Chronic Pain Whatever the cause, support for managing long term or intractable pain.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-12-2011, 03:38 PM #1
ridehard2208's Avatar
ridehard2208 ridehard2208 is offline
Junior Member
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
ridehard2208 ridehard2208 is offline
Junior Member
ridehard2208's Avatar
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
Default Need help with pain control

Hey all, I am a 55 yr. old male and no stranger to chronic pain, However a newbie when it comes to pain meds and treatment. I have complex sleep apnea, severe arthritis, and peripheral polyneuropathy.

I take Tramadol 200mg a day, Gabapentin 1800mg a day and climbing, Diflunisal 1000mg a day, and Citalopram Hydrobromide 40mg a day.

I have had Arthritis pain since 1976 and pain from PN from about 1978, then severe pain 1998 and officially DX with PN 2002 and told to take vitamin B; again 2008 confirmed PN DX with note Tech error due to excessive soft tissue making it hard to find landmarks to explain no response from both sural nerves. This year left knee replaced total and DX both sural nerves dead due to no response on NCV & EMG. Told by Dr. this year permently and totally disabled and started on meds noted above, they never took pain away but slightly took edge off now the pain is becoming more severe some days a little more than I can deal with, giving me negative thoughts.

Symptoms include joint pain, stabbing/ripping pain, burning pain with sensitivity to touch, feet feel broken lately without being on them much, calves feel like going to explode, pain up both thighs in back, lower back pain, pain in middle of shoulder blades, and now tongue sore.

These symptoms don’t deal with pain which are loss of coordination, feeling tired daily, grogginess and hard to focus, phasing out, muscle weakness, bladder and stomach problems, blurred vision, tripping over my own feet, loss of sleep, and not able to stand or walk for more than 20 mins. Anyway if anybody has any ideas, thoughts, advice, or experience, all comments welcome.

Thanks!
__________________

.

.
Rich!!



PRIDE OF THE SETTING SUN; LAND OR SEA WE LIVE TO BE FREE
ridehard2208 is offline   Reply With QuoteReply With Quote

advertisement
Old 07-17-2011, 03:05 PM #2
razzle51's Avatar
razzle51 razzle51 is offline
Senior Member
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
razzle51 razzle51 is offline
Senior Member
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
Default

Have you tried celebrex. none of those meds you mentioned are for arthi . you need something for inflamation
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (07-20-2011)
Old 07-17-2011, 03:26 PM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

excuse me... but diflunisal (brand name Dolobid) is an NSAID but not commonly used. It was initially detailed mostly to dentists. It also has anti-inflammatory effects like other NSAIDs.

But it has one useful trait other lack and that is it helps with gout.

http://www.drugs.com/pro/diflunisal.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (07-20-2011)
Old 07-19-2011, 09:17 AM #4
Leesa's Avatar
Leesa Leesa is offline
Senior Member
 
Join Date: Jan 2010
Location: Michigan
Posts: 1,424
10 yr Member
Leesa Leesa is offline
Senior Member
Leesa's Avatar
 
Join Date: Jan 2010
Location: Michigan
Posts: 1,424
10 yr Member
Default

Hi ~ I'm so sorry you're suffering so. I too was in severe pain for years because doctors couldn't find meds that would ease it. I'm told I am a hard to treat patient, as it takes much more than normal for me to "feel" the meds. I've awoke on the surgical table several times -- they have to give me enough anesthesia for a very large man!

Anyway -- I learned from a doctor online that the combination of Fentanyl Patch and Methadone is great for treating "hard to treat" patients. I asked my doc if we could try it, and it does work!!! Of course i'm not pain-free -- I never will be -- but I feel better than I have in years!!!

