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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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03-24-2015, 11:31 AM | #11 | ||
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All the test results (CT, MRI, bloodwork) show there is no cause for the pain which almost makes it harder to accept. I'm one who wants to know WHY? And I guess I'm a little impatient. I've been hurting for 3 months, but I've read some threads here where people have suffered for years. I don't know how they can tolerate it. |
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"Thanks for this!" says: | EnglishDave (03-24-2015), PamelaJune (01-02-2016) |
03-24-2015, 01:28 PM | #12 | |||
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Magnate
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Visiting a Psychotherapist is a very good idea - anything that helps the mind with the coping mechanism is worth trying - many of us use Meditation daily to strengthen our minds to help us cope. It is frustrating when tests show there seems to be no cause. I know you saw an Oral Surgeon - does that mean there is no possibility this could have a dental root (no pun)? I hate to tell you this, but I am 19 years into my suffering. The arterial knot showing on my MRI will never go away. You COULD have an artery pressing on the Trigeminal Nerve, many times they don't show on MRI's. Good luck finding your Therapist, you may find 'acceptance' is the first part of learning how to cope. If you are rx'd AD meds, don't automatically turn your nose up at them, few people know the severity of this pain. Do all you can, and try all the meds and treatments to get back some semblance of a normal life. Dave. |
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04-15-2015, 10:55 AM | #13 | ||
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04-15-2015, 06:07 PM | #14 | ||
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[QUOTE=BeckyandDan;974101]Hi, I am new here... don't know format, etc. but here goes... Have had unexplained face pain for years (10). Have seen several doctors, dentists and neurologists. Recently finally diagnosed atypical face pain.... great.... still pretty much unconclusive. Through the years have been on many, many meds with no releif just all the side effects. Am done with the meds but desperately want pain to be gone. Next week I see a team of doctors/specialist to see if I am a candidate for Motor Cortex Stimulation. This scares me. There's so much to go wrong. Has anyone had any experience with this for atypical face pain. If so, what do I need to know about it; what kind of questions should I be asking at my appointments; and finally, how do we determine "my" pain is really bad enough to go through this. As with everything, some days are much worse than others and on those bad days my answer is a definate yes... Please help me with questions and answers as time gets near I am getting more and more nervous, but ready for the pain to be history. Thanks. [/QUOTE
I have the same problem and the same failures. What does that treatment consist of? Have you tried medical marijuana or Botox? That is what I am exploring next. Good luck. |
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04-15-2015, 08:20 PM | #15 | ||
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"Thanks for this!" says: | EnglishDave (04-16-2015) |
05-01-2015, 09:20 PM | #16 | ||
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I have that diagnosis, but it's just the RSD spread in my head and face, eyes too. I use nasal ketamine and 4% lidocaine nasal spray and after a couple months it started controlling it very good. I have tried stellates and speneopaletine (sp?) blocks and cervical faucet blocks. The cervical block helped for a little while which tells me that is what is mediating my pain in my head. It is SIP. I am thinking of doing laser surgery to clean up my spurring and stenosis in my neck to see if it would help knock the burning down. My back, face and head are continuously burning since my foot surgery in 2011.
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"Thanks for this!" says: | EnglishDave (05-02-2015) |
08-10-2015, 01:25 AM | #17 | ||
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I am curious as to if the medical marijuana had any effect. I have atypical facial pain and the medications are not helping. Thanks, Bradpete3 |
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12-21-2015, 02:53 PM | #18 | ||
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"Thanks for this!" says: | PamelaJune (01-02-2016) |
12-21-2015, 06:19 PM | #19 | |||
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Hi kmathias,
I am sorry you have been suffering so for 2 years. Was the cause the same as the Poster you quoted - Dental work? If so, I would advise you to repost over on our Dental Forum: http://neurotalk.psychcentral.com/forum89.html where our welcoming and knowledgeable Members will make themselves available to you. If it comes from other issues, my story is pretty much detailed above where it comes down to Neuropathic Facial Pain, TN and Paresthesia. I am always willing to discuss anything you feel may be helpful. Dave.
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You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers To the shapes we now possess. The Sage - Emerson, Lake & Palmer. |
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"Thanks for this!" says: | PamelaJune (01-02-2016) |
12-31-2015, 03:10 AM | #20 | ||
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"Thanks for this!" says: | PamelaJune (01-02-2016) |
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