NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Chronic Pain (https://www.neurotalk.org/chronic-pain/)
-   -   Lyrica Withdrawal - How Long Will This Last? (https://www.neurotalk.org/chronic-pain/132645-lyrica-withdrawal.html)

ginnie 12-15-2013 09:15 AM

Hi accipiter0600
 
You are an inspiration to others who go down on medications. That positive view, gives so many hope that they will feel better too once off a medication. Thank you for your post. ginnie

clstewart81 12-17-2013 11:36 AM

I was on lyrica in the past, but not long enough to have a physical dependancy. I take it, this drug isn't for long term usage? The last thing I need is something that I have to stop taking in the future.

Dr. Smith 12-17-2013 12:08 PM

Quote:

Originally Posted by clstewart81 (Post 1037668)
I was on lyrica in the past, but not long enough to have a physical dependancy. I take it, this drug isn't for long term usage? The last thing I need is something that I have to stop taking in the future.

Actually, as an anticonvulsant, it is intended for long-term use, however for neuropathic pain, it 1.) only works on about a third of the patients who try it, and 2.) it sometimes stops working altogether sometime after the upper dosage limit is hit.

Doc

clstewart81 12-18-2013 09:10 AM

Quote:

Originally Posted by Dr. Smith (Post 1037681)
Actually, as an anticonvulsant, it is intended for long-term use, however for neuropathic pain, it 1.) only works on about a third of the patients who try it, and 2.) it sometimes stops working altogether sometime after the upper dosage limit is hit.

Doc

I see, sort of like building up a tolerance to it I take it? I've had so many meds in the past I had to 'withdraw' from. Don't need another! Thanks =)

razzle51 12-22-2013 12:35 PM

just remember to have a dr help you wean off medications . it doesn't cost anything . just call the office and have his nurse call you..

CoveredInAnts 02-14-2014 12:48 AM

Lyrica? Who knew?
 
I have been taking Lyrica for 6 yrs. Everytime I run out or don't take it I end up so sick. I feel like I am covered in fire ants, nasea, headache, sensitive to light & sound.....etc. Unlike most of the sufferers the psych symptoms are not new to me. I have PTSD. The withdraw triggers me and though I have never been suicidal, this withdraw has pushed me there when I have run out of meds in the past. This time my PCP has taken me from 450mg to 200mg per day and I am doing fine. Yesterday I decided to take it down to 100mg and I started getting all the bad feelings and thoughts. I'm so scared that this med will be the death of me so I started back on 200mg today. How will I ever get this poison out of my body??

Dr. Smith 02-14-2014 11:39 AM

Slowly... very slowly. It sounds like you made the decision to go from 200 mg to 100 mg unilaterally (i.e. have you talked to your doctor about this yet)? It may be that you need to taper more slowly. Instead of going from 200 to 100, maybe 200 to 150 (or 200 on the odd days and 100 on even days). Or you may need to stay at the 200 mg level a little longer before the next reduction. There are options.

Everyone is different. There are several threads about this topic, and many stories—you are not alone in this, and there IS light at the end of the tunnel. The light may be a little farther than it appears—tunnels can be like that—but it is there, and each step gets you closer to it.

Doc

what a ride 02-18-2014 01:30 AM

Coming off of Lyrica
 
I thank all of you who shared your struggles on this forum, it gave me great comfort in the beginning knowing I was not alone.

I started on Lyrica in the winter of 2006 for fibromyalgia and neuropathy pain. I went toxic on it and had to do a 3 day withdrawal. When I started my withdrawal 20 days ago it was pure hell. I did not think I would survive the ordeal. But I'm still Lyrica free. :D The first day of coming off of lyrica all my major nerve pain ceased (not the neuropathy though). Lyrica created more pain. (there are several articles on this) My doctor gave me a shot of Oxytocin (Pitocin) for the rebound pain on day 5 and now my pain level is about the same as it was while on the Lyrica.

I ended up the the ER with an over the top heart rate. Turns out that going off the Lyrica sent my Thyroid levels way way up. Since then I quit taking my synthyroid. The shakes, anxiety, chest pains, hot/cold spells, sudden rapid heart rate, lack of appetite and sweating, are now under control. It won't hurt to have your doctor check your THS levels if your heart rate increases.

That said, sadly my mind is now broken. :mad: I think differently and have developed all kinds of mental, emotional, cognitive and memory problems. The last 6 months of my life are a blur. There are articles of the effects of Lyrica on the hippocampus that explain why this can happen. So now i pray that my mind will heal.

