Hello everyone. I sincerely pray that you are all doing well and congratulate those who have made it to the other side.

As I write this, I am so desperate for help. If you can offer a couple of words of support and advice I will be eternally grateful.

Let me introduce myself. I am a 37 year old female, professional, wife, and mother to a 3 year old boy. I have been on Lyrica for over 3 years on and off. This had been prescribed to me for neurogenic pain. I was diagnosed to have fibromyalgia plus had a traumatic back injury due to a faulty epidural during my c-section three years back. And several doctors believed that Lyrica would be the solution for both problems. They started me on 75 mg, increased to 150, then 300....etc.

I must admit that that even though it didn't do too much for the pain, it made me "care less" about the pain. It also helped with my anxiety which wasn't at a morbid level, only part of my slightly anxious personality. By this I mean that I would feel anxious if giving a presentation , going to crowded places, meeting new people for the first time, etc. Otherwise was completely normal. I found that Lyrica would help me feel more at ease and talk easier to others...kinda give me some courage I guess. I also must admit that it gave me a bit of a head-buzz that I enjoyed. I have never smoked, drank alcohol, or ever experimented with any recreational drugs whatsoever. My whole life I have been on the straight and narrow, even during high school and college. So I never knew what it meant to have a head buzz or feel "high". But I enjoyed the feeling that Lyrica made me feel.

I started to up my dose by myself as I grew tolerant to it. Towards the end I would be taking around 10 capsules of 300mg per day!!!!
I know this is a ridiculous amount and I don't know what got into me?! I feel like the Lyrica in my system made my judgment go bad and I would accept things I usually would never accept.....like taking dangerously high doses of Lyrica!!

I did get off Lyrica once in January and the withdrawl lasted for maybe 10 days and wasn't that severe. So I guess I didn't learn enough of a lesson and went back on it when. My back pain became worse.

Now I have made a firm decision to stop Lyrica once and for all. I didn't really taper off properly. My last capsule of 75 mg was on June 29 (58 days ago). And I still feel like I am not myself. You will not believe the roller coaster of a nightmare I was on! I was admitted to the hospital initiall for 2 week with a diagnosis of "Acute Confusional State". I was disoriented to person, place, and time. I had amnesia, dyskinesia, total insomnia, and hallucinations. I couldn't even use the bathroom by myself or bath myself. I was completely dependent on others. Incidentally they discovered that I was extremely low in Vitamin B1 which I believe was depleted by the Lyrica. Apparently I had Beri Beri and Wernicke's Encephalopathy (sever B1 deficiency leading to both physical and mental consequences). This occurs in alcoholics but I have NEVER even had a sip of alcohol. So I my best bet is that this was caused be the Lyrica!

A month after I was a bit better but as of today I still have the following symptoms: insomnia, anxiety, PANIC ATTACKS, a sense of depersonalizations and derealization, depression, and a general sense of uneasiness and tension, and memory problems. I always feel Iike I'm waiting for the other shoe to drop, absence of impending doom. I'm too frightened to go out of the house where there are crowds for fear that it will be obvious that I am "abnormal". My close family who knows about what happened to me say I appear completely normal on the outside, but God knows that's NOT how I feel on the inside. On the inside I'm SCREAMING and my heart is racing and find it difficult two breath. But on the outside you wouldn't have a clue.

In desperation I started Cipralex (an antidepressant of the SSRI group) and am on day 8. Unfortunately things get worse on it before they get better ( it takes anywhere from 2-8 wks for a positive effect). My panic attacks are worse at night when I try to sleep and they keep me up FRIGHTENED TO DEATH with palpitations. I also would wake up repeatedly drenched in sweat and having panic attacks throughout the night. Again in desperation I added on Seroquel (an atypical antipsychotic/antidepressant which helps with anxiety and insomnia and actually augments the effect of Cipralex). This helps only at night when I'm unable to sleep from the panic attacks. It gives me only 4 hours of sleep (both when I tried 100mg and 200mg). And I know I NEED TO SLEEP because I noticed my panic attacks get worse when I'm sleep deprived.

I apologize for the lengthy message but I feel an obligation to let others know what Lyrica has done for me. I'm not a psychiatric patient, but had so many mental symptoms due to severe B1 (Thiamin) Deficiency brought upon by the Lyrica. So if ur having mental symptoms PLEASE INSIST THAT YOUR DOCTOR CHECKS YOUR VITAMIN LEVELS, ESP B COMPLEX!

In addition I was hoping, really praying, that someone...anyone...could chime in and say that they felt the way that I did and came out the other side. I'm desperate to feel "normal" again. Can anyone tell me how much longer it will take? I never expected to feel this way 8 weeks out!!

