is that the pain pump acts locally - that's why she could go to 5 milligrams from 900 orally. So, it shouldn't affect your dry-eye condition.
However, I have no idea if you are a candidate for a pump.

How did your eyes & mouth get so dry? Are you taking antihistamines and other anti-cholenergic medications? What have you tried to fix the dry-eye so you can take the reccommended dosage for high blood pressure?

I appreciate your answering this gizmogirl!

I have Sjogren's Syndrome and Rheumatoid Arthritis. And severe osteoporosis along with neuropathy.

The Sjogren's Syndrome is an autoimmune disease that causes dry eyes and dry mouth. It affects the glands that produce the mucus in the body. It also affects the GI tract and other organs. In some cases it affects the nervous system.

I don't know if I would be a candidate for the pump either. I'm just exploring my options because the pain is so very miserable and consuming.

Thanks again,
Billye

OMG I sure hope you have the type of Sjogren's syndrome that plateaus instead of progressing. Have you tried the prescription that makes you make more tears - I think I saw it on TV recently - is it any good? I thought I had to struggle with dry eye and self pity because I can't wear contacts and it can set off headaches...I will never whine again. Our eyes are so important to keeping our spirits up. It must be so hard to have them not just not working right, but paining you as well. I think I would actually wear goggles with a damp rag if it reduced the nagging pain - what about you? I sure hope you get somewhere with a pain pump or other pain killer.
Good luck, silverlady

I've got the progressive form of Sjogren's. Yes, I'm taking Salagen (produces a small amount of saliva and a small amt of moisture in the eyes). I also use Restasis which is the medication that helps you produce tears. In my case I'm not sure it works but it sure has kept my infections down in my eyes. I wear goggle prescription glasses when I am out of the house where I can't control the air in my face. At home, I can control it a little better. I sleep in moisture goggles at night. Life got really complicated when I got this stuff.

I'll keep the information you posted for me in a folder. I do appreciate it!

Billye

I dug up this older thread while looking for info about Central Pain Syndrome. Currently I have secondary progressive MS (use a powerchair), fibromyalgia and after doing some research for this constant burning, stabbing, hot, cold, sharp, dull, throbbing pain, especially at the end of my tailbone and in my feet, it sure sounds like central pain syndrome.

Anyway, after all that, have any of you original posters found anything new that actually helps ease the pain? A pain clinic I went to once around this area had nothing else to offer besides the usual pills which my neuro, rhumy and pcp already tried. Twelve or so years and counting of this horrible pain........HELP PLEASE!!!!!

Maybe none of you original posters are around, but I have some new info. Yes, I do have Central Pain Syndrome from 32 years of MS damage to my brain, brain stem and spinal cord. My neuro prescribed the generic for Tegretol, Carbamacezine which worked great for the pain. However; in six days the side effects took over, horrible weakness, fatigue, sore throat, more achey than usual and headache. I am sensitive to meds so wasn't too surprised.

Now I need bloodwork done as it can cause aplastic anemia (all ready anemic), and have to visit my pcp for a general health check. Wonder if I could take 1/2 pill once or twice a week without se's?

Why couldn't something work right for a change???

Any news from anyone else? Take care...

I'm new today and am not sure how all of this works. My history is- stroke in 2001-recovery gift...Thalamic Pain Syndrome. This all happened when I was 50, so I'm hanging in there. Finally getting to be a Grandma in June so I need to keet going. I'm lucky though, I pushed hard and finally got an internal pain pump at the Cleveland Clinic in '06 . No miracle but the hydromorphone helps some. I was able to get a Disability Retirement from my teaching job from the state union last year. Now I'm fighting Social Security for benefits.
Anyone out there have any luck with them and this diagnosis?
ML

hi iam becky, and have been diagose with CentralPain too and the only place it has not hit on myself is my abs and butt. is this nerve pain or like? and i would also like more information about this too if you do not mind. ammtriplene works with me but iam on 6 other meds too. my hand and feet are always numb. thankyou for your time. packey

I had sponal botox injection OMG it work instantly but did not last. I could nt afford them as you said no ins. would cover it , but I did have amazing relief. Good Luck.... Linda

thankyou for the warm welcome back, life just got busy nothing to do with this we did alot to are home and summer is over no more garden, but my pain is still bad it has been in my back alot that is the worse place to have pain for me. this sight has changed more stuff i like it, i hope my freinds have been ok glad to be back