Diandra 02-18-2014 04:33 PM

I truly sympathize with your struggles and agree with you. I have a theory that lyrica severely changed my brain chemistry as I was on it for many years..I went off of it for 2.5 months and it was very difficult but then I started to have seizures. I had them before the lyrica but from brain infection due to Lyme Disease decades ago. I was scared and went back on the lyrica because I was pretty sure that going off it was the cause of the seizures.

I wish you the best in staying off it and I do hope your brain will go back to normal. I know all these withdrawal symptoms are so frightening but as many of us have learned, our docs tell us we don't get withdrawal. Most of us know otherwise. Diandra

P.S. Can you direct me to any articles where you learned Lyrica causes more pain? thanks


y
Quote:

Originally Posted by what a ride (Post 1051763)
I thank all of you who shared your struggles on this forum, it gave me great comfort in the beginning knowing I was not alone.

I started on Lyrica in the winter of 2006 for fibromyalgia and neuropathy pain. I went toxic on it and had to do a 3 day withdrawal. When I started my withdrawal 20 days ago it was pure hell. I did not think I would survive the ordeal. But I'm still Lyrica free. :D The first day of coming off of lyrica all my major nerve pain ceased (not the neuropathy though). Lyrica created more pain. (there are several articles on this) My doctor gave me a shot of Oxytocin (Pitocin) for the rebound pain on day 5 and now my pain level is about the same as it owas while on the Lyrica.

I ended up the the ER with an over the top heart rate. Turns out that going off the Lyrica sent my Thyroid levels way way up. Since then I quit taking my synthyroid. The shakes, anxiety, chest pains, hot/cold spells, sudden rapid heart rate, lack of appetite and sweating, are now under control. It won't hurt to have your doctor check your THS levels if your heart rate increases.

That said, sadly my mind is now broken. :mad: I think differently and have developed all kinds of mental, emotional, cognitive and memory problems. The last 6 months of my life are a blur. There are articles of the effects of Lyrica on the hippocampus that explain why this can happen. So now i pray that my mind will heal.


what a ride 02-19-2014 03:03 AM

sorry i forgot to bookmark them. But the terms i use in the search were odd and took me to sites that were from collages and such. not the usual sites. something like pregabalin, brain damage, hippocampus. i had to dig deep. next good thinking day i'll try to find them.

susie.q59 02-20-2014 10:07 AM

Lyrica
 
I have tapered off my Lyrica and am still experiencing withdrawal symptoms of feeling lightheadness and nausea, how long will these effects last?

ginnie 02-20-2014 02:55 PM

Hi Susie
 
Hang in there just a bit more... Truly you will feel better as time goes on. Any drug we have to wean off or want to wean off is difficult. I do empathize with you. ginnie:grouphug:

Dr. Smith 02-20-2014 07:12 PM

Quote:

Originally Posted by susie.q59 (Post 1052286)
I have tapered off my Lyrica and am still experiencing withdrawal symptoms of feeling lightheadness and nausea, how long will these effects last?

Hi SusieQ, Welcome.

That may depend on the dosage you were on, how long you were on it, how long it's been since you've been off of it, and other factors. Most likely, the withdrawal symptoms will reduce gradually over time rather than just stopping suddenly. Generally, the more effective pregabalin was in controlling pain, the more difficult withdrawal may be.

Doc

Mathew92 02-27-2014 12:30 PM

I was only on Lyrica for 10 days at 150mg then stopped without tapering. I was fine for the first 3 days after I cam e off it but have gradually stopped becoming able to sleep. Its been 10 days now since I stopped and have slept 2 hours a night for the past 4 days. This is the only withdrawal symptom I am experiencing and don't feel all that tired. But I'm worried the damage that is being done and if ill ever actually recover from this.

I surprised at the lasting negative effect from taking it for such a short period of time. Can anybody give ms some advice? Should I start it again and the taper off or should I wait longer? Its just I've seen people on this thread say its taken months to recover. Is the withdrawal time related to the amount of time on the drug?

Dr. Smith 02-27-2014 01:29 PM

Hi Mathew, Welcome.

Quote:

Originally Posted by Mathew92 (Post 1053910)
Is the withdrawal time related to the amount of time on the drug?

It is, but there are other factors/variables as well, and everyone is different.

Quote:

Its just I've seen people on this thread say its taken months to recover.
There may be exceptions, but most of those folks have been on it for much longer—years in some cases. You were on a minimal dose for a very short time, so I'm surprised you're having this much trouble, and wonder if possibly the insomnia is coincidental or related to something else. :Ponder:

Any other changes lately (medications, diet, job, personal/emotional, etc.)?