PLEASE PLEASE HELP ME IF YOU CAN. IM DESPERATE!

God Bless You All,
Laura

I feel bad that no one has replied.
I know this forum is full of true angels so plz help me.
Words can not describe how awful I feel.
Please lend a hand my friends... PLEASE.

I'm so sorry for what you are going through.
It must be horrible.

If I may suggest ... try posting over on the
Medications & Treatments Forum

There are other posts there regarding withdrawal from different medications.
In fact if you scroll down on this forum - Chronic Pain - you'll see many threads already there about Lyrica withdrawals.

Another idea is to try searching the forums for "lyrica withdrawal".
http://neurotalk.psychcentral.com/search.php

edited to add: try this

forum search - lyrica withdrawal

There are several posts about having problems with Lyrica withdrawal and if you read through them you will find the info you are looking for. You are probably not getting responses for that reason.
I wish you the best....I know it is not easy.
Diandra

This is a very hot topic on NT.

I was on Lyrica for nerve pain. My evil neurologist stopped me cold turkey, so I know the hell you're going through. The drug really should be tapered off, under medical supervision.

I was also on lyrica but did not know how hard it was to go off it and without seeking advice I just stopped it but went through 3 weeks of hell even though I was on many other pain killers some of which are very high pain killers, my dr went mad when he heard what I had done as you are supposed to go off them really slow,
I really feel for you.

Dear Laura, my story and experience with Lyrica is similar in some ways. I was on it for over 10 years and my withdrawal has been hell for over 18 months. I have joined this forum because I want to raise awareness of how dangerous this drug is in the long term. I am not sure how to navigate this website yet, but I would love to talk/share more with you to help you and others through this. It is very real and dangerous but very gradually I am starting to return to "normal".
Regards McKenzie

Hello McKenzie,
Thank you for your reply. I'm so sorry that you are still suffering but I can relate to you. Please tell me your exact symptoms, treatments used that helped, and duration of symptoms. Will I ever feel "normal" again? I don't mean to be perfectly fine, but at least free of the anxiety and panic attacks that have made me a prisoner in my own body!

McKenzie,
Pls share your experience with us. I'm still pretty bad after stopping Lyrica for 10 wks!
Thank you.

Hope floats.

I see you must have been going through some horrendous experiences.
I hope you are getting help now, and can slowly get back to a better handle on the terrific pain that neuropathy can cause.

I must say, I have never heard about such a high dose of Lyrica. I thought the absolute maximum daily dose was 600 mg, ( 350 mg being the mostly max used) Was it your neurologist that managed the prescription ?

I have been taking Lyrica for about 1 1/2 year for neuropathy pain.
( The doctor put me on Neurontin at first, but that was quickly stopped due to feeling dizzy and "high" ( if that is what I felt. I, just like you have never taken any kind of drugs or alcohol, so I do not know what it means) I did not like the feeling of being like that Out of control.

The Lyrica has really helped my neuropathy pain, and I have tolerated it well. That is except for ONE thing, and this one thing, I have been thinking, could be due to Lyrica:

I have been getting some strange night episodes when I wake up and feel like something is pounding inside. Then I feel an extreme warmth that starts at one part of the body, and it slowly spreads to other area, one by one. It often ends up with a extreme internal heat inside my head.

I have been explaining this to my neurologists ( have been seing 3 - 4 of them in consultations) I have had different tests, the cause of this has not been found, other than the fact that I think it is the Lyrica.

I went to the Mayo Clinic, the neurologist there could not diagnose it other than she said it sounds like a panic attack. I did get upset with this, and told her that I do not feel anxious in general ( other than a little due to lack of diagnosis, and due to everlasting neuropathy pain and burning)

I was sent to a epilepsy neurologist and had 72 hour EEG monitoring for seizures, but luckily negative.

All this I am telling has been while I am still on Lyrica. I have been told that it is very important to take Lyrica with regular intervals so that the drug level stays the same in the blood stream at all times.

I read all your horrible withdrawal symptoms, and I started to compare.
But first, I must say, I do not have the stuff you are mentioning.

So now I have come to think, that this strange night episodes could some sort of withdrawal symptoms during the night if the level gets low( ??)

I am planning to try to stop Lyrica. And I have discussed it with my doctor.
I will have to, just to be able to confirm or dismiss the idea that the night symptoms is due to Lyrica.

Other than this night symptom, I am really doing well on Lyrica. But I do not think that it is a med one should be on for long term.
At present they think they have found the cause of my neuropathy, Rheumatoid Arthritis. And I have been actively treated for that for some time, hoping the neuropathy will lessen, but so far not.

I hope you will be well soon. I hope you have a good neurologist that can help you through the withdrawal and help you treat your neuropathy.