Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 05-15-2014, 07:14 PM #11
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Have they changed them? The last one I saw talked about tapering over a week. Obviously, for many, that's not nearly long enough. This page I read earlier this morning suggested tapering down 50 mg per week.

Getting Off Lyrica Without Problems; Minimize Side Effects

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No, my doc just maintained, despite all the evidence, that Lyrica isn't addictive.
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Old 05-16-2014, 10:53 AM #12
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No, my doc just maintained, despite all the evidence, that Lyrica isn't addictive.
Technically, it's not—it's dependence-producing.

http://www.asam.org/docs/publicy-pol...1.pdf?sfvrsn=0

Sorry, I'm a little pedantic on this point. Medicine uses very precise language for clear understanding.

"Here's to plain speaking and clear understanding."—Kasper Gutman ("The Fat Man"), The Maltese Falcon

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Old 05-16-2014, 11:34 AM #13
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Technically, it's not—it's dependence-producing.

http://www.asam.org/docs/publicy-pol...1.pdf?sfvrsn=0

Sorry, I'm a little pedantic on this point. Medicine uses very precise language for clear understanding.

"Here's to plain speaking and clear understanding."—Kasper Gutman ("The Fat Man"), The Maltese Falcon

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Tomato - To-motto/Potato- Pototto
Having lived through cold turkey Lyrica withdrawal, I'm not much interested in the distinction. No, I didn't crave Lyrica, after it was out of my system, as I would other addictive substances. However, the real problem we're discussing is doctors who refuse to acknowledge the very real suffering of patients breaking their dependency. TERRIBLE DRUG!!!!!
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Old 05-16-2014, 01:50 PM #14
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Tomato - To-motto/Potato- Pototto
Having lived through cold turkey Lyrica withdrawal, I'm not much interested in the distinction. No, I didn't crave Lyrica, after it was out of my system, as I would other addictive substances. However, the real problem we're discussing is doctors who refuse to acknowledge the very real suffering of patients breaking their dependency. TERRIBLE DRUG!!!!!
Hi Hockey and others , you make a good point . My Doc is proceeding at a breakneck pace to get me of Lyrica . down 100mg in 3weeks . Today all hell broke loose when my old neuropathic pain re appeared with a vengence over the left side of my face. It is in spasm numb and burning pain and is worse than before I took the stuff , now spreading into my neck and pulling my head over. My appearance shocked my wife as the facial contortions made her think I was having a stroke. I phoned the Doc who said the spasm was OK , keep on taking the pills and continue to reduce and take a diazepam.

All I can say is God help us as nobody else is.


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Old 05-16-2014, 05:36 PM #15
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My Doc is proceeding at a breakneck pace to get me of Lyrica . down 100mg in 3weeks . Today all hell broke loose when my old neuropathic pain re appeared with a vengence over the left side of my face.
Hi Nick,

If the pain is returning, that sounds like the Lyrica was working. I re-read the thread; I didn't see why you're discontinuing(?)

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Old 05-17-2014, 03:06 AM #16
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Default Lyrica What do you think ?

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Hi Nick,

If the pain is returning, that sounds like the Lyrica was working. I re-read the thread; I didn't see why you're discontinuing(?)

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Hi Dr Smith , ( I remember Lost in space ) Am coming off Lyrica because ended up at hospital with breathing problems . migraine and wide spread muscle twitching and body jerking. But yes it must have been working.

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Old 05-17-2014, 02:16 PM #17
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However, the real problem we're discussing is doctors who refuse to acknowledge the very real suffering of patients breaking their dependency.
Ok. That topic has come up here before, particularly with Lyrica & gabapentin.

As I said, medicine is a precise language, yet some doctors can still be very poor communicators. We also get the (justified) complaint a lot here too about doctors not taking enough time to explain/answer questions. Things are/may not always be as they seem...

Example: A patient goes to their doctor and says, "Doctor, I'm experiencing these horrible withdrawal symptoms; does this mean I'm addicted?" The doctor replies, "No, you cannot be addicted; Progenitorivox is not addicting," but doesn't elucidate further. Many doctors just try to keep answers short—so as not to confuse or overwhelm patients with lengthy detailed answers—or for other reasons known only to them.

To the patient, the above sounds like the doctor is being dismissive, and/or doesn't believe him/her, or is refusing to acknowledge their very real suffering.

To the doctor, s/he's just keeping the answer short. Maybe s/he's pressed for time, maybe s/he's got a lot on his/her mind and didn't give it a second thought, maybe s/he thinks the patient isn't much interested in the distinction... who knows?

However, to chronic pain patients especially, the distinction is very important, because addiction—unlike dependence—attaches a huge stigma, perpetuated in large part due to the confusion caused by not undestanding the difference, and using the terms interchangably.

From a previous thread on a similar topic:
http://neurotalk.psychcentral.com/post1016837-50.html

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Last edited by Dr. Smith; 05-18-2014 at 11:23 AM. Reason: Added link to Progenitorivox
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Old 05-18-2014, 07:47 AM #18
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Default Lyrica What do you think ?

Quote:
Originally Posted by Dr. Smith View Post
Ok. That topic has come up here before, particularly with Lyrica & gabapentin.

As I said, medicine is a precise language, yet some doctors can still be very poor communicators. We also get the (justified) complaint a lot here too about doctors not taking enough time to explain/answer questions. Things are/may not always be as they seem...

Example: A patient goes to their doctor and says, "Doctor, I'm experiencing these horrible withdrawal symptoms; does this mean I'm addicted?" The doctor replies, "No, you cannot be addicted; Progenitorivox is not addicting," but doesn't elucidate further. Many doctors just try to keep answers short—so as not to confuse or overwhelm patients with lengthy detailed answers—or for other reasons known only to them.

To the patient, the above sounds like the doctor is being dismissive, and/or doesn't believe him/her, or is refusing to acknowledge their very real suffering.

To the doctor, s/he's just keeping the answer short. Maybe s/he's pressed for time, maybe s/he's got a lot on his/her mind and didn't give it a second thought, maybe s/he thinks the patient isn't much interested in the distinction... who knows?

However, to chronic pain patients especially, the distinction is very important, because addiction—unlike dependence—attaches a huge stigma, perpetuated in large part due to the confusion caused by not undestanding the difference, and using the terms interchangably.

From a previous thread on a similar topic:
http://neurotalk.psychcentral.com/post1016837-50.html

Doc

Thanks Doc , that links really interesting and recognisable by me. It's as if you've been with me to see my doc. Exploring homeopathic as have had success with it before.

Thanks

Nick
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Old 06-14-2014, 07:38 AM #19
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Default Weaning off Lyrica as well

I have started to wean off Lyrica as well and the nightmares have been bad, the depression as well and the pain is intense. Does the pain settle down once your body re-calibrates? I am on 300mg a day for cutaneous nerve pain and have been for almost 18 months. I used to take 150mg 2x a day (morning and night) and just started cutting out my nighttime dose. Doesn't help I just had massage therapy yesterday as well which always hurts. Afraid to be reliant on this drug anymore.
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Old 06-23-2014, 11:18 AM #20
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Have they changed them? The last one I saw talked about tapering over a week. Obviously, for many, that's not nearly long enough. This page I read earlier this morning suggested tapering down 50 mg per week.



Doc
Tapering off 50mg per week? They mad. You will hit a depression so deep and dark, not to mention the rest.

IMO even around 10mg a week is alot. Maybe 10mg per 2 weeks. Any opinions?
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