If it was me under these same circumstances, I wouldn't even consider starting back on the stuff. I think I might try approaching it as a case of insomnia and go from there.

Have you discussed this with your doctor yet?

Doc

sandyclaus30 03-19-2014 08:53 AM

I'm very scared
 
I just moved from one state to another, and I have been fighting to get my prescription of Lyrica filled. The pre-auth has been denied twice so far. I have severe peripheral neuropathy due to fibromyalgia, and I also have irritable bowel syndrome, anxiety disorder, atrial fibrillation with tachycardia. Due to stopping Lyrica cold turkey, I am experiencing a-fib, anxiety, racing heart, dizziness, and nausea. I am very afraid as I do not want to throw a clot. Should I go to the ER?

Dr. Smith 03-19-2014 02:48 PM

Hi Sandy, welcome, but I wish it weren't under these circumstances.

That's a serious enough question that I think it warrants a call to your current doctor. Just my personal opinion, but if your symptoms are such that you'd go to the ER if Lyrica weren't a factor (if you'd never taken it or were still taking it), then you should probably go. I wouldn't go just to try to get some Lyrica.

Here are some articles on when to go to the ER in general:

when to go to the er

Perhaps there's something in there that will help you determine the best course of action.

Doc

sandyclaus30 03-19-2014 06:27 PM

Thank you for the advice, Dr. Smith. If I would have been thinking clearly, I should have come to that conclusion myself!

Heading out now..

Synnove 03-24-2014 02:17 PM

Hi all.
I have fallowed this discussion on Lyrica withdrawal, and I will now join in with my experience on the subject.
I have severe diffuse symptoms of burning pain from Small Fiber Neuropathy. This was becoming worse gradually over months.
Rheumatologist and neurologist worked together to treat this, and I was told that " at this time we call it ideopathic, and our goal is symptomatic treatment"
The Rheumatologist first put me on large dose of Neurontin for a while. This made me very dizzy and spaced out, and I did not like that I could not function as well. I was switched to a combination of Amitripthyline and Lyrica, and was told by the neuropathy specialist neurologist that this should be promising. He later told me that his goal was to increase th Amitripthyline and slowly, very slowly decrease the Lyrica.
I have for months now had some very strange,frightening symptoms during night that wakes me up. It feels like a strong throbbing disturbing feeling inside almost like a rush, (yet when I feel my pulse it is regular and normal)
Accompaning this feeling has been a feeling of deep heat slowly spreading through my body.

I have been reporting this symptoms to my doctors. My 2 neurologists said it sounded like perhaps a simple partial seizure.

I have had regular EEG -- normal. I have had Video recprded/observed 72 hour continous EEG monitoring twice now at the hospital.
It has been negative for seizures.

The doctors have not been able to diagnose what these symptoms are ( and I do not like that)

AND, I WILL EMPHASIZE, that the symptoms I have had, is physical. Could be in the way of distroyed sensory nerves givng me the experience of bounding, trmbling, vibrating symptoms. But this is still physical.
I had one neurologist saying to me that it sounds like a panick attack. I said :"NO, I do not have a history of mental instability or anxiety"

I have come up with my own theory: When I think of it, theese symptoms seem to have started since I have been started on all these meds.

I had a nurse who specializes in monitoring this, and who is knowlegable in meds. She said that Lyrica has to be on a steady level in your blood stream at all times. This is why I tried to even the med times out to every 8 hours. This is because at first, I thought that during the night, perhaps the level became low, and I was getting withdrrawal symptoms. I started to mark down the times of the episodes. It seems to come around 1 00 am and at 5 0r 6 am. So I figured out that perhaps I had symptoms when the med was peaking and when it was too low.

I think this whole thing is very disturbing. The med helps with my pain, but I think the dosing was wrong. 100 mg in am 100 mg at 2 pm and 150 mg at bed time.
The reason being that the pain of my neuropathy pain, is worse in afternoon an at night.

I have decided to try to come off this medication. ( I think it is very strong, and it works on your brain of course to interfer with the sensory nerve's misinterprted signals.)
I will try to fallow the special neurologist's suggestion.
Doctor told me to decrease the am dose by 50 mg, which I have done for a few weeks now. And I have been able to increase the pm Amitripthyline dose to 35 mg. ( I had to decrease it before due to side effects)
I have also been able to decrease the bed time dose of Lyrica by 50 mg.

