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-   -   Lack of support (https://www.neurotalk.org/chronic-pain/145900-lack-support.html)

ger715 12-02-2014 11:11 PM

Quote:

Originally Posted by 25yrsnstillfighting (Post 1110623)
I am here if you want to talk or chat about anything. We are in the same boat. You are not alone. People do not want to hear our agony and suffering as they have enough of their own and they don't understand. Its all a me, myself and I world now unfortunately. Me well I am not one of them. If I can help I will. I am here by any means of communication you'd like as I have discovered the Precious Present.


Hi There,
Just thinking about your friend's offer to take you shopping several days later. Of course that must really be a different hurt; one they themselves can understand.

There are several places you can order over the internet (Walgreens often for me) that deliver orders free over $25.00 and my delivery arrives in only a few days. Quicker than relying on unreliable friends. Right???


Gerry

EnglishDave 12-08-2014 08:43 PM

Here For Anyone
 
In 2012 I finally admitted to my GP that I was so depressed from fighting chronic pain for over 20 years, cluster headaches for 20, coronary ischaemia for 6 and multiple other physical and mental health issues that I was on the verge of ending it.
He sent me to a counsellor who helped keep me going - somewhat - until 8 May 2013. At 8am on that day I was told I had diabetes. 2 hours later I was diagnosed with rectal cancer. Devastated, I called my counsellor for support and he told me he wasn't equipped to offer that level of support. Months of trust and treatment went down the drain.
The next call I made changed everything. It was to my daughter to tell her my test results but she had the most wonderful news of her own - she was expecting, and I had a reason to fight on.
Yesterday (8th) I was taken out for the first time in months to my Granddaughter's first birthday party!
No matter how bad things get, something great may be just around the corne

Diandra 12-08-2014 10:09 PM

Quote:

Originally Posted by EnglishDave (Post 1111933)
In 2012 I finally admitted to my GP that I was so depressed from fighting chronic pain for over 20 years, cluster headaches for 20, coronary ischaemia for 6 and multiple other physical and mental health issues that I was on the verge of ending it.
He sent me to a counsellor who helped keep me going - somewhat - until 8 May 2013. At 8am on that day I was told I had diabetes. 2 hours later I was diagnosed with rectal cancer. Devastated, I called my counsellor for support and he told me he wasn't equipped to offer that level of support. Months of trust and treatment went down the drain.
The next call I made changed everything. It was to my daughter to tell her my test results but she had the most wonderful news of her own - she was expecting, and I had a reason to fight on.
Yesterday (8th) I was taken out for the first time in months to my Granddaughter's first birthday party!
No matter how bad things get, something great may be just around the corne


Wow Dave....you are the epitome of making lemonade out of lemons! Way to look on the bright side. You are an inspiration to me. Thanks.

Hockey 12-09-2014 07:53 AM

Quote:

Originally Posted by pooh_ac (Post 749565)
I have stopped talking about my pain unless someone notices my stide is off, more limping etc. I have also been asking the CRNA about doing some trigger point injections or my nerve blocks. He is just not comfortable with "shooting" me it seems. My spouse seems to think if I would just "do more" makes me want to screem at him. The other night he was having muscle spasams in his back and was fussing about it. Told him welcome to my world take your meds and go do something. He slept on the couch that night! He was very suportive with my intial injury (in 1998) but does not recall or care about things that make my pain worse.

Pooh - I could have written this. I suffered catastrophic injuries in an MVA. I hide my pain, as much as possible. If my husband notices a wince, he tells me the pain is my fault because I don't do anything. OMG!!!! Couldn't be the spinal cord damage, twisted hips, torn to shred shoulders, etc..., It's bad enough to be in chronic pain - but to be BLAMED for it!!!!!!!!!!!!!!

I've never been a complainer or a slacker. I worked my butt off to beat my devastating prognosis and regain what function I've got. I make dinner, do stuff for our child, etc..., etc... all in horrendous pain.

My PT is always telling me I'm amazing and she doesn't know how I do it. My husband tells me I'm lazy and self-indulgent. This, from a man who treats hangnail removal like it was arm amputation, without anesthesia.

So I just shut my mouth, fake a smile and soldier on. It's lonely inside our little pain cocoons, isn't it?

