http://blogs.psychcentral.com/chroni...-chronic-pain/

We had a whole thread on this early last year—there've probably been more...

C'mon! Let's tell 'em what not to say!

Doc

When you asked "let's hear what not to say"....I read a post from you in 2012 that mentioned cystic acne and megadosing with B5 (pantolhemic acid). Never had a problem as a teen or young adult; but in the past 4 -5 years; having problems with a cystic/nodule type acne. Have been to a few dermatologist (have appointment next week with new doc) so far no help; Any info is appreciated.



Gerry

Answered via PM.

Doc

How about: "ARE YOU KIDDING?"

My mom walks over to the recliner where I'm in serious pain with my neuropathy.....she looks at my feet and says "Well they look fine"....thanks mom....thanks.......and I nicely said "It's on the inside" when I actually wanted to scream that at the top of my lungs.

But mom is 82 and soaking wet weights 85 lbs and I love her very much

Debi

My mother was in chronic pain for two years... Went to multi specialists. In very big cities until they finally diagnosed her with a 7 centimeter tumor in her lung... Two years later! After being diagnosed with many other things...trigeminal neuralgia. Copd. Well it spred and quick and mom was in so much pain!

Hi all

I am new here so please excuse any errors

I have been caring for my wife who has trigeminal neuralgia for last six years and hope I have avoided any such crass and stupid observations as those listed in what not to say

most times i try to just sit and be with her and avoid talking to her as pain can increase if she talks back - but sometime I wonder if there might be something I could say that might helpful

any ideas?

People know better then to say anything like that to me. That shows ignorance. They would get an ear full from me and nobody wants that.

My friend said one thing, which was mentioned on that site but I agree with her. The whole "It could be worse" comment. I agree because I don't have ALL the symptoms of my condition (RSD). It's rare to only have pain and nothing more. I'm extremely thankful for that!


Heather

I too give an ear full if someone poo poos my pain. Today I informed a so called friend that her saying "Oh well we all have aches and pains" Well perhaps if I wore my hardware on the outside it would be appear to the observer that yes, this might be a reason to have some pain. I didn't want a pity party, just a simple yes, I know it must hurt at times. I don't think people learn to accept and have empathy toward another unless they do walk in anothers' shoes. I think that is why this site works so well. No matter what our conditions are, we stick in each others corner the best we can. I wish all of us less pain. ginnie