Chronic Pain Whatever the cause, support for managing long term or intractable pain.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-06-2011, 10:28 AM #12
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

Quote:
Originally Posted by Leesa View Post
My definition of support is just try to be understanding. Realize that I cannot do the things I used to do ~
That's good, even if a little imprecise. You don't think normies try to do that? Understanding us/how we feel is a little (little?) like trying to describe a sunset to the blind (and I've actually tried that). Do you explain to folks what you want/need/expect, or are they just supposed to know?

I don't ask any of these questions sarcastically. I ask them rhetorically to elicit some dialogue/introspection.

Something I've noticed is that when someone here on NT says/suggests something, it's recieved quite differently than when suggested by a normie, even if essentially the same. Have we become prejudiced/jaded?

Quote:
and PLEASE do not offer suggestions as to treatments as I've had them ALL done. if YOU have heard of them, so have I ~ I don't live under a rock.
I get that, but I also think it comes off as a little arrogant. I don't live under a rock either, and I try to stay current with my situation, but I sure don't know everything, and I don't really care where/from whom some suggestion comes from if it's something I can use or pass along. E.g., I'd never heard of that scrambler therapy before I posted about it the other day, and if it weren't for a normie who knew somebody, I'd have never known about/found my first CP support group many years ago.

Quote:
And unless you REALLY want to know how we are, don't ask. LOL You might get a long drawn-out diatribe of every painful spot on our body!
Yeah, I went through that phase, and watched as friends & family deserted me like rats from a sinking ship. I learned from that, and things (relationships) are much better now - even if I'm not.

My main point is, normies may not understand and never will, but it's up to us to educate them - as best we can, and as best they can understand - in order to give us the support we need/want. I have some books on disability etiquette; they were written to educate normies how to act/interact with disabled persons without offending. Something like this one:
http://www.unitedspinal.org/pdf/DisabilityEtiquette.pdf

Yet the only thing I've seen for chronic pain is things like this:
http://www.cafepress.com/+pain_warning_posters,95421429

Maybe we need to put some compassionate thought into something better; something to educate normies about supporting us the way we need, if that's possible. [As the Japanese saying goes: Fix the problem (in this case, the "support gap") - not the blame.]

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.

Last edited by Dr. Smith; 03-06-2011 at 06:01 PM. Reason: Added [final thought]
Dr. Smith is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lack of Vit D linked to Strokes Koala77 Vitamins, Nutrients, Herbs and Supplements 3 11-21-2009 08:51 AM
Lack of Sex OhKay Multiple Sclerosis 12 08-02-2009 07:39 PM
lack of iron and PN amit Peripheral Neuropathy 2 01-12-2009 10:13 PM
LDN and lack of benefits? barb02 Multiple Sclerosis 16 09-11-2008 08:51 PM
Lack of Qualified Child Psychiatrists & Lack of Research OneMoreTime Parents with Bipolar Children 1 11-19-2007 12:30 PM


All times are GMT -5. The time now is 04:15 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.