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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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09-08-2017, 12:53 AM | #21 | ||
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Sent from my LGLS996 using Tapatalk |
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10-29-2017, 10:03 PM | #22 | ||
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11-26-2017, 02:50 AM | #23 | ||
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I was prescribed Gabapentin and was taking it for a semi decent while.(by the way I suffer from NERVE DAMAGE THAT BECAME CPRS AND RSD if you are not familiar with it. Bless your heart because that's how bad it really is...) Anyhow Then my short term memory was getting bad then it became worse...I forgot to tell my Doc about my memory loss if it wasn't for my bf at the time.. I would not have been able to get off of it... Gabapentin was very not helpful...its different for everyone but personally if I can spare anyone the horrid size effects.. I can and will...
Please look further into it...read the materials from the information pages from the pharmacy... Hope I helped shed some light.. Much love your pain buddy Mandí~~~ Sent from my LGLS996 using Tapatalk |
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"Thanks for this!" says: | ger715 (09-25-2018) |
09-17-2018, 05:19 PM | #24 | ||
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Congratulations to anyone who was helped by Gabapentin. My wife took it on Doc's orders to control her Peripheral Neuropathy but had a really bad reaction so we had to drop it.
She took half of a prescribed 300 unit pill and when I went to check on her, (she was sitting in her chair"), she said she was freezing so I got a blanket and a heating pad and set her up. A few minutes later I went to check on her and the heating pad and blanket were on the floor and she was still shaking. I said, what happened? She said, "I don't know" and was really unable to communicate rationally. Zonked out completely. Couldn't get out of the chair or walk so with the help of a very strong Son and a lot of effort we got her into bed. Needless to say, no more Gabapenten. I guess it helps some but not my wife for sure ! Now we are trying a plant based diet and CBD to help her. Just started the diet so we shall see if that helps. I sure hope something does because the nerve pain just takes away your quality of life. Nice to be here to compare notes. Regards , Geovani ! |
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"Thanks for this!" says: | ger715 (09-25-2018) |
09-24-2018, 05:56 PM | #25 | ||
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I take 1800 MG a day. It makes me dizzy and the memory loss is a bad side effect. I am hoping that CBD can help me lower the dose. My DR seems to think it could to the point of removing gaba from the picture. Fingers crossed, should find out in the next month or so. Will report back.
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"Thanks for this!" says: | ger715 (09-25-2018) |
09-25-2018, 11:46 PM | #26 | ||
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I just joined tonight, so please forgive improprities on my part. Diagnosed with PN 7+ yrs ago that began as symmetrical numbness in soles of both feet that has progressed to severe PN in both legs. Been on gababentine, 3200 MG daily, since initial diagnosis . Stated baclofen 10+ yrs ago for c4-c7 injuries, 90 MG daily. Dr. started me on ropinirol 1 yr ago for related leg cramping, recently increased from 2 MG to 6 MG daily Very difficult for me to separate effects of combined meds from PN / spinal injuries. Balance is a problem now which I'm told goes with PN. Other than initial fatigue, none of these 3 meds have been problematic. Had meds others in the past that did give me trouble which I had to stop. The PN pain is constant but tolerable. Opiates were ineffective unless taken in such quantity that the sedation became worse than the disease. I'm still reasonably active but experience "severe cramping" when I've over - exerted . I'm glad to be a part of your group and look forward to your insights. Good night! |
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02-19-2020, 07:00 PM | #27 | ||
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Hello, side affect's are Short Term Memory lose and long term memory lose. We have friend he was on them 4 then 6 a day. He has a cat after 8 year's owning his cat he would call my wife ask Tammy what's name of my cat ?? So we told him get off them fast start with Lyrica he is doing so much better for his pain. Pill is not worth loosing memory as you won't get it back. Doctor's are pushing Gab's because of ** taking our pain med's away. Blessed Evening, Jay
Last edited by Chemar; 02-20-2020 at 03:07 PM. Reason: NT Guidelines re limiting political references. |
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02-23-2020, 07:49 AM | #28 | ||
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Hi! I`m new to the group, but not with the NP.
I have NP in my feet for 4-5 years. I started with Gabapentin 4 years ago, and it worked good for the first year or so. The problem with Gaba is the tolerance. Now, 4 years later, I still use it, but I can`t feel any relief any longer. At one time I decided to stop taking it, and I managed to do so, after 1 very hard year of tapering. It is horrible physically addictive. Just a few days later, the pain went trough the roof, so I went back to 900 mg 3 time a day again. It got better, but at times the pain was still unbearable in my feet. I also take Amytriptaline 50 mg pr. day. But I am worried that it affect my cognitive abilities. The big breaktrough for me was when my doctor 3 months ago put me on 20 mg Methadone once a day. Now, finally, I feel I can focus on other things than the pain in my feet. I pray that the tolerance is low, (very long half life) so I can stay at this dosage for the duration. I know I need medication to be able to live with this, and all of them is addictive one way or the other. But at 64 I`m not so worried about that. The most important is to have a good quality of life. I have also heard about one week infusions of small dosages of Ketamin. It is supposed to be the best. Let`s face it: we will have to live with this curse the rest of our lives. |
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02-23-2020, 03:19 PM | #29 | ||
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I;ve posted about a friend who has been living with 20-30 yrs of NP and took all the heavy duty drugs including the Gaba....., and since hearing me rave about Grape Seed Extract for years she finally got with it and has been taking Grape Seed now for probably 10 yrs and off the drugs her doc was doling out for years. Her doc lost one of his cash cow patients after so many years. She had so many side effects on the drugs.
I could write my own book about the merits of Grape Seed Ex which I've been taking for about 25 yrs very soon. I avoid the toxic drugs the very best I know how to. C |
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02-23-2020, 06:44 PM | #30 | ||
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The neurontin caused a lot of side effects for me. It effected my mental status and made me feel crazy. It took several trips to the hospital before my doctor agreed to switch me from it. I know lots of people it's been helpful for with chronic pain, especially fibromyalgia, it just didn't help me. I have been taking Lamictal now for quite awhile, and while it's not perfect, what is, it's helped with the pain, my mental health, and just works for me. It's really trial and error in the beginning, the most important thing is to be honest with doctor, make sure they are listening, don't give up, and don't rush to change things, sometimes, it takes awhile to even out. NEVER, EVER, EVER, just stop taking your meds--bad idea--many meds have to be reduced gradually, or you can really go off the rails.
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