My pain symptoms are now worse, and it starts as early as 11 am, sometimes continously 24 hour.And lately, since I decreased the bed time dose, I feel that I have had more severity in those "night episodes"

So, I have definitly been able to figure out that it is important to have a "steady, same dose level of the medisine in the bloodstream at all times.

I am hoping to come to an even dose. I will ask my doctor to order it in 75 mg times 3. That will bring me to a daily dose of only 250 mg, down from 350 mg. Then to 50 mg times 3 to total 150 mg.

My neuro said Lyrica has to be tapered very very slowly.

I do not know how this will go. But I do know that I have to come off this Lyrica med.
I have ofcourse found out what I did not realize at first, this med is very powerful!! And it works directly on your BRAIN!!
I also know that as far as what is known a combination of antiseizure med and antidepression med is what works best to treat neuropathy.
I hope something different can be found.

To all of you trying this and going through this terrible things: I know you are feeling bad and frustrated.

To Mathew 92: What you are expeiencing regarding difficult to sleep, also has been some of my experience. That is because it has been so frightening when I got those physical symptoms.


All the best to all of you

Synnove

Dr. Smith 03-25-2014 08:55 AM

Quote:

Originally Posted by Synnove (Post 1059126)
I thought that during the night, perhaps the level became low, and I was getting withdrrawal symptoms. I started to mark down the times of the episodes. It seems to come around 1 00 am and at 5 0r 6 am. So I figured out that perhaps I had symptoms when the med was peaking and when it was too low.

I think this whole thing is very disturbing. The med helps with my pain, but I think the dosing was wrong. 100 mg in am 100 mg at 2 pm and 150 mg at bed time.
The reason being that the pain of my neuropathy pain, is worse in afternoon an at night.

Hi Synnove,

Sorry if you know all this; maybe it can help others figure this out.

I think it's good that you're listening to your body, particularly your pain cycle(s). (Mine is worse early morning until I get going/moving, and late afternoon/early evening when I wind down and change gears.)

Pregabalin has a half-life averaging ~6.3 hrs. which doesn't quite fit your 1am/5:30am cycle (~4.5 hrs), but you may be metabolizing a bit faster, or those episodes could be related to your personal circadian rhythm (guessing here) or some other/unrelated factor.

Amitriptyline's half-life is much longer—~22 hrs. (26 hrs for active metabolite, nortriptyline), which is good, because that allows for once/day dosing and maintaining a more even level.

I suspect your doctor's intention in boosting your bedtime dose was to allow you to sleep through the night without having to get up and take another dose. That works with some meds/people; maybe not this time.

Wishing everyone here the best. DW is going through a difficult taper (different med) so I think of all of you often.

Doc

greeneyedlou 03-26-2014 08:59 AM

New to site and Lyrica
 
Good morning. I'm hoping for some info from others taking Lyrica. I started taking Lyrica last Friday to help with two issues. The first one is for nerve pain in my arm and thumb after a disc rupture in 2009. My thumb tingles all day and if I move my wrist backwards for too long, the muscle in my arm with tighten and tingle. The second one is from surgery I had almost two years ago to lengthen my Achilles tendon. I have a large ball of scar tissue in my calf and the doctor believes a nerve has become entrapped in the scar tissue. Because of the nerve problem in my leg, my toes cramp severely and my big toe will bend backwards in a 90 degree angle and I'm unable to stop it. I get Charlie Horse cramps now just walking down the stairs.

So, now that you know why I take it, I wonder when will the symptoms of the meds taper off? I get extremely dizzy and tired about 3 hours after taken it in the morning. I'm a secretary and it affects my typing and my speech as I'm not able to get out what I want to say some times. My mouth feels try and my the area around my lips feel weird. It also makes me extremely tired. After about 4/5 hours it seems to go away. It doesn't seem to bother me as much at night or I've just fallen asleep before I notice it (although it's really hard for me to get up in the mornings now).

I'm taking 100 mg 2x/day. Any suggestions?

Thank you.

Laura :(

Diandra 03-26-2014 09:39 AM

Hi Laura,
I used to take Neurontin and had some problems so my pain doc switched me to Lyrica. It made me quite dizzy and spacey, a bit of trouble walking, felt like I was on a ship. I wanted to stop but my doc assured me in about 2 weeks the side effects would wear off....he said, you don't have a lot of nerve pain med options left so try to stick with it. I did stick with it, did not drive and limited any activity I had a problem with and the symptoms did wear off.

