Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 02-03-2014, 08:35 AM #11
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Originally Posted by Hopeless View Post
I find myself a lot less tolerant and less patient due to pain. It is like I have become a different person that I do not even recognize. Things that normally would have annoyed me now make me so angry I could scream.

I no longer "bite my tongue" and I now "speak my mind" even when it may not be the proper thing to do. What happened to the person I used to be?

Did I get "lost" in pain? Anyone else see changes in your own personality as a result of your pain?
you sweet soul
i call it the "monster" pain
what you are experience is so normal
it trying to keep it at bay
i hope you are able to take the proper
medication hopefully without side effects
i myself am not that lucky with the meds
to control the nerves related condition
as i had severe side affects
no you are not nuts
and ease up on yourself
if the ones closest to you do not
understand what needs tending to
helping rather than hurting
just make yourself understood
there is nothing wrong with that
you are letting all understand
where you are
and if i may
i am quite scary when my pain is up in the 7 & 8
on that smiley face scale lol
you are human and we feel pain no one can see
that's the hardest
how it cannot be seen my hands do not feel
like they are a part of my body hardly any feeling
left
chronic pain the pits
it robs us from so much

however on the up side of this
i have become truly spiritual
and blessed to have found this wondrous place
with beautiful caring persons
God bless
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Old 02-03-2014, 12:43 PM #12
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Originally Posted by PamelaJune View Post
Hi dr smith, we have tried, I used to live in the UK for 15 years and took dyhdracodeine or df118 as it's also known. I took 20mg a day and for 15 years had no problems whatsoever, now bowel blockages, no personality issues etc. Then I had the head on car accident that changed my life (not my fault) and came home to Australia. Aus don't do df118. They stopped it in 2002 and we moved back in 2005. So we began a trial of what works etc, the long and the short of a number of drugs, so many I can't recall but here's a few, tramadol makes me vomit violently, durogesic patches I'm allergic to the adhesive, and a number of non opioids that didn't do anything. I used to have rhyzotomies every 6 months from 2006 but they stopped once I had the seizure. So now I have the stim implant and I just use the slow release oxy, which, doesn't give me the short temper, it's the endone and oxy norm fast acting for break through pain that do. We have also tried endep 25mg and 10mg but I have bad side effects that result in tremors and since the seizure, also a no go. tried Valium which made me feel sleepy and given I was working at the time I needed my brain switched on so had to stop, then they put me on Xanax but I heard such horror stories I stopped and went through 4 days of withdrawals and given I was only taking .5mg I'm never putting myself through that again. The sad thing is they really helped considerably. So, I'm really hoping they can get this stim sorted and I can get my life back med free. Yay, I'm seeing the rep and PM on Wednesday 22 and believe they will discuss the paddle implant. Any things you can suggest?


Pam,

While I am on a very high dose of Oxycontin (60mgs every 6 hrs); the Percocet for breakthru pain is when I take my Vallium. When I had my spine fusion 8 years ago; while in the hospital, the nurse was giving me the Vallium and Percocet at the same time. I asked her why she was doing these two together. She told me the Percocet works so much better when taking the Vallium together.

Just wondering, since you say, the problem seems worse with your other med and Xanax just maybe the Vallium would not make you as sleepy when taking with something like Percocet (Oxycodone; generic) for breakthru. It really helps me with the sleepy problem and the anger issues due to meds.

Now....awful pain is another story. Really hard not to have some nasty issues.



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Old 02-03-2014, 03:25 PM #13
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Originally Posted by ger715 View Post
While I am on a very high dose of Oxycontin (60mgs every 6 hrs); the Percocet for breakthru pain is when I take my Vallium. When I had my spine fusion 8 years ago; while in the hospital, the nurse was giving me the Vallium and Percocet at the same time. I asked her why she was doing these two together. She told me the Percocet works so much better when taking the Vallium together.
As Percocet contains both oxycodone and acetaminophen, it's really like taking three medications together. This is one of the interactions I was thinking of when I wrote...
Quote:
There are many potentiators; aspirin, acetaminophen, ibuprofen, and caffeine are the common ones combined with pain medications. Other medications can act as potentiators as well, but that's best left between patient and doctor, as potentiators are basically medication interactions.
Any medication interaction site will verify this. In fact, these were two of the medications found in Heath Ledger's system (along with several others).

Medical professionals are in a better position (knowledge, experience) to make medical judgment calls on things like this because they are (or should be) familiar with a patient's medical history, medication tolerance(s), and other factors.

Doc
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Oh, the pain... THE PAIN...

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Old 02-04-2014, 05:51 AM #14
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When I have excruciating pain I am a screamer. I have zero tolerance or patience and yell at my loved ones over stuff that would never bother me if I felt ok. The worst part is I know how much of a grouch I'm being but I can't help it. I always apologize when my pain simmers down because I know how terrible I am, but it still makes me feel bad. Sometimes I count my blessings I still have people willing to be around me. When I'm really bad I isolate myself to avoid outbursts. I just feel bad for the poor soul that crosses my path.

