Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 04-25-2014, 10:48 PM #1
finz finz is offline
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Join Date: Feb 2007
Posts: 1,804
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finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
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Hi Mzdaisy,

What are your specific questions or concerns ?

Is the news of a dx of myelomalacia new to you ? Is that the reason you are considering changing neurosurgeons ? Or is it because you do not feel that your pain is being well managed ?

The presumed myelomalacia at C4-C5 could have been caused by your previous surgery/fusion there. It says those findings are unchanged from your last MRI.

Unless another surgery is indicated, which you didn't mention your neurosurgeon is planning, ongoing pain and symptom management with spinal issues would normally be handled by a neurologist, pain clinic, or PCP.

Many of us have ongoing issues with severe pain because we don't have a condition that can be fixed by surgery. We have chronic conditions that will never go away or be cured, we will always deal with pain. What we can hope for is a medical team that helps us find tools (could be nerve blocks, anti-inflammatories, narcotics, other meds, exercise, PT, massage, ice, heat, TENS, meditation, visualization, cognitive behavioral therapy to name just a few options) that will help us decrease our pain levels to a more manageable level.

Do you have a PCP, pain clinic, or neuro who is working with you to help you manage your pain ?
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