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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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08-30-2014, 01:18 AM | #1 | ||
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Junior Member
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Regards McKenzie |
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"Thanks for this!" says: | Johnsonsyard (09-05-2014) |
08-30-2014, 06:37 AM | #2 | ||
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Junior Member
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Thank you for your reply. I'm so sorry that you are still suffering but I can relate to you. Please tell me your exact symptoms, treatments used that helped, and duration of symptoms. Will I ever feel "normal" again? I don't mean to be perfectly fine, but at least free of the anxiety and panic attacks that have made me a prisoner in my own body! |
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09-06-2014, 02:59 PM | #3 | ||
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Junior Member
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Pls share your experience with us. I'm still pretty bad after stopping Lyrica for 10 wks! Thank you. |
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09-06-2014, 06:32 PM | #4 | ||
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Member
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Hope floats.
I see you must have been going through some horrendous experiences. I hope you are getting help now, and can slowly get back to a better handle on the terrific pain that neuropathy can cause. I must say, I have never heard about such a high dose of Lyrica. I thought the absolute maximum daily dose was 600 mg, ( 350 mg being the mostly max used) Was it your neurologist that managed the prescription ? I have been taking Lyrica for about 1 1/2 year for neuropathy pain. ( The doctor put me on Neurontin at first, but that was quickly stopped due to feeling dizzy and "high" ( if that is what I felt. I, just like you have never taken any kind of drugs or alcohol, so I do not know what it means) I did not like the feeling of being like that Out of control. The Lyrica has really helped my neuropathy pain, and I have tolerated it well. That is except for ONE thing, and this one thing, I have been thinking, could be due to Lyrica: I have been getting some strange night episodes when I wake up and feel like something is pounding inside. Then I feel an extreme warmth that starts at one part of the body, and it slowly spreads to other area, one by one. It often ends up with a extreme internal heat inside my head. I have been explaining this to my neurologists ( have been seing 3 - 4 of them in consultations) I have had different tests, the cause of this has not been found, other than the fact that I think it is the Lyrica. I went to the Mayo Clinic, the neurologist there could not diagnose it other than she said it sounds like a panic attack. I did get upset with this, and told her that I do not feel anxious in general ( other than a little due to lack of diagnosis, and due to everlasting neuropathy pain and burning) I was sent to a epilepsy neurologist and had 72 hour EEG monitoring for seizures, but luckily negative. All this I am telling has been while I am still on Lyrica. I have been told that it is very important to take Lyrica with regular intervals so that the drug level stays the same in the blood stream at all times. I read all your horrible withdrawal symptoms, and I started to compare. But first, I must say, I do not have the stuff you are mentioning. So now I have come to think, that this strange night episodes could some sort of withdrawal symptoms during the night if the level gets low( ??) I am planning to try to stop Lyrica. And I have discussed it with my doctor. I will have to, just to be able to confirm or dismiss the idea that the night symptoms is due to Lyrica. Other than this night symptom, I am really doing well on Lyrica. But I do not think that it is a med one should be on for long term. At present they think they have found the cause of my neuropathy, Rheumatoid Arthritis. And I have been actively treated for that for some time, hoping the neuropathy will lessen, but so far not. I hope you will be well soon. I hope you have a good neurologist that can help you through the withdrawal and help you treat your neuropathy. |
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09-06-2014, 09:48 PM | #5 | |||
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Grand Magnate
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What's wrong with good old fashioned Tylenol? Unless of course your pain is an injury then forget it. Sounds like you were injured,
Best thing to do is STOP!! Stop all the pill popping and let your body get over all this. Stop listening to doctors! |
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09-06-2014, 10:46 PM | #6 | ||
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Legendary
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Always ask your doctor. |
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"Thanks for this!" says: | Hockey (09-08-2014), PamelaJune (09-07-2014) |
09-08-2014, 10:47 AM | #7 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Some people (self included) have little choice if they cannot take NSAIDs, so I take NAC to try to mitigate liver stress. Doc
__________________
Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | PamelaJune (09-09-2014) |
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