Again, unless u r like us, no one can really understand what chronic pain does. Ive never been a mean person, but I sure can be. Just another pleasant side effect of our pain! On my good days I really like to do as many nice things as possible for my loved ones.
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Old 02-04-2014, 11:14 PM #15
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Quote:
Originally Posted by Dr. Smith View Post
As Percocet contains both oxycodone and acetaminophen, it's really like taking three medications together. This is one of the interactions I was thinking of when I wrote...


Any medication interaction site will verify this. In fact, these were two of the medications found in Heath Ledger's system (along with several others).

Medical professionals are in a better position (knowledge, experience) to make medical judgment calls on things like this because they are (or should be) familiar with a patient's medical history, medication tolerance(s), and other factors.







Doc


Just mentioned the Vallium because of her issues with Xanax and breakthru meds which obivously have already been prescribed for her.

Otherwise; completely agree.



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Old 02-05-2014, 02:05 AM #16
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Sorry Gerry,

Didn't mean anything personally. Sometimes when I opine I'm thinking about lurkers/googlers.

Doc
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Oh, the pain... THE PAIN...

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Old 02-05-2014, 04:11 PM #17
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Originally Posted by ger715 View Post
Pam,

While I am on a very high dose of Oxycontin (60mgs every 6 hrs); the Percocet for breakthru pain is when I take my Vallium. When I had my spine fusion 8 years ago; while in the hospital, the nurse was giving me the Vallium and Percocet at the same time. I asked her why she was doing these two together. She told me the Percocet works so much better when taking the Vallium together.

Just wondering, since you say, the problem seems worse with your other med and Xanax just maybe the Vallium would not make you as sleepy when taking with something like Percocet (Oxycodone; generic) for breakthru. It really helps me with the sleepy problem and the anger issues due to meds.

Now....awful pain is another story. Really hard not to have some nasty issues.









Gerry

Pam,

Just me again.....Not sure I made myself very clear in mentioning the Vallium and breakthru pain (whatever breakthru pain you are taking) . I, myself, would get a bit more hyper and energenic when taking my breakthru med.

The point I was trying to make was when taking the Vallium at the same time as the breakthru; I don't get overly hyper from the breakthru, nor overly sleepy/tired from the Vallium so together they seem to level things. (The Vallium is for muscle spasms, as well as anxiety.) Of course; consulting with your doctor is a must.

You have so many pain issues going on at the same time. Really rough without your breakthru pain meds causing you additional pain from doing too much.



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Old 03-06-2014, 06:54 PM #18
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Quote:
Originally Posted by Hopeless View Post
I find myself a lot less tolerant and less patient due to pain. It is like I have become a different person that I do not even recognize. Things that normally would have annoyed me now make me so angry I could scream.

I no longer "bite my tongue" and I now "speak my mind" even when it may not be the proper thing to do. What happened to the person I used to be?

Did I get "lost" in pain? Anyone else see changes in your own personality as a result of your pain?
That's the worst part of pain - that it changes who you are and it is a constant struggle to prevent that. One day, your pain may be managed, and you are confident and self-assured. Another (like today for me), you are suffering and it calls everything in question. I can make it through next week, but how do I continue working like this, suffering from neuropathy, for the next 15 years? How do I provide for my children and wife? The pain causes me to always be waiting for the other shoe to drop. I cannot relex and take a nice vacation. Instead, I should be saving the money for when I may not be able to work in the future. It is easy to think heroicly and say that you "won't let the pain stop you", but in the real world few of us have that intestinal fortitude. Most of us are mere mortals. The pain grinds on us and wears us down. Like I am prone to say, it does not give you the weekend off or take any vacations. It is unrelenting in its demand for attention. And when it gets to a certain level, you simply cannot block it out.

I wish you all well!
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Old 04-14-2014, 01:57 PM #19
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Originally Posted by evandtwins View Post
That's the worst part of pain - that it changes who you are and it is a constant struggle to prevent that. One day, your pain may be managed, and you are confident and self-assured. Another (like today for me), you are suffering and it calls everything in question. I can make it through next week, but how do I continue working like this, suffering from neuropathy, for the next 15 years? How do I provide for my children and wife? The pain causes me to always be waiting for the other shoe to drop. I cannot relex and take a nice vacation. Instead, I should be saving the money for when I may not be able to work in the future. It is easy to think heroicly and say that you "won't let the pain stop you", but in the real world few of us have that intestinal fortitude. Most of us are mere mortals. The pain grinds on us and wears us down. Like I am prone to say, it does not give you the weekend off or take any vacations. It is unrelenting in its demand for attention. And when it gets to a certain level, you simply cannot block it out.

I wish you all well!
Thank you Evantwins.
It is how we all get. One day not so bad. Another day just unbearable and can't think of anything else.
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Old 04-17-2014, 03:30 PM #20
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Yes, pain has changed me. I cannot possibly continue to be my sweet, easygoing, tranquil self.
And it kills me that with no relief, that easygoing me is gone. I liked her.
I now am mostly isolated without social fabric or interaction with others.
I never thought I would describe myself as, now, cynical, bitter, agitated, grumpy, resentful,
an old curmudgeon even! This is not how I want to live. This is not a life. This is not me.

Last edited by Theta Z; 04-17-2014 at 04:46 PM.
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