Lyrica did help me a lot, and I have only been on very low doses, 100 - 150 per day. Currently am on only 100 mg per day.
My problem was when I tried to get off, the withdrawal was unexpected and difficult. I only got off because I wanted to get off all my meds(I am on many) to see where my pain level was at because I was not getting a lot of relief and taking a lot of meds. I did manage to get
off all the meds but after about 8 or so weeks off Lyrica some partial seizures came back...it was a weekend, no docs around so I just started taking the Lyrica again to help avoid seizures and it worked.

Talk to your doc, if you are working and the Lyrica is interfering with work maybe either back down on the dose or if you can, take some time off work until accommodated to the dosage you are on. Lyrica can be a very helpful drug for nerve pain but, as you can see from this post, there can be a lot of issues with side effects and withdrawal.

I wish you the best, Diandra

Dr. Smith 03-26-2014 10:42 AM

Quote:

Originally Posted by greeneyedlou (Post 1059429)
So, now that you know why I take it, I wonder when will the symptoms of the meds taper off?

Hi Laura, welcome.

Meds can affect each of us differently. Some of these effects may last a few days, others from a couple weeks to a month or so, and others may last indefinitely. I was at the far end of the spectrum; the side effects were intolerable, never tapered, and I had to discontinue. Some of the effects this med had on my brain were (so far) permanent. This doesn't happen to everyone, and I'm not saying it to scare you. Lyrica makes a positive difference for a lot of people too. It's always an equation of the benefits we get from medication vs. the risks (downside of side effects). Most of the side effects should resolve in a month's time (or less), at which point you can re-evaluate and discuss what to do with your doctor.

Best wishes,

Doc

martine1975 03-30-2014 12:01 AM

Hi everybody,

I've been using Lyrica for 5 years now. I use it for Fibromialgy and for my general anxiety disorder.

Life has been GREAT with lyrica and I've almost become fearless with it. I've had a good life with it and NO side effects whatsoever.

But now I've moved from Holland Europe to Florida and the insurance company here doesn't cover. So i thougt......well i quit cause I'm happy and no stress and anxiety and thus no problem.

Well.....that seems like a big big mistake. My husband has bought GABA, but that doesnt help. When I don't take the Lyrica, something happens with my DOPAMINE. i have no motivation to do anything and i cant sleep. I have severe burning sensation in my feet too.

I feel empty and all.

My husband suggest that i should take NEURONTIN/GABAPENTIN instead. That is a lot cheaper and he thinks that it works more or less the same way.

Does anyone know more about that?

I have come of many addictions before; benzo's, speed, anti depressant, alcohol. So i am some sort of withdrawal expert. But LYRICA is the hardest of all.

It has a PSYSICAL addiction and PSYSICAL withdrawal despite that docters say that isnt true. I'm a nurse myself and i know darn well that this is just as hard as coming off HEROIN OR OXYCONTIN.

Im not giving up though. At some point it must get better. Tomorrow I'm gonna start quiting again. I have enough Lyrica to last me 4 months. And then it's simply GONE.

Dr. Smith 03-30-2014 10:48 AM

Quote:

Originally Posted by martine1975 (Post 1060214)
My husband suggest that i should take NEURONTIN/GABAPENTIN instead. That is a lot cheaper and he thinks that it works more or less the same way.

Does anyone know more about that?

Hi Martine, welcome.

Yes, that's pretty much true; as a nurse, you can easily verify it with a little goggle time.

Being a newer version, Lyrica is supposedly better tolerated, but if it helped so much, gabapentin may be worth a try. Certainly something to ask/discuss with your doctor.

Others here have made the switch both ways. Search the archives for "gabapentin to lyrica" and/or "lyrica to gabapentin" or just use both without quotes.

Doc

martine1975 03-30-2014 11:36 AM

Thanks for the tip. Ive done a little research and maybe its a good idea to transfer to gabpentin.

But in the end i dont like to be hooked on something and pay 75 dollar per month for the gabapentin just to avoid the withdrawal.

I am very angry at the manufacturer cause nowhere is found that this is even more addictive than benzo's and the withdrawal is just as hard as coming of heroin!

Tonight im gonna take 75 % of my normal dosis of 300 mg. I really wanna go through with this.

I have a whole jar of seroquel that i got of someone who doesnt use it himself. Maybe that will help me with the insomnia?

Dr. Smith 03-30-2014 11:43 AM

Quote:

Originally Posted by martine1975 (Post 1060285)
But in the end i dont like to be hooked on something and pay 75 dollar per month for the gabapentin just to avoid the withdrawal.