Hockey 12-09-2014 07:58 AM

Quote:

Originally Posted by EnglishDave (Post 1111933)
In 2012 I finally admitted to my GP that I was so depressed from fighting chronic pain for over 20 years, cluster headaches for 20, coronary ischaemia for 6 and multiple other physical and mental health issues that I was on the verge of ending it.
He sent me to a counsellor who helped keep me going - somewhat - until 8 May 2013. At 8am on that day I was told I had diabetes. 2 hours later I was diagnosed with rectal cancer. Devastated, I called my counsellor for support and he told me he wasn't equipped to offer that level of support. Months of trust and treatment went down the drain.
The next call I made changed everything. It was to my daughter to tell her my test results but she had the most wonderful news of her own - she was expecting, and I had a reason to fight on.
Yesterday (8th) I was taken out for the first time in months to my Granddaughter's first birthday party!
No matter how bad things get, something great may be just around the corne

Congratulations on being a grandpa.
I agree with you, the way to keep going is to look beyond our suffering. We have to find external reasons to keep up the fight. There are a lot of great things happening out there. As bunged up as I am, I know that there are people who need me.

EnglishDave 12-09-2014 06:37 PM

Diandra, Hockey and Everyone
 
Thanks for your kind words, I signed on here not for sympathy, but to reach others and learn/exchange. I cannot talk to family, and have no trust in Counsellors. As stated, one abandoned me at my darkest hour and another triggered anxiety attacks I had been successfully supressing for years just to prove they were still there.
If anyone wants to bounce anything off me - even just moan - feel free.

PamelaJune 12-14-2014 07:49 PM

English Dave
 
You have like so many of us here on NT the right spirit. We all try so hard to get on with our daily lives and go about our days trying so hard to lessen the burden on our loved ones. Sometimes I think we try so hard they forget what got us here in the first place, we didn't consciously choose to be this way, it is something that has happened to us and if we could, we would immediately turn back the hands of time and change whatever action it was we took at the time that eventually lead to us becoming a victim to chronic pain.

To have the wonderful news of a baby joining your family is surely a sign life can go on, I'm sure that baby will bring you many moments of pure joy. Stay strong, I can empathise with you in so many ways, I've suffered chronic pain for well over 30 years, I'm fed up with it to my eye teeth, I'm over the side looks and rolled eyes from family members who should know better. Big hug to you :hug:

ger715 12-16-2014 01:19 AM

Pam,
 
Quote:

Originally Posted by PamelaJune (Post 1112923)
You have like so many of us here on NT the right spirit. We all try so hard to get on with our daily lives and go about our days trying so hard to lessen the burden on our loved ones. Sometimes I think we try so hard they forget what got us here in the first place, we didn't consciously choose to be this way, it is something that has happened to us and if we could, we would immediately turn back the hands of time and change whatever action it was we took at the time that eventually lead to us becoming a victim to chronic pain.

To have the wonderful news of a baby joining your family is surely a sign life can go on, I'm sure that baby will bring you many moments of pure joy. Stay strong, I can empathise with you in so many ways, I've suffered chronic pain for well over 30 years, I'm fed up with it to my eye teeth, I'm over the side looks and rolled eyes from family members who should know better. Big hug to you :hug:


Are you still going to have the injection/procedure done on Wed., Dec. 17th. You have been in extra special thoughts and prayers.

Gerry

ger715 12-16-2014 01:28 AM

Dave,
 
Quote:

Originally Posted by EnglishDave (Post 1111933)
In 2012 I finally admitted to my GP that I was so depressed from fighting chronic pain for over 20 years, cluster headaches for 20, coronary ischaemia for 6 and multiple other physical and mental health issues that I was on the verge of ending it.
He sent me to a counsellor who helped keep me going - somewhat - until 8 May 2013. At 8am on that day I was told I had diabetes. 2 hours later I was diagnosed with rectal cancer. Devastated, I called my counsellor for support and he told me he wasn't equipped to offer that level of support. Months of trust and treatment went down the drain.
The next call I made changed everything. It was to my daughter to tell her my test results but she had the most wonderful news of her own - she was expecting, and I had a reason to fight on.
Yesterday (8th) I was taken out for the first time in months to my Granddaughter's first birthday party!
No matter how bad things get, something great may be just around the corne


It sounded like your world was collapsing; and there is always something around the corner.
FYI; I was diagnosed with rectal cancer Sept., 2012. Since I was already in the hospital; Had surgery the day after diagnosis. As often said/written "One Day at a Time"!!!!


Gerry

PamelaJune 12-17-2014 08:22 AM

Yep
 
Hi Gerry, yes I'm in hospital, had the procedures done this afternoon and they decided I needed to stay overnight. I am completely numb from the groin, pelvis to the waist and my legs don't hold to the ground well, giving way unexpectedly. Fingers crossed this will be successful. Thanks for asking :hug:

Quote:

Originally Posted by ger715 (Post 1113137)
Are you still going to have the injection/procedure done on Wed., Dec. 17th. You have been in extra special thoughts and prayers.

Gerry



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