Perhaps this combo would work for you too. It's just a thought. I wish you the very best ~ take care & never give up or stop fighting for pain relief. God bless. Hugs, Lee
__________________
recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
Leesa is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (07-20-2011)
Old 07-19-2011, 09:02 PM #5
aussiemom's Avatar
aussiemom aussiemom is offline
Member
 
Join Date: Feb 2008
Location: Florida
Posts: 556
15 yr Member
aussiemom aussiemom is offline
Member
aussiemom's Avatar
 
Join Date: Feb 2008
Location: Florida
Posts: 556
15 yr Member
Default

You might want to see a pain management doc. This is the only thing they do, and may have a trick or two up their sleve.
__________________
Barb
aussiemom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ridehard2208 (07-20-2011)
Old 07-20-2011, 09:17 PM #6
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Default Pain control

Yes, see a pain specialist.
My new one was the first to physically examine me and instead of the usual arthritis diagnosis, which I'd been getting for years, he said my severe headaches were caused by very tight neck and back muscles.
Anyway, remedial massage confirmed that diagnosis, and I am now free of this problem by taking magnesium oil daily.
I was on Tramadol too and while my dosage was much reduced because of the effects of the Mg oil, I was still taking 2 or 3 a day, and sometimes a slow release one at night.
I read an article on headaches and medication, saying that the meds may be worse than the headache.
I stopped the Tramadol and since then haven't needed it on a daily basis, just one 50g about 3 times a week.
So it seems that the Tramadol was actually causing my weird head pains.
I had been warned about this by my wife, but reasoned that the small dosage wouldn't have had that effect. WRONG!
Taking more just didn't help either.
So...get a new examination, treat your muscles and soft tissues with drug free options, and consider the implications of ever increasing drugs.
Pain control is a multi-level activity, and must include life style, diet, fitness, attitude and of course physical injuries.
Opinions will vary too so it may take quite a bit of perseverance to sort it out, if that can be done.
Take ownership in the treatments and question everything.
__________________
See my mosaics
.

.
Peter B is offline   Reply With QuoteReply With Quote
Old 07-20-2011, 09:21 PM #7
ridehard2208's Avatar
ridehard2208 ridehard2208 is offline
Junior Member
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
ridehard2208 ridehard2208 is offline
Junior Member
ridehard2208's Avatar
 
Join Date: May 2011
Location: Blacksburg, Virginia
Posts: 55
10 yr Member
Default thanks for your ideas and responses

Hey All thanks for your responses and ideas. Sinse my post I have increases the Gabapentin to 2700 mg a day and gone from the Tramadol to Tylenol 3 to Vicodin and still taking the other two drugs as before. I forgot to tell the reason my Orthro put me on Difflunsal was because I have Edema on both shins the more on my feet the worse it gets after 30 mins on my feet can push a demple in both shins about 1/2 inch deep and stays about 30 to 45 mins. The burning pain with sensitivity to touch from top of toes to my shoulders and sometimes up the left side of my face. A.nd now the chrushing pain that I've had in my feet for about 10 years has moved to both lower legs to include the knees. Also the stabbing ripping pain, Bee stings, leg twiching, leg weakness, and back and joint pain still getting worse. Both sural nerves are completely dead. Anyway I am going to keep trying and thru your suggestions give me ammo to take to Dr. visits.
Many Thanks!
__________________

.

.
Rich!!



PRIDE OF THE SETTING SUN; LAND OR SEA WE LIVE TO BE FREE
ridehard2208 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Pain Control Dr's, vs Neurologist, etc. AintSoBad Reflex Sympathetic Dystrophy (RSD and CRPS) 11 04-17-2015 03:09 PM
Medications You Use To Control Your Pain JoshuaY46012 Peripheral Neuropathy 26 12-20-2009 01:48 AM
Undiagnosed/ CIDP, PN? Pain is out of control! jess18 Peripheral Neuropathy 7 09-14-2009 10:26 AM
Compression Stockings - Anyone use for PN pain control? kreink Peripheral Neuropathy 3 04-03-2009 04:12 AM
Pain control after surgery amybee Thoracic Outlet Syndrome 3 08-25-2008 02:32 AM


All times are GMT -5. The time now is 11:32 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.