I'm sorry, I thought this was because the Lyrica worked well for you, and my meaning was that hopefully the gabapentin will do the same for less cost. I get the anxiety part, but is your Fibro suddenly cured? :Hum:

Doc

martine1975 03-30-2014 12:07 PM

Yeah, thanks to the Lyrica medication my Fibromialgy is totally cured. For a long time I've been promoting Lyrica to other people too. Saying that it was some sort of wonder pill. An all purpose pill and it is.

But the Gabapentin will still cost like 75 dollars a month and that i think is too much so i decided to quit the Lyrica.

I'm all focused on doing so and I'll start a blog to share my findings into detail. I'm a very positive person, but it scares me that im just so positive and happy and not worried because of a pill.

I thought that it was my character, but it seems to be all fake! Weird weird weird.

I'll share my findings cause right now i refuse to believe that my happiness is pill depending.

mrsD 03-30-2014 01:08 PM

I would caution you NOT to use Seroquel that you obtain from someone else. Seroquel is an atypical antipsychotic with a boatload of serious potential long term side effects, including tardive dykinesia, diabetes, and many others.

Here is a link with FDA reports:
http://www.drugcite.com/?q=seroquel
This drug is not for sleeping, it is an antipsychotic for schizophrenia, and bipolar psychosis.

In fact it can make insomnia WORSE in some patients.
Antipsychotics affect dopamine receptors in the brain...and since you mention this already, you don't want more problems with that.

Ravensong 04-10-2014 08:55 PM

weaning off Lyrica
 
Quote:

Originally Posted by martine1975 (Post 1060297)
Yeah, thanks to the Lyrica medication my Fibromialgy is totally cured. For a long time I've been promoting Lyrica to other people too. Saying that it was some sort of wonder pill. An all purpose pill and it is.

But the Gabapentin will still cost like 75 dollars a month and that i think is too much so i decided to quit the Lyrica.

I'm all focused on doing so and I'll start a blog to share my findings into detail. I'm a very positive person, but it scares me that im just so positive and happy and not worried because of a pill.

I thought that it was my character, but it seems to be all fake! Weird weird weird.

I'll share my findings cause right now i refuse to believe that my happiness is pill depending.

This is my first post here. I've been on Lyrica, 50g at night, for 3 years. I was put on it because of fibromyalgia and burning sensation under my skin. During the time in which I've been this drug, the classification was changed to "controlled substance" and I have to go to see my doctor each time I want a prescription renewed. On one occasion, I was without pills for a weekend and it was terrible.

Two weeks ago I decided to withdraw from Lyrica completely. My doctor changed my prescription to 25mg, which I took for a week. Now I am taking 25mg every other day. I have symptoms which are unpleasant, but, so far, manageable. I feel blue and have lost my appetite. I am hoping that it continues to dissipate as I further wean myself off this medication. I am totally turned off by the awful Lyrica commercials and by the physical dependency.

Judy

Kimbasu 04-11-2014 09:20 AM

I too was on Lyrica for 5 years, 300 + mgs a day with little or no side effects. It was very effective at first for fibromyalgia, but never completely got rid of the pain. For the last 6 months I have been working on getting off all meds, why....because at 53 I can't see being on these for the next 30 years, who knows what the long term side effects will be. Anyhow, no problem to cease Aciphex and Cymbalta, but the Lyrica...ugh! I tapered off very slowly as directed, but the last 2 + weeks after last dose was taken have been very challenging. Thanks to this site and many of the posts I have stayed with it and am starting to feel better. The walking, drinking lots of water, and MEDITATION have helped the most. If I had know how physically addicting this medication was I never would have taken it. The returning fibro pain is nothing compared to the withdrawl. I can handle the pain through meditation, the shakes, insomnia, gut contractions and diarrehea, headaches, nausea, fatigue another story. I had none of these issues before the Lyrica.
My advice, if you don't need this stuff...don't take it. If you are getting off, stay the course it does get better. My head is clearer than it has been in years.
peace,

Our Own Universe 04-22-2014 02:31 PM

Quote:

Originally Posted by quitlyricalive (Post 898403)
HELLO EVERYONE!:

I just want to make an update since I'm 99% certain this is the place to come for accurate information on the side effects of discontinuing Lyrica. Please refer back to my prior posts to get a clearer picture of my recovery time, how long I used Lyrica, dosage, tapper period, other drugs I used, why, etc. This is day 74 of no Lyrica, that is, a few days shy of two and a half months. I do not take any other drugs. It's hard to believe I'm speaking from this position, having escaped this far. I remember how long the hours were and how I just wanted the days to rack up, welcome to the summer of 2012.

