Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 08-10-2012, 12:01 AM #41
EyesWideOpen EyesWideOpen is offline
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Ribbon Progress!

Thank you to everyone for sharing your experiences and remedies for the awful withdrawal symptoms! 8/7/12 I experienced my usual hot flashes, queasiness, panic attacks, muscle spasms, depression, exacerbated fibromyalgia pain, exhaustion, etc.. Well that night I decided to try a warm water enema (not for the squeamish)! My mom had been sharing my ordeal with a naturalist she's been seeing, and he asked if I had been 'regular' and if I hadn't that the Lyrica could still be affecting me through my bowels. And wouldn't you know the next day I felt completely drained of energy, but I didn't feel as queasy or the urge to shake all over from the muscle spasms. Today, was my first day to feel 'human' since 7/23! I felt weak most of the day, but the nausea, panic attacks, hot flashes, and depression seemed to be gone! I'm not one to use enemas on a regular basis, but after this breakthrough I would say that I'm really glad I put the idea of it out of my head and just went for it.

I hope everyone else is on the road to recovery and if you're still miserable try an enema! The websites I visited prior to going through with it, list the benefits and ailments that people use enemas to ease.

If you're not quite ready for that, I did find that consuming large quantities of water, having access to an ice pack, moving at a slower pace, and just letting my body move at the onset of spasms seemed to help. Having people to talk to and being around those who have a sincere desire to help make a big difference too! Lastly, Poise brand has come out with products for women going through menopause, I did purchase the cooling wipes to use on your neck, wrists, and chest and they did provide some relief from the hot flashes.

Thanks again for updating your statuses and sharing!
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Old 08-10-2012, 07:16 AM #42
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The enema makes some sense to me. Between water, herbal teas and fresh juiced vegies, I consume about a gallon of fluid each day and eat a very high fiber diet in order to keep things moving properly and avoid toxin build up in the colon. Best wishes.
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Old 08-16-2012, 05:05 PM #43
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i was given lyrica when i was first diagnosed with CRPS
i took it for 1 day,,it knocked me off my feet, i passed out for 1/3 of an hour, and couldnt remember my daughters phone number when i came to.
I was covered in a rash over my chest......Obviously, i didnt go near them again...and please god never will.
I attended a pain clinic/trial, where the doc's told everyone that as we suffer chronic pain..NO pills will make you better,,just maybe numb the pain, if your lucky, untill you take so much, you have to be weaned off anyway,,,the point of the pain clinic trial was to get us to manage our pain without drugs, if possible...with other therepies, i have to say, as far as the leg/foot pain i suffer, i felt a huge relief after having cognetive therepy, hypnotherepy...working with the concious/unconcious mind....Worked for me anyway,,not a miracle, but better than any meds,,,
My message here is to sugest to people,,,'Try Alternative therepies'...what can you lose?!!!
And find a good pain clinic,,which offers these therepies,,also physio/phycho therepy, relaxation, light excersise.....all together, they help you back on your feet.
hugs
ellen
,,,P.S. NOW, AFTER A THUMB FRACTURE I HAVE CRPS IN MY WHOLE RIGHT HAND,,( ONCE YOU GET IT IN ONE EXTREMETY,,IT SPREADDS TO OTHER EXTREMETIES IF INJURYS HAPPEN ) ,,HERE WE GO AGAIN...
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Old 08-17-2012, 03:49 PM #44
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Default Free at last

In the last couple of weeks I have started to feel back at the stage where I was before I took Lyrica. This is nearly 6 weeks after I finished taking it so the doctor was spot on. The symptoms have gradually subsided.

Things I fouind that helped me where making sure I was properly hydrated and drinking lots of water until my urine was clear. Found I was drinking loads by my dr said it was probably because my system was flushing out the bad stuff.

I have also been doing loads of nexck exercises. Muyslce tighness around the neck freferences up the nerves and can cause headaches in the forehead. Loosening up has made a difference for me.....Gone for a few back massages too.

Really focussed on eating good health organic food - even started drinking beetroot juice and carrot juice (if its good enough for Olympic Athletes its good enough for me.

AVOID ALL MEDICATION IF YOU CAN! IT ALL HAS SIDE EFFECTS SO YOU CAN EASILY END UP TAKING ONE DRUG TO COMBAT THE SIDE EFFECTS OF ANOTHER AND SO ON.

Have faith....It will go but it just proves even the smallest dose for 2 weeks can take a long time to get out of the body.

I did say I would post when I felt better - I have and I hope it helps others.

I dont intend coming back to this site again so i wish everyone the very best in recovery.

PS - I thought HappyGoLuckys advice was spot on re anxiety etc. There are some really good self help books and a few good websites thast offer great advice. In summary - patience calm and accewptanbce of symptoms is the key and dont allow yourself to get carried away by frightening thought which bear no reality to them even if they appear to!! They are just thoughts and the symptoms are likely caused by them.

