another story. I had none of these issues before the Lyrica.
My advice, if you don't need this stuff...don't take it. If you are getting off, stay the course it does get better. My head is clearer than it has been in years. peace, |
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"Thanks for this!" says: | Diandra (04-11-2014), Dr. Smith (04-11-2014), eva5667faliure (05-02-2014), ginnie (04-11-2014), PamelaJune (04-11-2014) |
04-22-2014, 02:31 PM | #192 | ||
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Quote:
I registered just so I could thank you for writing this post. I have tried repeatedly to go off of Lyrica. I'm under a ton of stress as it is, going through a work comp MESS. The part that makes me most uncomfortable is the anxiety. I have to be able to care for a 2 year old and the anxiety and depression are out of control. I can't even leave the house and can't bring myself to do anything at home either. I just lay there and obsess over anything and everything. |
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05-01-2014, 01:43 PM | #193 | ||
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I have been following many of the posts about “Lyrica Withdrawal” on NeuroTalk for some time and feel that I should share with others my experiences with this drug. I am 81 and have been using a wheelchair for about eight years due to peripheral neuropathy in both feet. My PM doc prescribed Lyrica for the foot pain. I’d been down the road with tramadol, a SCS, TENS, lidocaine patches, tramadol, and topical applications of various drugs for pain without success.
Lyrica seemed to be the last resort. I started on 50 mg 3x/day in March 2012 with some pain relief and then last year increased to 75 mg 3x/day. Again with some relief for the foot pain, but then the morning headaches (dizziness, brain fog) or whatever one might call it began and has increased in intensity each month this year. In addition, I’ve been having some difficulty with my short-term memory and thinking through simple problems. The head problem was just getting out of control and I realized something needed to be done. My PM doc prescribed hydrocodene and my GP suggested that I add Cymbalta. In both cases, they wanted to add more drugs. They offered no real solutions. This was about the time I finally came to grips with the situation and realized no one could or would help me. It was going to be up to me. Last month I decided I just needed my life back and more drugs were not the answer. Other Lyrica users that wanted to quit offered some ideas. I would reduce and (hopefully) eliminate Lyrica from my life. I visited with my GP and we decided to cut back 25 mg every two weeks until I reach zero intake or at a level needed for pain and yet could tolerate the side effects of the head aches. As of today, I am in the 5th week of the schedule taking 50 mg 3x/day. I can report the head situation is improving and the foot pain level has actually remained the same. I have experienced noside effects from the decrease of Lyrica. Hopefully I will be able to continue with the plan and eventually eliminate this dread drug. With a “clearer head,” I share my experiences. |
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05-09-2014, 11:46 AM | #194 | ||
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Thank you so much for your input about Lyrica.I do not wish this withdrawal on my worst enemy.I really sympathize with you and everyone who are going trough this.I am going trough it right now and my new doctor is trying to get me off this evil drug.Over a course of 3 months I came down from 75mg 3 times a day to 2x a day then 50mg 2x a day then ones a day and now 50mg every other day.The days I do not take it I feel awful.Upset stomach, pounding heart,constant teeth grinding from anxiety.Deep sadness(want to cry all the time). I feel like I let everyone down.I try to explain to people around me how I feel but it's hard for them to understand if they never went though this.If I had any idea this would happen I would never have taken it for my back injury.My back is better after 3 years so time heals
It's so nice to come here and find the support I need to get me through this. Good luck and God bless Suzanne |
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05-09-2014, 01:46 PM | #195 | ||
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Elder
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I hear all of you about how hard it is to get off a medication. I had my own demons regarding this just a few years ago. Just hang in there, eventually you do feel much better. ginnie
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"Thanks for this!" says: | Diandra (06-02-2014), eva5667faliure (05-29-2014), ger715 (05-10-2014), Hockey (05-29-2014), PamelaJune (05-09-2014) |
05-26-2014, 04:28 PM | #196 | ||
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I am so happy/relieved I have found this thread. Are panic attacks and severe shaking a common side affect of stopping 150mg's per day of pregabalin ?
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"Thanks for this!" says: | eva5667faliure (05-29-2014) |
05-29-2014, 11:18 AM | #197 | ||
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Junior Member
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I don't read this thread often but I do peruse it periodically. I know its about Lyrica but really no one caught this? You are claiming that Lyrica cured your Fibromylagia????? That is absolutely insane. There is no cure for this autoimmune disease. If there was I would be first in line for it. I have suffered for over 20 years There would be articles about this and other doctors would know about this. Either you just went into a remission or you never had fibro. There is no cure.
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"Thanks for this!" says: | eva5667faliure (05-29-2014) |
05-30-2014, 12:35 PM | #198 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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I caught it, but construed her meaning to be alleviation of symptoms rather than elimination of underlying cause.
Quote:
__________________
Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | PamelaJune (05-31-2014) |
06-03-2014, 03:15 PM | #199 | ||
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Thought it might be time for an up-date on my withdrawal plan. I am now in the 10th week and have reduced that “dread drug” from 225mg down to a total of 100mg daily (25mg @ 6am/50mg @2pm/25 mg@ 10pm). I took my last 50mg capsule yesterday and now taking that “dread drug” dissolved in water only. Let me explain the “dissolved in water” that I am doing.
I asked my PM Doc, who I greatly respect, about how to split the 75mg capsules that I had down to 25mg with out another prescription. I was going to open them and try to measure the powder and place the contents back into a gelatin capsule. He said it would not for various reasons. His suggestion was to open it into a measured amount of water and then store in the refrigerator. Here’s what I’m doing to split my 75mg capsules into three liquid 25mgs. In one cup of water, I cut the capsule (it is water-soluble.). 1/3rd cup gives me my needed 25mg and so on. Seems to be working plus it’s saving me prescription money. Any thoughts on my “dissolved in water” practice? Today is the beginning of my 10th week. Headaches are the still main side effect that just seems to persist and really affect my quality of life. I still have headaches almost continuously, but they may not be quite as severe. The neuropathic foot pain is cranking up some, but I’m hoping I can tolerate the PN pain as the head clears up. I am still not where I want to be with the side effects. I know I must put on my Winston Churchill hat and remember his “we shall fight them on the beaches” speech and carry on for weeks yet. I’m closer to ending that “dread drug” from my life. |
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"Thanks for this!" says: | PamelaJune (06-04-2014) |
06-04-2014, 04:40 AM | #200 | |||
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Senior Member
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Hi, yes they can be from the body adjusting to no longer having the drug in your body. Hang in there, it will improve
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