I'm am chiming in here to tell you all that I am pretty sure that the past few days I have felt more like myself. I still toss and turn at night for a while, and my sleep pattern is really messed up, but there are times when my body actually shuts off I think, this is just in the last couple days. I am also feeling more positive, my memory is improving, I can remember words, I have ideas, articulate stories--I am not as tongue-tied, I am more relaxed. It is very difficult to quantify the Lyrica recovery period because it happens so slowly and sometimes you think it might be getting better and it does not, it's up and down.

Through this period I have suffered from many things I don't normally deal with like: social anxiety, insomnia, depression, etc, lack of feeling. For the past months, all I have been in-touch with is how bad I feel, I have been very self-centered in a way, because how I feel has been as the forefront of my existence, it's terrible.

Lately this is changing a bit and I am able to have feelings beyond how I feel physically and emotionally. I exercise, do not drink, smoke, etc. This Lyrica deal has been the most challenging thing I have every gone through, I hope that it has humbled me and made me a better person.

I am not fully recovered by any means. I have heard from others who are not taking other drugs in place of Lyrica, or drugs that work in similar ways, that recovery time can take 4months. During the past months I have done lots of work on myself, like running, eating healthy, quitting smoking, and it felt like I was getting nowhere for so long, that it wasn't making a difference. I just kept saying to myself that when this passes and my body and mind recover, when the chemistry in my brain resumes normally, I will be able to access all of the strength and integrity that I am currently building but cannot feel.

My love is with all of you who have stopped Lyrica, stay strong, be a steward of your own body. Go easy on yourself as you go through the depressions and anxiety, remember that it is not reality, it is that you have been poisoned, and as illogical as it may seem, this one takes a long time to get over.

My appetite came back after a few weeks, but I was depressed so it was hard eat, but I just did it. I created a rhythm for myself and stuck with it, it became all I had really, I trusted in it, it was kind of amazing, maybe even spiritual as I was so empty, felt so abject, hopeless, and helpless. Listening to music was really helpful and gallons of water each day, and enough can't be said about walking, that's what I did, it became the option, I must have walked hundreds of miles during the past two months.

It will go up and down and you'll think the damage is permanent, but peace comes. Peace comes and this will ultimately unravel.

You may always PM me (if that is possible) if you want more information about my experience or need support with your own.

I'm feeling some happiness folks, regular, old-fashioned, simple, run of the mill feelings of happiness and well being I never thought I would feel again.

Thank you and take good care, I will update again.



I registered just so I could thank you for writing this post. I have tried repeatedly to go off of Lyrica. I'm under a ton of stress as it is, going through a work comp MESS. The part that makes me most uncomfortable is the anxiety. I have to be able to care for a 2 year old and the anxiety and depression are out of control. I can't even leave the house and can't bring myself to do anything at home either. I just lay there and obsess over anything and everything.

buckeye71 05-01-2014 01:43 PM

How I'm Withdrawing
 
I have been following many of the posts about “Lyrica Withdrawal” on NeuroTalk for some time and feel that I should share with others my experiences with this drug. I am 81 and have been using a wheelchair for about eight years due to peripheral neuropathy in both feet. My PM doc prescribed Lyrica for the foot pain. I’d been down the road with tramadol, a SCS, TENS, lidocaine patches, tramadol, and topical applications of various drugs for pain without success.

Lyrica seemed to be the last resort. I started on 50 mg 3x/day in March 2012 with some pain relief and then last year increased to 75 mg 3x/day. Again with some relief for the foot pain, but then the morning headaches (dizziness, brain fog) or whatever one might call it began and has increased in intensity each month this year. In addition, I’ve been having some difficulty with my short-term memory and thinking through simple problems. The head problem was just getting out of control and I realized something needed to be done. My PM doc prescribed hydrocodene and my GP suggested that I add Cymbalta. In both cases, they wanted to add more drugs. They offered no real solutions. This was about the time I finally came to grips with the situation and realized no one could or would help me. It was going to be up to me.

Last month I decided I just needed my life back and more drugs were not the answer. Other Lyrica users that wanted to quit offered some ideas. I would reduce and (hopefully) eliminate Lyrica from my life. I visited with my GP and we decided to cut back 25 mg every two weeks until I reach zero intake or at a level needed for pain and yet could tolerate the side effects of the head aches.