Best of luck

Juicy
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Old 08-18-2012, 12:35 AM #45
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Default Lyrica Withdrawal

I was on Lyrica for 3 years. 75 mg x 2 daily. I took it for my chronic back pain. I started the withdrawal process 10 weeks ago and have been off completely for 10 days. The process has been a nightmare! Extreme nausea, upset stomach, 10lbs+ weight loss (which is not needed), lightheaded, headaches, anxiety, chest pain, nightmares, hot/cold spells with sweating, shakes, no appetite, the list goes on. I've contacted my doctors and consulted pharmacists but they are not offering any solutions. They have denied that Lyrica has withdrawal symptoms, and even suggested maybe I have food poisoning. Oh, I've been poisoned alright, but by something called LYRICA. Their other suggestion was to go back on the medicine, which definitely is not an option.
I can't believe the withdrawal process has taken this long and although the first couple weeks were the worst, it hasn't seemed to improve the past 8 weeks.
I do not regret coming off the medicine but I am seriously hating these withdrawal symptoms. I work and go to school and this is having a debilitating affect on these areas.
Suggestions and support please?
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Old 08-19-2012, 10:31 AM #46
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Quote:
Originally Posted by lyricahelp View Post
I've contacted my doctors and consulted pharmacists but they are not offering any solutions. They have denied that Lyrica has withdrawal symptoms
If Lyrica has no withdrawal symptoms, then why must it be tapered off of? I'm just asking this rhetorically; I think it should be asked of those who claim/state it has no withdrawal symptoms (but in a non-confrontational manner).

Have you tried benedryl or another antihistamine to help alleviate the worst of the symptoms?

Doc
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Oh, the pain... THE PAIN...

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All opinions expressed are my own. For medical advice/opinion, consult your doctor.
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Old 08-19-2012, 10:46 PM #47
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Quote:
Originally Posted by Dr. Smith View Post
If Lyrica has no withdrawal symptoms, then why must it be tapered off of? I'm just asking this rhetorically; I think it should be asked of those who claim/state it has no withdrawal symptoms (but in a non-confrontational manner).

Have you tried benedryl or another antihistamine to help alleviate the worst of the symptoms?

Doc
That's a very good rhetorical question. It's still hard to believe my doctor suggested I had food poisoning and am not actually experiencing withdrawal symptoms. (definitely don't have food poisoning)
I have not tried benedryl or antihistamines, but may be worth a try.
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"Thanks for this!" says:
Dr. Smith (08-20-2012)
Old 08-20-2012, 07:13 PM #48
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Unhappy One step forward and two steps back...

Quote:
Originally Posted by lyricahelp View Post
That's a very good rhetorical question. It's still hard to believe my doctor suggested I had food poisoning and am not actually experiencing withdrawal symptoms. (definitely don't have food poisoning)
I have not tried benedryl or antihistamines, but may be worth a try.
I understand your frustration, I haven't found a medical/pharmalogical website that entails any withdrawal symptoms from Lyrica other than very mild side effects that are purported to last a couple of days if that long!

I am back to feeling crummy; all of the withdrawal symptoms are back, fibro symptoms that were numbed by Lyrica are exacerbated, and now my emotions are hardly controllable. I've gone from being a strong person with fairly tough skin to someone that cries at commercials and feels severely depressed.

This whole ordeal is scary, especially when you don't know what to do or who to turn to for help. I am going to see a neurologist September 19th, first available appt and I fear that they will either 1) say there is no reason for me to feel this way or 2) here's some drugs to help you feel better...

I want to eat better and exercise, but those two tasks are unbearable when you're sick to your stomach and are too weak to leave your home.

I wish everyone the best and hope that we can all find a way out of this very dark and painful point in our life.
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Old 08-21-2012, 08:25 PM #49
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Default Lyrica withdrawal does persist

[QUOTE=EyesWideOpen;907448]I understand your frustration, I haven't found a medical/pharmalogical website that entails any withdrawal symptoms from Lyrica other than very mild side effects that are purported to last a couple of days if that long!

My MD could not believe my throbbing headaches and racing heart and photo sensitivity were due to stopping Lyricabutthere is no other explanation. She tested many other systems and all was good.it had been almost a month and I want to know when I will no longer have a headache. I was only on Lyrica a week and when the headache etc started went back to gabapentin.
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Old 08-22-2012, 08:47 PM #50
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Default Hope on the horizon

Traditional western medicine clearly has not been working as my doctors have provided no support or help in the lyrica withdrawals.
I thought I would try a 180 degree turn with Eastern medicine. I started seeing an acupuncturist for the withdrawal symptoms. Even after a few days I feel slightly better, not cured, but optimistic that these treatments may actually help!
The acupuncturist is going to prescribe me some herbal supplements to aid with the detoxing of lyrica, so hopefully that will help too.
I will keep everyone posted!!
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