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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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08-17-2013, 06:30 PM | #1 | ||
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Elder
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I have something else to add along with Dr.Smiths comments. You are close to Columbia University Medical center, relatively... I went there for a trial study in the 80's for an unrelated condition. This being a teaching hospital and recommended to me by Mayo clinic was wonderful, for all the years I was there.
Maybe there is a hospital advocacy person, who could get you into see either a neurologist, or what I go see a physiatrist. This particular woman specializes in pain first, and then treats you as a WHOLE person not just the pain issues. She got me taking suppliments, quite a few, a year later I am better. Do not except a doctor blowing you off, and dismissing your pain. He is not in your body, and that is not the way any patient should be treated. There have been quite a few posts lately about doctors doing this kind of thing. I think they give up and want you to go away, so they stop caring and get you to move on one way or the other. I would want you to ask any new doctor you see about Ketamine infusions. This has worked for many different pain conditions. It did for me. The military was the first to really try this medication. If any one up in your area knows about it, it would be Columbia, or even Barns Hospital in St. Louis. You are too young to give up and think you will have pain like this the rest of your life. Fight for yourself, and that 2 year old who really needs you. I also would have been very angry to have been told " its in your head" just because your tests are negative. Your body is signaling pain from someplace, and no one that I know would make up any kind of condition, and stick with it 10 years. The doctor was nuts to think this. Kansas isn't the greatest place in the world for good medical care. Call the patient advocasy person at Columbia University med. center. One hospital drive is the address. I will be here any time you need to talk. I am sorry you are going through all this as such a young age. Don't give up. ginnie |
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"Thanks for this!" says: | Dr. Smith (08-17-2013) |
08-17-2013, 08:30 PM | #2 | ||
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Junior Member
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My biggest fear at this moment is even getting my dr to have an open mind when I come to him with this information. He HATES when ppl do their own research. I just have to convince him to look into chronic myofacial pain because I have done nothing but read about it for the last few hrs and it describes EVERYTHING I have been complaining about for all these yrs. I knew I wasn't crazy. If he even tries to brush me off he's gonna get a nice ** and I will get a new dr. Everything happens for a reason and I'm so grateful I found this website. This could essentially change my entire life.
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08-17-2013, 10:35 PM | #3 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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scholarly articles: myofascial release trigger point therapy Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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08-18-2013, 09:28 AM | #4 | ||
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Elder
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If your doc. doesn't have some kind of open mind, let the door hit him in the butt, walk out and snub him. Doctors are people, they need to know when their behavior is not acceptable. Picture him naked, and say what ever you want to him. (this stops the fear of talking to someone in a position over you)
Research is critical, when DX cannot be made. Copy the information from the PC, and hand him a written account of what you are experiencing. When I was in Columbia, I did this trial study. I had access to the medical library there, and did research almost every day to better understand what it was that I had. Kept up with the latest articles from Magazines like JAMA. I got so good at this that I actually taught 3rd year medical students a number of times, what it was like to live with the condition I have. They are training new physicians with a a lot more empathy. My children also attended and got up on the podium, and told them too, what it was like to be the child of a parent in pain. Your physician should embrace ideas, not shun them. Knowledge is power, power to make choices based on information. No person can make an informed choice about their treatment unless they understand the purpose of it. Keep going, and find that help that you need. ginnie |
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08-18-2013, 11:31 AM | #5 | |||
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Co-Administrator
Community Support Team
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Nimmo info sites-
https://www.google.com/search?client...ed=0CGUQ1QIoAA Generally you treat the most painful TrPs first, then often that will bring up the latent ones, so then those will need to be addressed. If you also find poor posture to be an issue , head/shoulders hunched or rolled forward.. that needs to be addressed too. That alone can stress the upper back muscles like the rhomboids, which will give a burning/ boring pain under the shoulder blades..
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"Thanks for this!" says: | Dr. Smith (08-19-2013) |
09-23-2013, 01:11 AM | #6 | |||
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