Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 11-03-2013, 07:14 PM #11
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The stool idea for getting up sounds good but I can't get "down" without hurting myself in the process. Getting up is not possible without something to pull myself up.
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Old 11-03-2013, 11:01 PM #12
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I don't describe my problem as numbness any more. I call it altered sensation. When the Neuro sticks pins in I can't really feel anything other than a pressure sensation (so I can feel it, it's not numb) but if I stand on the smallest speck of gravel in my socks it feels like I've stood on a nine inch nail. When I broke my toe, I didn't know I'd broken it until I mentioned to my Neuro that I'd bumped my toe and it's been really itchy since then. Apparently pain can be perceived as an itch with Neuro conditions.

I looked it up and it's called allodynia (or something like that).
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Old 11-04-2013, 05:01 AM #13
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Different meanings to various terms make me crazy sometimes.

When I get asked if I have "tingling" my answer is NO. I have electrical shocks. Tingling to me is like the pins and needles feeling you get when something like your foot goes to sleep because the circulation was cut off. A very different feeling than when my nerves are mis-firing and I feel like body parts have been plugged into an electrical outlet.

I find communicating "pain" is a very difficult and confusing matter to both the patient and the physician.
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Old 11-04-2013, 07:34 AM #14
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Default Good morning !

Same with me Myelogirl.......I can feel pressure but no pain on some spots on my feet. My big toe will itch and when I scratch it I only feel pressure. But if I ever 'rub' my feet it starts the electrical shock thingys and these seem to race through all my toes at once.....ON both feet....lol.....and if I ever step on the smallest thing it sends the worst pain up to my dang knee area.

I tried that cream that starts with a C.....not getting up to find it and they said it would burn.....no burn....no nothing on either foot.

And my sweet Hopeless

Pretty much all the symptoms listed for SFN happen to me on and off all day long. Instead of pins and needles it's more like a 'shimmering' on the soles of both feet. Like when the sun is glistening off the water.

Just so hard to explain to family much less a dr. About the only dr I've seen that truly gives a damn is my PCP Amy.

When you go to a new dr do you ask them if they want you as a patient ? I'm tempted to do that tomorrow with the neuro I've only seen him once and wasn't thrilled. I know a lot of them have absolutely no personality, that they concentrate on what's wrong with you, but I need a neuro who has a personality....a nice personality and doesn't mind actually 'talking to me'.

Going in for the 2nd cup of coffee

Debi from Georgia (pretty darn cool this morning)
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Old 11-04-2013, 12:29 PM #15
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Quote:
Originally Posted by St George 2013 View Post
When you go to a new dr do you ask them if they want you as a patient ?
That's an interesting question. Medicine is, and has always been, a sellers' market—there are more patients than there are doctors to adequately serve them.

shortage of doctors

This suggests that they certainly don't need us (as patients) and that a strong motive for wanting us is increasing their income. More complicated cases mean more doctor visits, more testing, more treatments, etc. A doctor once confessed to me that he wasn't concerned about losing his job because of the money his (kind of/particular) patients brought in to the entity he worked for.

OTOH, as "Doctor Rob" wrote (paraphrased and oversimplified) in his Letter to Patients With Chronic Disease, some doctors want patients that they can help rather than those they cannot.

This isn't to say that doctors don't care, or are totally mercenary, but the economics & prestige cannot be denied.

In searching highest paying professions, careers in healthcare invariably dominate every list (aside from CEOs).

Quote:
The 10 Highest-Paying Jobs In The U.S.

...It’s important for us to note that many of the highest-paying jobs in the U.S. include various positions within the medical community. To avoid this list looking like a half-dozen or more reasons you should’ve saved up and gone to med school, we’ve omitted some of the redundant medical careers; for example, we’re grouping all the medical doctors together for the sake of simplicity. And if you really want to know just how profitable a career in medicine can be, take a look at the unabridged top 25 list, which we’ve included at the end of our list. Here are the top 10 highest-paying jobs in the U.S. as published in 2012 by the U.S. Department of Labor.
I cannot imagine a doctor responding to the question, "Do you want me as a patient?" with, "Yes, but only for the money," but sadly, that may be the reality of the situation for some.

I've always advocated an interview as part of the vetting process for selecting a new doctor—I do it myself—and many articles are available on that very subject.

interviewing a new doctor

I think the question is a good one, but may not even be necessary depending on how other answers/things go in the interview(?)

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Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
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Old 11-04-2013, 04:05 PM #16
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When my old GP retired and I was looking for a new one I looked up the Medical Registration Board for any previous complaints and or conditions of practice.

When I first went to my current GP, I told him I was interviewing him because I needed a GP with specific interests and ethics. He appeared to be a bit confused at my forthrightness but he answered my questions. I had some reservations but overall his answers were just what I was looking for. Importantly, he agreed to be my advocate in the event that I was unable to speak for myself. He is a devout Muslim and I thought that might conflict with some of my wishes but so far we have had a meeting of the minds and I think we have developed a mutual respect.

Now, I just have to find a Neuro with the ability to string two words together and the personality to communicate those two words and I'll be ahead of the game.
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Old 11-04-2013, 10:53 PM #17
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Default Thanks Dr Smith :)

I guess what I'm trying to figure out is this.....I made an appointment with this neuro 'out of the blue' (which most patients usually do) but what I really want to know is if he gives a damn about me as a person/patient and would be interested in trying to help me. I know that sounds simple and I also know some relationships don't click automatically. I'm sure it's going to take numerous visits to find out if I want this guy to treat me for a longer length of time.

Thanks for your comments and info as always.

Debi
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