Chronic Pain Whatever the cause, support for managing long term or intractable pain.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-31-2015, 03:10 AM #18
Wanganui Wanganui is offline
Junior Member
 
Join Date: Dec 2015
Posts: 7
8 yr Member
Wanganui Wanganui is offline
Junior Member
 
Join Date: Dec 2015
Posts: 7
8 yr Member
Default

Quote:
Originally Posted by EnglishDave View Post
Hi Olraalil,
I'm sorry you have this terrible problem and confirmed dx, have they told you what the cause is? My TN is caused by an arterial knot around the nerve before it branches, but I am one of the unlucky few who has chronic Neuropathic Facial Pain and Parasthesia as well.
I suffered an extreme allergic reaction to Gabapentin, so - for my whole body Neurological Hypersensitivity - I have Lidocaine Infusions and take oral Ketamine. They work wonders for all my Neurological pain (except a new, unrelated type). There are also Lidocaine and Ketamine injections available. These have far fewer side-effects than most meds, Ketamine is even shown to be a mood elevator.
There is no way of knowing how long you will have this without a cause, but being Depressed - though natural - is making things worse. Have you spoken to your GP about your mood? If not, I urge you to do so. Depression rarely goes away without help and it insidiously feeds off our pain.
Over time - with acceptance - you do learn to 'cope' with daily Chronic Pain. It is hard, but there are good days and bright spots which you learn to appreciate more, instead of taking for granted. All the time remember circumstances may change tomorrow.
Any time you feel like talking, I'm here.

Dave.
Hi Dave,I hope you get to see this message seeing you posted quite awhile ago! Anyway I too am from the UK,Oxford,and I have had facial pain for 14 years.I don't have the striking jolts but constant pain with painful stabs .Like you I have exhausted all the systemic medications as I am hyper sensitive to them.I am very interested in your pain management regime- are you under a pain management clinic ? I have an appointment in Feb to attend one here in Oxford.My doctor is nonplused by my case and I am being my own advocate hence my interest in your treatment.I feel very alone in this nightmare but keep searching for an answer......you may just be it Dave!Thanks!Happy New Year! Wanganui
Wanganui is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (01-02-2016)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Atypical Trigeminal Nerve Pain mlittlem Trigeminal Neuralgia 15 07-22-2013 05:46 PM
relief from constant atypical pain? acupuncture? ipreferdosequis Trigeminal Neuralgia 4 10-08-2011 08:55 PM
6 months post MVD - typical and atypical pain Rae of Hope Trigeminal Neuralgia 0 04-25-2011 02:21 PM
Atypical Face pain and teeth bw02646 Trigeminal Neuralgia 11 08-31-2010 10:11 AM
trigeminal neuropathy/atypical face pain - scared!!! bw02646 Trigeminal Neuralgia 1 09-20-2009 09:44 AM


All times are GMT -5. The time now is 08:55 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.