NeuroTalk Support Groups - Dealing with chronic pain... how do you cope?

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"Dealing with chronic pain... how do you cope?"

Very good narcotics!!

Anne

Are you feeling any better today, with the jerking and things.

I am hoping things are better. Not sure but are you maybe also
having seizures. Or do they know.

I am dealing with a form of chronic pain, its in my elbows, and my
neck. has to do with a fall or two I've had, that resulted in post
concussion syndrome, and now I have chronic pain, I have gotten
rid of the other problems but still have the problem of the neck
pain that I can't seem to get to go away completely, and I will
always have problems with my elbows that I've had dislocations
in, thanks to falls.

Donna

Hey KateLynn, When I realized I had a chronic painful condition with no known cure (trigeminal neuropathic pain) I considered my husband my caregiver. We talk about what he sees, how he thinks I'm doing, whether he thinks I can complete tasks. I tell him if I'm having a really bad day so he can buffer things for me. So - find somebody who can stand to see your pain (some of my family members are in denial) and ask them to help you. Another life lesson I had to learn: be gracious in receiving. I was really good at giving but I felt that I would be "pitiful" if I had to ask for help. One other thing: Journal your daily life. When you're up to it, review it and see if maybe something triggers your pain. It'll also help you understand that you CAN make it through a day of hell.

Hope this helps.
Janet from Tennessee

Narcotics, caffeine and nicotine - then praying - then cussing-
Works for me!

Cronic Pain- The Mind Game

Quote:

Originally Posted by KateLynne (Post 84724)

when you first realized that you had chronic pain and that you would have it all your life, how did you deal with it? How did you learn to accept it and go on? I am having a real hard time accepting it, and learning to go on- learning to do more in life and to not get caught up in just my pain. :( :(

I could really use your thoughts and experiences. Thanks. :wink:

-KateLynne

KateLynne,

I've got RSD-CRPS since 1988. My story is after you travel your way thru the pain doc's, the meds, the depression, your left with yourself. It's such a mind game, how will I feel in the morning, can I go to a party this weekend, how many people have I let down.. YOU haven't, this is why I'm on this forum. You have to recreate yourself, stop beating your body up from things you can't control. Take one day, one hour, one minute at ah time. I have found out thru this group and people I've met here, I've wasted so much of my life it makes me sick The years lost, years on meds, things when I look at the photo albums I'm not there. Don't let this happen to you, fight for everyday you have. Has far as people in your life they love you for whats inside, not the pain...

:grouphug:s, many hugs.................

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Keep on Trucking, if you want to whine I have big shoulders and plenty of time... So write on, let it flow. And go give your hubby a big kiss:hug:
thinkin of ya..........

"Dealing with chronic pain... how do you cope?"

One day at a time...

With meds, massage and plenty of rest...
:)
~Jaime~

Quote:

Originally Posted by sadlyme (Post 90901)

I am the same way, I have not been in pictures for years. I take them or I am not there.
I totally am with what sadly is saying.....we are great here....if I do say so myself.:D If you need shoulders.....we got plenty!

Thank you for the support! You are too sweet! :grouphug:
I am having a rough time lately, I feel like my reflex sympathetic dystrophy is getting worse and worse. :mad:
I have been majorly misunderstood by a friend who thinks that I should not take any medication for pain... and I am so upset over the situation.
I am on narcotics, antidepressants and anticonvulsants, all to help with the pain. I know that Lyrica is working for me, and it makes me hope that with an increased dose I might get more pain relief.
It has been pure hell for me lately, and I am in such severe pain. I try and not show it to anyone around me, but it is so hard to live with all this pain.
Does anyone have ideas on explaining to a friend why you take meds when you have chronic pain?
Thank you so much everybody for the hugs and kind kind words! Idealist~ hey that sounds like a great idea about setting goals. I will have to set teeny goals because of my pain and limitations.
Thank you so much, everyone. I really was helped. And thank you SO much, sadlyme and Janet and Idealist. You all were a great help and I can't thank you enough. I can use your prayers and support right now, and can you please give me an idea on how to explain to my friend??
Thanks!!!!!!!!! :grouphug:

Quote:

Originally Posted by nancy-h (Post 84856)

Dear KateLynn;

Alcoholics Anonymous did the world a great thing when they coined the phrase, "One day at a time." If I wanted to give myself a super-duper panic attack right now, I would give up that phrase and start dwelling on living the rest of my life, my entire life, my whole life, my whole, entire life in pain. (Ok, I've gotten a pretty good start on a panic attack right now - LOL) But it's true, you must not think about anything but the here and now and do your best to be positive every day. If you find that hard, then there are hundreds of people here who are willing to help you. Just log on and you will get the positive side of life from folks who should be down but are just the opposite. That's what this forum is for - to share ideas, thoughts, concerns and to help each other.

Also, try to keep a regular schedule, try not to sleep all day, etc. Keep as busy as you can, some days are better than others as said by my good friend, Billie.
It's hard, nobody will tell you it's not but as the years pass, you get better at handling it. And, you might have to set limits for yourself and make sure others know them. For example, I don't travel well and my family all understand it. So, if I am unable to attend something, they will know why.

I blamed myself for my pain - like an idiot I don't know why. I have idiopathic PN and I'm not a diabetic so I felt I must have done something else to "get it". Dumb.

Wish I had more to tell you but right now, that's all I can come up with.

Best of Luck,
Nancy-H

A schedule sounds like a good idea, except I think on my real bad pain days I would have to change it a little bit.
Thank you! :hug: