I have been in severe pain for over five months now. I was diagnosed with fibromyalgia many many years ago. I'm 46 now and have had it since about the age of 12. Most of my pain is in the upper shoulders and neck area. About six years ago, the pain did go down into my legs and feet and I was unable to walk for a couple of years. Five months ago I woke from a sound sleep only to find that my left shoulder was in severe spasm and I could not move my left arm or turn my head. My doctors thought this was due to slip discs in my neck, (C6, C7) and with a nerve root pressing on one of the discs. I tried stretching exercises and working out a spinal center only to deteriorate and find myself homebound with VNA services. My daughter also ended up on crutches with severe leg pain and went to an orthopedic who suggested that she too has fibromyalgia. I'm wondering now if this isn't my current problem.

My doctor started me on Neurontin this morning. They told me it would take 2 to 3 weeks to begin working. After taking my first dose an hour later the pain began to dissipate for the first time. I was shocked. I know this was not in my mind because I didn't even expect it. As you can imagine I was ecstatic! To feel relief after so long was wonderful. I took my second dose about an hour ago, but now I sit here in the same pain and nothing has happened. Can anyone tell me what stopped the pain and why it has come back??

I am also being sent for a brain MRI to be tested for MS. I was supposed to go tonight but that first dose of Neurontin made me very sleepy. I simply couldn't walk to get to the car. Now I sit here wide-awake and in pain once again. I have no idea what's happening to me. All I know is that I was in the emergency room last night, given a very high dose of dilaudid in addition to the MS Contin and Vicodin I'm already taking. I'm going out of my mind with muscle spasms and what feels like my skin contracting and burning.
If anyone has any suggestions or answers for me please leave me a message or post. I so appreciate it! Thanks.