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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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12-17-2010, 12:48 AM | #1 | ||
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I am new to this board. Been around the PN board. Officially I do not have a diagnosis. I have had all over body burning pain with parasthesias for four months. I've see serveral neurologists who cannot diagnose me. I've recently been referred to a chronic pain Dr. but of course waitng to be seen in a few months. I am taking Lyrica 75 mg 3 times a day but it is not working anymore. I have had to increase it every few days now last couple of weeks.
Its very difficult living with undiagnosed pain. If I knew what was causing it I would be able to cope better. Any advise appreciated. |
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12-17-2010, 04:59 AM | #2 | |||
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Hi ~ I assume you haven't had any back injuries, or any neck injuries like whiplash?? Have you taken any falls?? Have you perhaps fallen on your tailbone? Were you rear-ended in a car wreck?
I'm just picking at straws here, trying to think of something that might cause the pain, but I'm sure everyone has thought of that already. I herniated one disc just by bending over to pick up an empty laundry basket. The next disc herniated while I was a PASSENGER in a car, riding on vacation -- when we got to our destiny, I could barely walk and I had to spend most of the vacation IN BED. Boy, what fun. Being that it was before the internet, I was stupid and let them do 2 open surgeries on me --- and now I'm disabled from it. Anyway all I wanted to say what it doesn't take much to herniate a disc -- if they want to blow, they'll blow!!! Any information you can give us would help. God bless. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability. Often the test of courage is not to die, but to live.. .................................................. ...............Orestes |
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12-17-2010, 11:32 AM | #3 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Hi rose_thorn98,
When you say, "all over body," do you mean different places all over your body at different times, or everyplace all over your body all the time, or what? Someone (I think Mrs. D) recently posted a link to a chart (which I cannot find, of course) that showed specific areas of the body related to specific areas of the nerves coming out of the spine. If that correlates at all to what you're experiencing, it may be something you can take to your neurologist as a possible clue (likewise "picking at straws here"). Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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12-17-2010, 02:17 PM | #4 | |||
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Hey Dr. Smith ~ Good to "see" you here - although I'm sorry you NEED to be here.
So how are you? I wish they'd place the Lost in Space series on my cable. I haven't seen that in 30 years. i enjoyed it. Just wanted to say "hi" --- Take care. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability. Often the test of courage is not to die, but to live.. .................................................. ...............Orestes |
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12-17-2010, 06:53 PM | #5 | ||
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Quote:
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12-21-2010, 01:16 AM | #6 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Quote:
I'm sorry any of us have to be on any of these boards! But better places like this than trying to go it alone... Google says episodes of LOST IN SPACE can be found on Hulu.com Backatya, Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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12-22-2010, 07:56 AM | #7 | |||
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Senior Member
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why not blame it on Fibromyalgia ?? Thats what the drs do.
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Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile |
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01-08-2011, 02:00 PM | #8 | ||
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01-11-2011, 01:59 PM | #9 | ||
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Elder
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I have a friend in Missouri going through H___. because nobody can find the source of pain. I am so sorry you have to go through it too. Just thought I would send a hello your wayginnie
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01-13-2011, 09:15 PM | #10 | ||
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Junior Member
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Hi Rose,
So sorry you are suffering so. I, too, have the exact symptoms you're describing (for about 2 years now) .. burning pain all over my body. The neurologists I've seen have concluded that I have small fiber neuropathy .. although who really knows. Just wanted to let you know that there's someone else here who knows the hell you're going through. Hoping you can get some relief from all of your pain soon. Miriam |
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