Quote:
Originally Posted by rose_thorn98
I am new to this board. Been around the PN board. Officially I do not have a diagnosis. I have had all over body burning pain with parasthesias for four months. I've see serveral neurologists who cannot diagnose me. I've recently been referred to a chronic pain Dr. but of course waitng to be seen in a few months. I am taking Lyrica 75 mg 3 times a day but it is not working anymore. I have had to increase it every few days now last couple of weeks.
Its very difficult living with undiagnosed pain. If I knew what was causing it I would be able to cope better. Any advise appreciated.
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I just wanted to say i have the same exact symptoms you have. I've been to so many doctors that i've lost count. The burning is excruciating and nonstop. I've taken so many different drugs also. Including Lyrica and gabapentin among others. I finally came across a neurologist that had seen this before. He told me it was due to a stomach virus i had the week before it occured. The virus had damaged a nerve in the body and he told me that the nerve could not be found and even if it did it could not be repaired. I really don't know if his diagnosis is correct but there is one thing i DO know. He put me on a drug called lamotrigine. It's originally designed for epileptic patients. But its off label use is for nerve damage. It worked like a charm. My pain went from a 9 to around a 2 or 3. I will be on it the rest of my life but who cares. He had to call my problem neuropathy in order to justify giving me the drug. Please consult your doctor about this drug. It may help. Wishing you all the best.