As of today, I am in the 5th week of the schedule taking 50 mg 3x/day. I can report the head situation is improving and the foot pain level has actually remained the same. I have experienced noside effects from the decrease of Lyrica. Hopefully I will be able to continue with the plan and eventually eliminate this dread drug.

With a “clearer head,” I share my experiences.

Suzanne Hofbauer 05-09-2014 11:46 AM

Lyrica Withdrawel
 
Thank you so much for your input about Lyrica.I do not wish this withdrawal on my worst enemy.I really sympathize with you and everyone who are going trough this.I am going trough it right now and my new doctor is trying to get me off this evil drug.Over a course of 3 months I came down from 75mg 3 times a day to 2x a day then 50mg 2x a day then ones a day and now 50mg every other day.The days I do not take it I feel awful.Upset stomach, pounding heart,constant teeth grinding from anxiety.Deep sadness(want to cry all the time). I feel like I let everyone down.I try to explain to people around me how I feel but it's hard for them to understand if they never went though this.If I had any idea this would happen I would never have taken it for my back injury.My back is better after 3 years so time heals
It's so nice to come here and find the support I need to get me through this.

Good luck and God bless

Suzanne

ginnie 05-09-2014 01:46 PM

on medicine withdrawl
 
I hear all of you about how hard it is to get off a medication. I had my own demons regarding this just a few years ago. Just hang in there, eventually you do feel much better. ginnie

Kenneally1 05-26-2014 04:28 PM

I am so happy/relieved I have found this thread. Are panic attacks and severe shaking a common side affect of stopping 150mg's per day of pregabalin ?

Meowkitkat 05-29-2014 11:18 AM

Quote:

Originally Posted by martine1975 (Post 1060297)
Yeah, thanks to the Lyrica medication my Fibromialgy is totally cured. For a long time I've been promoting Lyrica to other people too. Saying that it was some sort of wonder pill. An all purpose pill and it is.

I don't read this thread often but I do peruse it periodically. I know its about Lyrica but really no one caught this? You are claiming that Lyrica cured your Fibromylagia????? That is absolutely insane. There is no cure for this autoimmune disease. If there was I would be first in line for it. I have suffered for over 20 years There would be articles about this and other doctors would know about this. Either you just went into a remission or you never had fibro. There is no cure.

Dr. Smith 05-30-2014 12:35 PM

I caught it, but construed her meaning to be alleviation of symptoms rather than elimination of underlying cause.

Quote:

cure

/kyo͝or/

verb
1. relieve (a person or animal) of the symptoms of a disease or condition.

Doc

buckeye71 06-03-2014 03:15 PM

Up-Date on Withdrawal Plan
 
Thought it might be time for an up-date on my withdrawal plan. I am now in the 10th week and have reduced that “dread drug” from 225mg down to a total of 100mg daily (25mg @ 6am/50mg @2pm/25 mg@ 10pm). I took my last 50mg capsule yesterday and now taking that “dread drug” dissolved in water only. Let me explain the “dissolved in water” that I am doing.

I asked my PM Doc, who I greatly respect, about how to split the 75mg capsules that I had down to 25mg with out another prescription. I was going to open them and try to measure the powder and place the contents back into a gelatin capsule. He said it would not for various reasons. His suggestion was to open it into a measured amount of water and then store in the refrigerator. Here’s what I’m doing to split my 75mg capsules into three liquid 25mgs. In one cup of water, I cut the capsule (it is water-soluble.). 1/3rd cup gives me my needed 25mg and so on. Seems to be working plus it’s saving me prescription money. Any thoughts on my “dissolved in water” practice?

Today is the beginning of my 10th week. Headaches are the still main side effect that just seems to persist and really affect my quality of life. I still have headaches almost continuously, but they may not be quite as severe. The neuropathic foot pain is cranking up some, but I’m hoping I can tolerate the PN pain as the head clears up. I am still not where I want to be with the side effects. I know I must put on my Winston Churchill hat and remember his “we shall fight them on the beaches” speech and carry on for weeks yet.

I’m closer to ending that “dread drug” from my life.

PamelaJune 06-04-2014 04:40 AM

Yes
 
Hi, yes they can be from the body adjusting to no longer having the drug in your body. Hang in there, it will improve :hug:
Quote:

Originally Posted by Kenneally1 (Post 1071742)
I am so happy/relieved I have found this thread. Are panic attacks and severe shaking a common side affect of stopping 150mg's per day of pregabalin ?



All times are GMT -5. The time now is 08:47 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.